IBS instead of IBD?

I was diagnosed with ulcerative colitis in January/16, after a colonoscopy/endoscopy. I had biopsies done, which helped make the diagnosis concrete. I was put on 4g of Pentasa and 40mg of Omeprazole. It hadn't done much for me, before getting an Rx for prednisone, which helped despite all of the side effects. Now that I'm off of it, I've been feeling much worse and have been in and out of the hospital I had a scope again in late July while in the hospital and on Entocort, and the scope was good, better than the one in January. I've also been on a salofalk enema, but found the cortifoam enema to be much better.

I recently switched to an adult specialist, and my peds specialist didn't send in all of my in all of my charts and information from all of my scopes and bloodwork. So, my new specialist is wondering if the other one misdiagnosed me with UC and I have IBS instead. I didn't think it was possible for the disease to show up at the microscopic level, but then have it actually be IBS. My peds doctor also said that I probably have UC and IBS, so my question is, do I still have UC and IBS? Or is it possible for it to be misdiagnosed at UC and be IBS?

She has taken me off of all of my meds except for the Omeprazole, so she can do a scope when I am on no medication and see how it is then. I'm a bit confused as how the original diagnosis could be wrong if there was a biopsy done.

(Sorry if I missed any info, thanks for any replies!)

I doubt your original GI misdiagnosed you if you had biopsies done. If your 2nd GI did not see the biopsy report perhaps she is doubting if inflammation was microscopic level. Once you have UC it does not go away but if the c-scope was ambivalent as to the cause of inflammation it may not be clear cut. My c-scope report hedged by saying "consistent with ulcerative colitis".

I asked my GI recently if I have IBS in addition to UC and his opinion was that my symptoms were UC-related. But since oral RX meds don't help my symptoms it is really irrelevant (to me).Rectal meds do stop bleeding but not eating foods that cause bleeding, gas, etc help even more. I control my symptoms and inflammation with diet modification which many IBS people do too.

Doctors need to decide if it's UC or IBS because they can treat UC with RX meds. IBS not so much.

Ask for copies of every test you have done, especially colonoscopies and keep them for yourself so you can read them and ask questions. There should be photos too (at least US reports have them--in color).

Best of luck with figuring it out. If food affects you start keeping a food journal to find out what to avoid. If food has no effect then finding the right RX will be your answer. Sounds simple huh? No but that's what needs to be done and you are the person in charge of your health with assistance from a knowledgeable GI.

Agreed. Unlikely misdiagnosed.
Do a fecal calprotectin or inflammatory test.
I don't think it's responsible of your doc to get off all meds just to be able to scope. This doc should really try harder to get your biopsies before doing this.

Also, entocort is released in the small bowel and proximal colon. Shouldn't be used for ulcerative colitis. Uceris is the same drug but colonic release.
I question the judgement of your medical team. Are they inflammatory bowel disease specialists?

Where do you live?