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I'm officially hopeless

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Ulcerative Colitis
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Posted 2/20/2016 2:48 PM (GMT 0)

Kulinarykidz said...
I am right there with you...our stories are very parallel except that I wasn't pregnant. I have ovarian cysts and endometriosis. Each time those act up, my uc flares. I don't have words of wisdom, only want to say you are not alone. So many people including doctors tell me the gyn problems aren't related but I've had to obgyn and a GI agree they are.

As I sit here in the hospital baffled by a flare that started 2 weeks after my remicade infusion when I've been fine for 4 months I'm practically at wits end. I can't have gyn surgery to heal the colon and can't heal the colon with the gyn issue.

Just want you to know I'm sending positive thoughts your way and I know we will find answers!

I also have PCOS and endo, and have found that low dose birth control improves my UC symptoms (as well as the PCOS and endo symptoms). Before, I was having 2 week-long periods a month and even with only mild inflammation, I was still going 10 times a day with urgency. It was hard to differentiate when abdominal pain and cramping was from my period and UC, but I think it's pretty safe to say that each made the other worse.
Ortho tri cyclen low calms down my hormone changes and symptoms.
Posted 2/21/2016 4:20 PM (GMT 0)
I think wellbutrin is a good choice. I'm taking it along with zoloft and I'm doing well. My dosage is good but when I took 300 mg of wellbutrin I was more irritable. That's why I lowered it again.
Posted 2/21/2016 5:13 PM (GMT 0)
Blood was the last symptom to go away for me and it didn't go away completely until I added homemade nopal water. It's been 10 months now since I have seen any blood.

1-3 non urgent BMs a day doesn't sound like you are headed towards surgery. The other issues you had gave you a bit of a set back, but it sounds like you are slowly healing. Try not to dwell of small bits of blood. Hang in there!
Posted 2/23/2016 4:19 PM (GMT 0)
I know you are frustrated--been there--but you are not hopeless! When I was having a prolonged flare a couple years ago (completely related to screwed up female hormones, and also diagnosed hypothyroid) I had your same symptoms (couple of bm's daily with blood/mucus) for months. The Remicade didn't work for me either (though prednisone does, my docs won't give it to me anymore). I was disgusted and ready for surgery.
What finally did help was going 110% gluten-free. I had tried it for a month or two with no results, but it was a chiropractor who told me it takes at least 3 months, maybe more, to erradicate all gluten from your system, and even a tiny bit (even a *bite* of bread) sets you back at square one. So I did it, and right at the 3 month mark I noticed an improvement--no more blood and mucus. So don't discount dietary changes! And if you're going to try them then it requires 100% commitment in order to know if they work or not--give it a solid 3 months of being strict.
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