SCD for 3 months, Just Had Blood

Yes, I'm on both 6mp and Remicade simultaneously but there's no side effects and nothing at all crazy about it lol. I had a good 2.5 year remission with 1 bm a day. Now going through a minor flare as i eliminated all meds but remicade. Now tapering pred after re-adding 6mp.

https://authoritynutrition.com/resistant-starch-101/

Read this and nearly every comment down below was negative as far as their experiences with adding resistant starch.


I had my colonoscopy today. There was mild inflammation in the transverse colon, descending colon, and rectum. She wants to switch my asacol to Lialda (I told her I noticed no difference at all switching on to and off of the asacol recently). If that doesn't work she wants me back on Uceris and if that doesn't work (it worked a little but not completely last time) she wants me on 6-MP.

I'll probably stick to generally SCD foods but I'm not sure. This week I tried SCD yogurt on Monday but messed it up in cooking it and have been having 5-6's all week since then. Maybe real SCD would help but that was a fail lol.

MyUCandMe said...
David1991

Wondering how you are doing almost a year later. Hoping the diet has helped you.

I've done reasonably well. I went off the SCD, I don't recall exactly when, but was generally fine. Things got a little worse recently actually and I was starting to flare so I went back to SCD and it seemed to help. Not perfect but my gas went down greatly (that was why I started it, I was having the worst gas of my life) and no pain or bleeding.

I just recently went off again and started having issues so I'm going back on it for the most part now.

I don't think it's a cure for everyone but it *seems* to help me get out of a flare if it hasn't progressed too much. My recent CRP was 0.2 so that's good.


Happy to answer any other questions

MyUCandMe said...
Thanks! I was wondering if you had stuck with SCD. With UC it takes about 2 years minimum on strict SCD to have the gut fully heal. Many of the folks in my support group on FB are on SCD in complete remission and were able to get off meds. Others are still on meds to help.

There's a 3, 6, and 12 month flare with SCD. I'm entering my 3rd month in October (I had gone on it, got off, went back to it). I plan to stick with it most likely forever, but at least for a few years. If it's working then and I can retain remission, I'll stick to it.

I love the food on the diet. I figured I'd ask how you were because I love success stories (of any variety). I, too, started with proctitis. It worsened to severe extensive (basically half the colon), though the doctor writes pancolitis on my paperwork...

Man, 3 years on strict SCD with no cheating is intense. My big hold up is how much it limits certain experiences. My girlfriend and I are both very health conscious but we're also huge foodies. 95% of our meals at home are healthy and SCD is no issue there, but when it comes to vacations, holidays, outings, etc we definitely very much like to enjoy our "cheats" and SCD isn't conducive to that at all. I'm aware there are great foods on the SCD but it's not at all the same for those special events.

In any case, health comes first and today I had 3 bowel movements with bright red blood :\ so even though I've only been off the SCD for a week I guess I'll be going back to it for the time being.

Do you just stick to the "legal" foods or have you taken it a step further and eliminated some common problematic foods? At one point I was doing SCD with no honey, fruit, peanut butter, eggs,or cheese and man that eliminates SO many food options but those are all foods people mention as potential issues so I wanted to start off with none of them but it was very hard to get adequate calories. Right now I'm just doing regular SCD which allow those and it's much better as I have a lot of cheese on my meats and veggies and then I'll have fruit+peanut butter+honey