cdiff

Flagyl gives me Thrush and then Nyastatin gives me Diarrhea for a few days but doesn't work that well for my Thrush; I always have to take Fluconazole to get rid of the Trush.

Just because you don't see the Thrush on your tongue doesn't mean that it isn't in your GI tract causing havoc.

When I get really rundown then it is usually Thrush.

Have you tried any probiotics? Florastor works really well for Thrush; my nutritionist recommended it to me and I saw a big improvement.

I'm in a different situation than you because I've been on constant antibiotics for the past 18 months for pouchitis, so Thrush is an ongoing issue for me.

I also find that Apple Cider Vinegar added to water helps treat the Thrush.

I'm miserable. I have sores in my mouth and tongue. I feel exactly like I did the first time and my cdiff test was negative that time too. Eventually, I got better but it took about a month after being off Flagyl. I don't think it's cdiff. I think its the Flagyl. I take zofran and it helps some. Called doctor today but haven't heard back yet. They are bad at not calling back

Can I do the vinegar while I'm taking the nystatin?

Post Edited (Bon) : 12/21/2015 5:40:15 PM (GMT-7)

Sores in your mouth and tongue sounds like Thrush. Fluconozole is much better for Thrush than nystatin.

Why are you taking Flagyl? If it's for C.diff than Vanco is better at treating C.diff and doesn't have the side effects that Flagyl has. There is a new c.diff med that is even more effective than Vanco and its called Dificid.

Clostridium difficule (C. diff for short) is a bacteria that is actually in many of our guts and does not cause harm. there are two main ways to contract an infection and they are 1) taking a broad range antibiotic, basically it kills out a lot of the good bacteria in our gut but leaves the C. diff to multiply rapidly and cause a terrible infection. It is a spore producing bacteria which means that it is very difficult to kill so using things like purell will not rid it. need handwashing with warm soapy water and cleaning hard surfaces with bleach to get rid of it. 2) fecal oral contamination, meaning someone gets particles of infected feces and ends up ingesting it. this is actually easier than you think. because if someone came in contact with C. diff and used hand sanitizer they may have thought htey were safe and they could have infected themself.

it is much more common in ibd patients and it seems to be more common after use of PPIs and NG tubes
if you did not understand anything i wrote please ask and I will be more than glad to clarify

miestomaga said...
How do you get cdiff? I've heard it's common for people with UC and is very similar to UC symptoms.

Cdiff is a bacterial overgrowth, an infection. Cdiff is a common bacteria in our environment. Cdiff can go wild after a course of antibiotics, as cdiff is opportunistic and will reproduce rapidly when given a chance.

Understanding Your Risk: C. diff
Clostridium difficile, commonly known as C. difficile or C. diff, is a bacterial infection whose symptoms mimic IBD flares, including diarrhea and colon inflammation. Research currently suggests that IBD patients experience a higher rate of C. diff infection. Though the majority of C. diff cases occur in medical care settings, such as hospitals, nursing homes, and doctors offices, IBD patients are more likely to contract the infection without the typical risk factors. For example, they are more likely to contract C. diff within the community and at younger ages than those without IBD.
In addition, IBD patients often experience increased severity of C. diff infection and longer hospital stays for infection. Those at particular risk are individuals diagnosed with ulcerative colitis rather than Crohn's disease, and IBD patients treated with immunosuppressive drugs or antibiotics. While research into the relationship between IBD and C. diff is currently inconclusive, it points to the possibility that C. diff can trigger a flare.

I still don't know how I got cdiff. I did not take antibiotics but was on a new med Fosamax. I took my third dose of it and started with bad diarrhea. Had diarrhea for 2 weeks before I went to ER and was diagnosed with cdiff. I did go swimming the the river a week before I got it

i don't think the doctors know enough about this disease. There should be a lot better drugs for this. And a lot more research. They need to figure out how to get rid of it for good.

Bon,

What country do you live in? Are you able to find another doctor? I think suffering through c.diff 3 times before they will switch your medicine is unacceptable. Vanco is expensive but it works.

FYI, NSAIDs can cause you to flare, that is why I said that you shouldn't take Aspirin unless you need it.

Your GI's position on cdiff treatment is unreasonable. It's bad enough that we can poop on command because of UC. Cdiff is treatable and I doubt he would be willing to treat himself the same way.

Just got home from my GI

he wants me started on Flagyl tonight. about to go pick it up right now.

He also decided to move my Remicade infusion up. It was supposed to be next Tuesday and now will be this Thursday.

How long does c-diff take to treat? He has me going on it for 10 days.

Dikid said...
flaygl does not work for severe cases of C. diff and most ibd patients start out as severe

check out stacy kahn at university of chicago she has excellent data and performed the first fmt in a young child
she is the C. diff expert and her protocol differs from that which your GI is doing

great

when I was in his office and he said Flagyl, I recalled this thread and remembered people talking about vancomycin too but couldn't remember which one people were recommending.

The insert for the flagyl prescription said if I don't notice an improvement within 4 days then I should contact my GI. I guess I'll ask for vancomycin if this isn't working after a few days.

This is my first time with cdiff so maybe that makes flagyl work better? Not sure what a severe case is, I mean, my life kind of sucks right now and I don't feel comfortable leaving the house for extended periods but outside of the numerous times I'm on a toilet a day, I don't feel that bad otherwise.

I still don't know how I got cdiff. I did not take antibiotics but was on a new med Fosamax. I took my third dose of it and started with bad diarrhea. Had diarrhea for 2 weeks before I went to ER and was diagnosed with cdiff. I did go swimming the the river a week before I got it

I now have thrush again and nystatin is making me sick. I am nauseated all the time and have quit eating much.

Post Edited (Bon) : 12/21/2015 5:34:24 PM (GMT-7)