I've been on Imuran for about
a year and 3 months now (50mg, quite a low dose). It helped me to reach remission after an awful 18month flare that almost required surgery, and I've been regular with my blood tests and have very luckily had no problems with it until now.
My last blood test showed that my white blood count has dropped significantly, so my GI has lowered my dose slightly to 50mg and 25mg, alternating between the two each day (instead of 50mg daily).
it doesn't seem like much, but he was reluctant to do this because my remission is so fragile, and obviously I can't carry on with my usual dose safely. I have to have blood test in a couple of weeks time to see if changing the dose has made a difference in my WBC, if not i will have to come off Imuran completely.
I write this post because my GI has told me that my next option is surgery, and although theres still a chance i'll be able to carry on taking Imuran, I'm just so terrified of the prospect of surgery.
I've had indeterminate colitis for years now but it continues to terrify me on a daily basis. I'm tired of hospital stays and medication and pain and blood, but losing my colon scares me too. So many people say that surgery was the best thing they ever did, but I've heard horror stories from others.
I don't even know what my question is here, i just feel like i could do with some reassurance from some like minded people. Theres only so many times i can cry about
it to my family and friends! Any advice is more than welcome.
Post Edited (LeanneRachel) : 2/29/2016 4:18:16 AM (GMT-7)