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Ulcerative Colitis
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Posted 2/17/2016 10:26 AM (GMT 0)
I have been in a flare for about a year now. Started Humira in August. Got off prednisone in October but never "really" felt better. Lots of bandaiding with Imodium, trazodone ( for sleep and it really slows down your digestive tract). Stopped Humira earlier in the month as it really was not doing anything and started Uceris. Not having the stellar reaction I hoped or had in the past. Steroid enemas help for the next day but they day after its terrible.. its as if my system can't regulate itself- once it starts it can't stop. I have definitely felt worse from a flare but can't seem to get better.
Posted 2/17/2016 12:05 PM (GMT 0)
Have you tried any supplements? I'm also flaring at the moment, but my first time flaring in a few years, and in between that my flares have been quite short.

I've managed to get myself into remission a few times with aloevera, slippery elm and ginger. This time it's proving a little more difficult, but I'm also trying psyllium husk, turmeric, boswellia, aloe juice and slippery elm. I'm also making my own SCD yogurt.

I am actually going to the doctor today for some Enemas to help out the process, but I have been noticing a little improvement - especially today after taking Aloe and Slippery elm last night - the blood has dramatically improved.

Not saying go off your med's at all - but sometimes I think there are natural supplements that might help?

I think the hardest part about all of this is some things work for some people, and other things don't work for others and you end up feeling like a test rat subject. It really just annoyed me the way I was treated - and wanted to try and find a way with as little drugs as possible.
Posted 2/17/2016 1:33 PM (GMT 0)
Some people have a better response to Remicade than they did with Humira. There are other biologics also -- Simponi & Entyvio that I have heard of. Have you tried mesalamine enemas? What are your current symptoms?

Also, have you tried any diet modifications? That doesn't work for everyone, but for some it works great.

I wasn't able to get into remission until I added homemade nopal water (use the search feature to find multiple threads here about it). Asacol HD got me to a simmering state but never "normal" until I added the nopal. It wasn't quick acting for me but I made slow improvement and after 3 months there was no more blood and I only have 1-2 formed BMs/day. Prior to adding the nopal I had tried azathioprine but wasn't able to tolerate it and my next step in meds was going to be Humira. Since I stared to see slight improvement with the nopal after just a few days I thought I would stay with that before adding a new med. I've been in remission for 10 months now.
Posted 2/17/2016 3:52 PM (GMT 0)
I would see about trying Remicade. I would also request a stool test. When was your last scope? Sometimes it's good to get a visual so you know what you're trying to treat. If all the inflammation was in the rectum, you would probably want to double up on rectal medication.
Posted 2/17/2016 5:50 PM (GMT 0)
Entvyio would be my vote.
Posted 2/17/2016 8:53 PM (GMT 0)
Some supplements to try...

Powdered psyllium seed....it bulks up your stool, sometimes stopping flares in their tracks before they get out of hand.

Grape Seed Extract....I was surprised at the difference I noticed as soon as I started taking this...it works fast as well.

Curcumin...extremely beneficial for many people and definitely worth trying.
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