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Ulcerative Colitis
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Posted 8/5/2016 4:10 PM (GMT 0)
Thank you Poppie for thinking of me:

Very briefly; now in full blown nasty flare. Fall out from abx continues.
25+ explosive watery movements all night. Neg for cdiff.

Rectal pain...hurts so much to poop.

Trying to get a double dose of Ivig. My only hope at this point.

Starting Stelara in Sept.
Posted 8/5/2016 4:56 PM (GMT 0)
So sorry to hear of your continuing problems.

Have you been able to get the yeast infection cleared up?

I can't remember -- are you on prednisone and taking any probiotics? If not, I would want to definitely give them a try.

You are likely very sore from all that pooping, using a baby cream or ointment after every bathroom trip can help sooth that area enormously.

Will be interested in hearing about Stelara when you try it, but hoping you get some relief before then.
Posted 8/5/2016 6:03 PM (GMT 0)
If it were me I would definitely be taking probiotics to replace what the anti-b's killed off. Have you ever tried VSL#3? Not every probiotic agrees with an individual gut so try one and see if it creates any improvement, it is not a miracle-overnight but VSL#3 really did help me when flaring badly.

And having that many BM's I'd be taking over the counter Immodium or a similar RX. You aren't in danger of megacolon with those symptoms. Also Dicyclomine 20 mg( cheap RX) can help stop the spasms. I can also recommend Benadryl if you will not be driving (makes you a bit drowsy).

Good luck.
Posted 8/5/2016 6:04 PM (GMT 0)
Yes. Yeast is gone....but replaced by horrific d.

Blood bank only allowing 1 Ivig infusion:(

I can't take roids. Using florostor. VSL is unaffordable.

Why Benydryl?

Post Edited (U B Tough) : 8/5/2016 12:17:54 PM (GMT-6)

Posted 8/5/2016 6:40 PM (GMT 0)
I dunno what Benadryl will do, never heard of using it but definitely Immodium to slow things down. And of course, stay hydrated, dehydration will land you back at the hospital for sure.

Sorry you're having to go through all this and wait until Sept to start Stelara. 😟 Hang in, you'll beat this.
Posted 8/5/2016 8:29 PM (GMT 0)
Good to hear that you don't have C Diff. Hopefully, you will get some let up. Not sure if I have mentioned Kefir, I can't remember, but Milk Kefir is an amazing probiotic if you can take dairy, as it is very beneficial with up to 50 different strains of good bacteria. Water kefir is good too, but it only has around 10 different strains, but still good if you cant take dairy.

Maybe someone can help you out and make some for you?

verucasalt..yes I will keep you posted. :-)
Posted 8/5/2016 8:50 PM (GMT 0)
verucasalt..sorry I have posted on the wrong thread here..it's the Pred you know!!!
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