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Is this level of fatigue normal?

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Ulcerative Colitis
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Posted 6/30/2016 7:25 PM (GMT 0)
Howdy. I have been out for the hospital now for 9 days. Pancolitis dignosis- moderate. I go back to work on Tuesday but i am so tired. Having a hard time napping. I am on 40 mg prednisone and Lialada. Body is also really tired. Noticing leg aches and kind of a soar throat. I just don't seem to be bouncing back like i thought would happen although I have never been this ill with UC before.

What are your experiences?
Posted 6/30/2016 7:50 PM (GMT 0)
When I was in a flare, I was taking 5 medications to get it under control. I was very tired and had body aches. Once my flare was under control and I was down to 2 medications, I felt I had more energy.
Posted 6/30/2016 8:02 PM (GMT 0)
Normal for a flare. Not normal for remission. 40 mgs of prednisone is going to give you insomnia and you might have multiple nocturnal poops, so then tired is normal.
Posted 7/1/2016 12:46 AM (GMT 0)
I've always had to get a sleep aid when I was on prednisone. Without it, I wouldn't have slept a wink. I am always tired regardless, but I do recommend you ask your GI if you're having a really tough time sleeping. I hate to say to take more drugs, and in most cases, I would say try exercise (which is also VERY helpful), but pred and sleep do not go together.
Posted 7/1/2016 4:02 AM (GMT 0)
Thanks. I do take trazadone for sleep helps a bit but still exhausted. Ii am dead dog tired , body is exhausted . I thought prednisone was suppose to wake you up or does it just not let you sleep. Kind of like torture. Body hurts. hard to motivate which is not like me at all. To look at me it looks like I haven't slept in days.
Posted 7/1/2016 4:06 AM (GMT 0)
Do you have a copy of your last bloodwork which must have been done in hospital. Look and see if your hemoglobin is low (comparing it to previous bloodwork number) and if your Vitamin D hasn't been checked you might want to have that done to see if you need supplements.

Sleep aid sounds like a good idea, just don't overdo the dose or you'll feel groggy.

It's really hard to say what is causing sore throat and leg aches. Inflammation can appear in other parts of body but pred. should be keeping that down.
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