What is going on? Troubleshooting needed

will do a quick recap
February 2016- anemic despite iron supplements, had infusions
April 2016- symptoms (blood, pain) persisted, dietician recommended checking out small bowel due to nutritional deficiencies and anemia
May- June 2016 had imaging that showed small bowel inflammation
frequency of bowel movements, blood and pain increased
August 2016 started 9 mg entocort
September 2016 increased to 15 mg of entocort
October 2016 symptoms increased to multiple completely liquid stools/day, increased nausea
had extra remicade doses at 4 weeks apart which helped with pain and # of BMs, blood slowed dramatically
End of November nausea increased drastically and stopped eating/drinking
sister sent me to ED for fluids due to dehydration, was relseased and the next night was worse this time called IBD office and fellow on call told me to come in so I went to that ED and was admitted, had normal upper endoscopy and colonoscopy that didnt look too bad. I insisted on being discharged after a couple days (hate the hospital with a passion)

Im still super nauseated despite taking lots of zofran,
trying ginger/peppermint/preggie pops/ lemon etc but still really having trouble with eating/drinking
have dropped just over 10 lbs in a month
also in october started getting mild fevers but considerably elevated from my baseline in the evenings that are accompanied with chills


my labs were normal except for anion gap, elevated protien (assuming due to dehydration), low calcium/potassium
liver and pancreas enzymes were within normal limits

any tips? what is going on? so confused


Thanks Y'all

So you had a normal upper endoscopy and colonoscopy but are still nauseated, have a fever, and reduced appetite? Is the diarrhea and other IBD symptoms now gone?

Hey,

Thanks for your responses
imagardner: undetected infection- possibly but WBCs were normal-low, could be masked by azathioprine causing lower WBC counts
def not C. diff cuz some BMs are formed
Dont live where lyme disease is prevalent but always possible

ipoop:still having 4-6 BMs/day but they usually have some form to them
the scope showed no active inflammation but the mucosa was not normal (altered vascular pattern, discoloration, pseudopolyps...)

soynomore: could be the infliximab but those side effects are not too common
actually, my doc just told me to hold my imuran for a week to see if that helps, seems nausea/loss of appetite are more common with that

argh...this nausea is crippling
so confused and lost

Dikid-- I'm so sorry you are having such trouble. Nausea is so debilitating. Have you tried MJ? You're brain is almost finished developing so you should be ok for it.

10lbs is a lot. Are you able to keep anything down? Drink broth etc?

As far as fevers; I think they can be associated with crohns but am unsure. Just remember my dad having high fevers with his severe tummy pain and constipation.

I hope you are feeling a bit better today.

Sorry to hear your not doing great. 10 lbs is a lot to lose in a month. I also tend to think it could be the Meds, and so maybe dropping Imuran for a while will give you some answers.