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Ulcerative Colitis
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Posted 6/23/2016 9:04 PM (GMT 0)
Really glad I found this forum, I have been reading a lot and has been very helpful.

I was diagnosed with ulcerative colitis about 4 weeks ago. I have been on 4 Lialda in the morning for the most part I do feel much better but still have ups and downs. Think the downs come from feeling better and maybe eating what I shouldn't.

Still have a little blood here and there guess that is going to be normal for awhile?
Posted 6/23/2016 9:20 PM (GMT 0)
Yup and welcome!
It takes time to heal and improvement isn't always a day to day thing, but an overall getting better. Glad to hear the Lialda is helping you, I find it works well for me.
Keep a food journal if you are worried about what foods make you feel better/worse.
Posted 6/23/2016 9:45 PM (GMT 0)
Thank you, I will as I am still figuring all of this out. Go from healthy 35 yo one week to pretty sick the next.
My dad diagnosed with crohn's when he was around my age .
Posted 6/23/2016 10:34 PM (GMT 0)
Welcome. If you've been reading this forum for a while then you already know what I'm going to recommend... Rectal medications. Ask for a rowasa enema from your gastroenterologist.

Aside from the occasional blood, how's your urgency, bm frequency and are things at all solid?
Posted 6/23/2016 10:38 PM (GMT 0)
yep, not so fast eddy smilewinkgrin it does take time, and you have plenty of that, cuz in many cases, UC is a life partner - unfortunately -

but that doesn't mean a life of pain and sorrow (women will do that to you) it just means you may have to do things differently from now on - could be worse -

my only advice is not to make too many changes at once - meds, diet, supplements, whatever - just go slow and keep it simple - simple works best for me !

good luck and welcome to the poopfest :-)
Posted 6/23/2016 10:59 PM (GMT 0)
ipoop- seems more urgent in the mornings. Mainly a lot of gas. Rest of the day has been pretty good over the last couple of weeks. Not solid but also not the other
Posted 6/23/2016 11:43 PM (GMT 0)
Welcome! This is a great support system and resource.
Posted 6/23/2016 11:49 PM (GMT 0)

fasteddy said...
ipoop- seems more urgent in the mornings. Mainly a lot of gas. Rest of the day has been pretty good over the last couple of weeks. Not solid but also not the other

Rowasa enema for sure then, it treats urgency at the source! Much like Eskimos have 50 words for different types of snow, so do we for poop. Fluffy/mushy poop with ragged edges is likely what you have, a type 6 on the bristol stool chart www.continence.org.au/pages/bristol-stool-chart.html

You've healed a lot. Having increased gas and semi solid bms is a great sign of progress. Urgency and blood are often the very last symptoms to go away.

Remission is what treatment aims for, a total absence of uc symptoms. It gives you the longest periods of being symptom free, and the least likelihood of flares. I'm in remission now, 1 normal bm a day without urgency. And that's what your normal should be, no urgency and just a couple bms a day.
Posted 6/24/2016 12:12 AM (GMT 0)
Yep agree on adding Rowasa to the mix. UC starts at the bottom so it is the last to heal and will be the first to flare in the future. Keep the bottom happy with the rectals and you will be in a better condition. Also trying some fiber such as Metamucil (do it slowly) can also be helpful as well as a good probiotic. Welcome to the forum!!
B
Posted 6/24/2016 1:01 AM (GMT 0)
On Rowasa enema do you take that with your normal meds? How often do you do it? Something that would leak? Make sense that it would work.

Thanks again.
Posted 6/24/2016 1:32 AM (GMT 0)
Taken at night before retiring. Doesn't leak out. Can make your first morning bm a bit more loose.
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