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"Things look great" ... well I don't feel great

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Ulcerative Colitis
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Posted 5/2/2016 10:47 PM (GMT 0)
I had a colonoscopy a month ago. My GI told me that there is some mild inflammation, but generally my colon looks great and it's healing.

I don't have diarrhea, but I don't exactly feel great. I have this weird feeling, it's a mix of pain and nausea. I felt it every day for the last ~30 days. For some reason this feeling somewhat calms down after I eat, but it returns after some time. The more time goes by without me eating, the worse this feeling gets.

This feeling goes away when I get up in the morning, but appears during the day.
Posted 5/2/2016 11:01 PM (GMT 0)
Maybe you're hungry šŸ˜
Posted 5/2/2016 11:13 PM (GMT 0)
yes, UC prisoner is right :) Get some delicious ćevapčići
Posted 5/3/2016 7:51 AM (GMT 0)
:D

No, I am not hungry. :)
Posted 5/3/2016 4:54 PM (GMT 0)
Have you had any blood work done lately? I see that you are on Imuran. When I was on Azathioprine (generic Imuran) I started feeling nauseated all the time and then my LFT results got out of whack and I had to stop taking it.
Posted 5/3/2016 6:24 PM (GMT 0)

CCinPA said...
Have you had any blood work done lately? I see that you are on Imuran. When I was on Azathioprine (generic Imuran) I started feeling nauseated all the time and then my LFT results got out of whack and I had to stop taking it.

I started taking Imuran in December last year. Last blood work was a month ago. My next one is in 2.5 months.

I started getting nausea about 1-2 weeks before the blood work.

Today I had a thought that the mild pain/nausea might be Imuran making my stomach acid stronger. I read that it can happen. I don't know whether this is it.
Posted 5/3/2016 7:17 PM (GMT 0)

CCinPA said...
Have you had any blood work done lately? I see that you are on Imuran. When I was on Azathioprine (generic Imuran) I started feeling nauseated all the time and then my LFT results got out of whack and I had to stop taking it.

I took one anti acid pill... it doesn't seem to be helping. The nausea is at it's peek before sleep and is non existent in the morning.

How quickly did your situation happen. If it's really happening, I don't think I should wait 2 months. Right?

Post Edited (emilp89) : 5/3/2016 2:41:25 PM (GMT-6)

Posted 5/3/2016 10:04 PM (GMT 0)
Doctors dispense RX meds based on what they see in a c-scope and in my experience don't rely on what we, the patient, say our symptoms are. Probably because it is such a difficult disease to treat but more likely they are trained to treat what they see and biopsy. I felt my first couple GI's were heartless when I cried about how bad my symptoms were and they did not respond.

It made me realize the limitations of what a GI can do for me as far as symptomatic relief. That, I found, is up to me. Mainly because I am not an easy patient who responds to RX meds, only mesalamine enemas help my symptoms.

I suggest you do some research into IBS as well as googling nausea after eating. Try some OTC supplements or diet modification (certain foods causing it?), see if it helps. No doctor can be as good a detective as you can be. No one cares as much as you do.

Ask your GI about switching to 6mp (similar to Imuran) and see if that is better for you.

A long shot is that the nausea is not related to UC or RX meds, but is something else gastro-related. Stomach ulcer maybe?

Good luck.
Posted 5/3/2016 10:37 PM (GMT 0)
maybe you should try wild oregano oil (in pills because it's much easier to take) or some different probiotic, is vivo mixx available in your place?
Posted 5/4/2016 12:29 AM (GMT 0)
If you suffer from nausea with Imuran, it's worth trying 6MP instead, as in general that's the better tolerated drug out of the two.

And you should ask for a blood test now rather than wait 2 months. If it's available, a TPMT test to see how well you're metabolising the Imuran would be helpful - the dose might be too high for you to comfortably tolerate.
Posted 5/4/2016 1:19 AM (GMT 0)
Ok... this feeling officially woken me up. Now I can't sleep (I did eat cheese before sleep, this might have caused it, I am not sure). Which sucks because tomorrow is my first day at work.

imagardener2 said...
Doctors dispense RX meds based on what they see in a c-scope and in my experience don't rely on what we, the patient, say our symptoms are. Probably because it is such a difficult disease to treat but more likely they are trained to treat what they see and biopsy. I felt my first couple GI's were heartless when I cried about how bad my symptoms were and they did not respond.

It made me realize the limitations of what a GI can do for me as far as symptomatic relief. That, I found, is up to me. Mainly because I am not an easy patient who responds to RX meds, only mesalamine enemas help my symptoms.

I suggest you do some research into IBS as well as googling nausea after eating. Try some OTC supplements or diet modification (certain foods causing it?), see if it helps. No doctor can be as good a detective as you can be. No one cares as much as you do.

Ask your GI about switching to 6mp (similar to Imuran) and see if that is better for you.

A long shot is that the nausea is not related to UC or RX meds, but is something else gastro-related. Stomach ulcer maybe?

Good luck.

I don't have nausea after eating. It's a feeling between pain and nausea. I am not really sure, but I think eating calms it down.
Posted 5/4/2016 1:23 AM (GMT 0)
emil said: I don't have nausea after eating. It's a feeling between pain and nausea. I am not really sure, but I think eating calms it down.

That sounds like a duodenal ulcer (read link below-different locations of ulcers)

link:www.fhcsandpoint.com/wp-content/uploads/2012/04/PEPULCER.pdf

Post Edited (imagardener2) : 5/3/2016 7:26:25 PM (GMT-6)

Posted 5/4/2016 1:24 AM (GMT 0)

ewafromwarsaw said...
maybe you should try wild oregano oil (in pills because it's much easier to take) or some different probiotic, is vivo mixx available in your place?

I didn't even take a probiotic today, so I doubt it is it. And no, it is not available.
Posted 5/4/2016 1:33 AM (GMT 0)

imagardener2 said...
emil said: I don't have nausea after eating. It's a feeling between pain and nausea. I am not really sure, but I think eating calms it down.

That sounds like a duodenal ulcer (read link below-different locations of ulcers)

link:www.fhcsandpoint.com/wp-content/uploads/2012/04/PEPULCER.pdf

Thank you for that. I am going to take a anti acid pill right now.
Posted 5/4/2016 1:39 AM (GMT 0)
Read more about peptic ulcers. I read another article that stomach acid may not be the reason for ulcers and that people with normall or low stomach acid also get ulcers. It can be H. pylori. Get an appointment with your GI and have tests done. Discuss your symptoms, maybe it's something else.
Posted 5/4/2016 2:37 AM (GMT 0)
I think you should contact your doctor. I agree with NCOT about another blood test now. You've been on it long enough that you shouldn't still be getting side effects. My LFT levels went up after just 2 months. Don't know if something like that can show up later. I am guessing it can or they wouldn't require regular blood tests to check your levels. I was living on Zantac & Tums by the time I had a blood test that had high LFTs
Posted 5/4/2016 4:44 AM (GMT 0)
Now that I think about it, lately I had the feeling of being full from time to time for the last couple of weeks. I have been burping today (a dozen of times). Most of them were normal burps, one was the one where you feel acid. Also I had upper stomach problems last year. When my previous GI recommended hospitalization, he said he needs to do a colonoscopy and an endoscopy (I told him I had pain, located right were I am currently am having some pain). My current GI hospitalized me, he didn't do an endoscopy, upper stomach problems went away, and now they have returned(?).
Posted 5/4/2016 4:51 AM (GMT 0)

imagardener2 said...
Read more about peptic ulcers. I read another article that stomach acid may not be the reason for ulcers and that people with normall or low stomach acid also get ulcers. It can be H. pylori. Get an appointment with your GI and have tests done. Discuss your symptoms, maybe it's something else.

I did not know this, but I DID have this feeling for over a month now. So it could be strong stomach acid slowly leading into an ulcer? I don't know if people with strong acid, feel the acid before an ulcer forms?
Posted 5/4/2016 6:35 AM (GMT 0)
Are your bowel movements regular. Do you go as soon as you have to? Are you ever constipated?
Posted 5/4/2016 5:26 PM (GMT 0)

Dikid said...
Are your bowel movements regular. Do you go as soon as you have to? Are you ever constipated?

Yes, I go as soon as I have to, it is uncomfortable not to go right away. Constipated? Difficult to tell. For some time, I had a BM every 3 days. Over time, my colon got better and now I have a BM every 2 days.
Posted 5/4/2016 5:51 PM (GMT 0)
Irregularity
And or constipation can cause both nausea and pain.
When constipation is bad it might cause a feeling of fullness after eating just a little.
Easy fixes are increase fluid intake and than increase soluble fiber intake slowly and as fiber intake is increased add water. Increasing fiber without water will make constipation worse
Posted 5/4/2016 7:55 PM (GMT 0)
I hear ginger can settle the stomach. I tried ginger tea before and I'm not a fan, but maybe that's something you can try and incorporate?
Posted 5/4/2016 7:58 PM (GMT 0)

Dikid said...
Irregularity
And or constipation can cause both nausea and pain.
When constipation is bad it might cause a feeling of fullness after eating just a little.
Easy fixes are increase fluid intake and than increase soluble fiber intake slowly and as fiber intake is increased add water. Increasing fiber without water will make constipation worse

No... I had this. My stool was in my colon for too long, causing pain. Sometimes I could actually feel it travelling from the right to the left side. This doesn't happen anymore. This is definitely different, it's an upper abdomen issue.
Posted 5/4/2016 8:14 PM (GMT 0)

Doggiedo said...
I hear ginger can settle the stomach. I tried ginger tea before and I'm not a fan, but maybe that's something you can try and incorporate?

I've never tried ginger tea. I am going to check it you. Thanks.
Posted 5/4/2016 8:55 PM (GMT 0)
I found articles that say that gluten can weaken stomach acid. And this is one of the things I started eating when I got better. Basically a weakened stomach acid makes the stomach full with food, which then irritates the walls of my stomach. I am thinking of putting a stop to eating gluten and drinking Kvass :'(.
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