Posted 12/3/2016 5:10 PM (GMT 0)
So you're only on remicade and pred and nothing else?
You could try reintroduction lialda, sulfate-free rowasa (if you had trouble before with the regular stuff), a canasa suppository, or immunomodulators like 6mp or imuran. There's lots to try.
That's a fast taper, you're at the point where the pred isn't actually healing you anymore, rather just keeping things stable. It's usially right around the 10mgs mark that things get dramatically worse. Don't blindly follow your taper schedule if things continue to degrade as you drop. Rather go back to your last safe dose, stop lowering, and call your gasteroenterologist.
Mucus and blood mean you're still flaring and the current treatment plan isn't working.
Some don't respond quick to pred, especially if the initial dose is too low for their inflammation. As an example, I was at 2 weeks at 40 mgs until I saw much of a response during a real bad flare. Some don't respond to steroids at all (minority).