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Probiotics and UP

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Ulcerative Colitis
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Posted 11/21/2016 3:52 AM (GMT 0)
Hi!

I was diagnosed with ulcerative proctitis in May 2015. I am doing OK modifying my diet and taking 1000mg Canasa 1xday and Visbiome, Mutaflor and Culturelle. I take the Visbiome and Mutaflor at their study dose for UC. (The dosage in published studies that said these 2 drugs helped maintain remission for UC.)

I have a question that my GI wasn't able to answer. (She doesn't believe in probiotics really. "Just take anything on sale at the drugstore.") So I thought I would mine the collective wisdom of the group:

Since my inflammation is so close to the exit, do I need to increase my dose of probiotics to get the CFUs where they need to go?

Conversely, since my inflammation is localized and perhaps compartively small, would a lower dose be acceptable?

These questions might stem from my ignorance about how probiotics populate the mucosal tissue in the colon.

Any insights would be much appreciated!
Posted 11/21/2016 6:30 AM (GMT 0)
Hey maddysmom - a few years back after a terrible bout with bronchitis/sinusitis that resulted in being on antibiotics for 8 weeks - my gut was a mess. My GI was furious that the allergist had done that - anyway, he told me to start taking Align probiotic once a day. It's a bit more costly, but he believed it was the best on the market and had a strain of probiotics that was good.

Have to admit that within 3 days, my stomach was feeling much better (had been queasy/nauseous/pain from the anitbiotics) The cheaper stuff didn't help at all - the Align did the trick

In any event, I've been on it since. While I'm flaring right now - I've had lengths of time where I was in remission (10 months - 15 months at a time - and for the most part the flares have been mild)

Hope that helps
Posted 11/21/2016 1:07 PM (GMT 0)
For me probiotics don't necessarily keep me in remission but I think they are very good for us and will take them forever. Lol.

I took VSL ds for 4 years. 2-3 packets a day depending on abx or flare. I ALWAYS add florastor in addition with abx as well. For me The 2-3 packets never made a difference. Other people are different tho. As you saw in my VSL thread I'm about to go to a lower dosage in visbiome. From 2 900 billion packets a day to 1 450 billion packet. Hoping it doesn't change anything but can keep you posted.

Also my latest flare was down low at my rectum/sigmoid. Just a 10 cm patch.
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