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Am I "Steroid Resistant"?

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Ulcerative Colitis
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Posted 1/28/2017 10:44 PM (GMT 0)
Hey guys, I'm in my worst flare since diagnosis and I'm on Prednisone since this past Monday (Uceris wasn't working). I also put myself on a liquid diet.

Thing is, it used to make me speed like nothing else. And retain water. This time around I'm not getting much side effects--my heartbeat barely quickens, no burst of energy, no "emotional chaos", and no water retention (my wedding rings are way loose).

Am I steroid resistant? Or is it because the Prednisone I'm taking is a couple years old? 60mg a day is just taking the edge off, I'd like to take 80mg. That just seems crazy to me. When I was 24 and took Prednisone I would seriously go for a run every time I took it because I couldn't sit still.
Posted 1/28/2017 10:56 PM (GMT 0)
Steroid refractory is the term you're looking for.

You've been taking it for less than a week and it could possibly just need more time. And yes it is possible that the medication could be expired and have lost its effectiveness. But I would recommend against putting yourself on Prednisone. You really should go to a doctor and get a new script from him and take the drug as he advises. You could have cdiff and steroids make things worse. Please go to a doctor.
Posted 1/28/2017 11:02 PM (GMT 0)
I am being treated by a GI doctor. He wanted me to start Prednisone and I told him I already had some and didn't need a script. I can ask for a new script Monday.

I don't have c-diff.

I agree I have to give them more time. But my reaction has been very atypical for me.
Posted 1/28/2017 11:17 PM (GMT 0)
I hate to rain on your parade but I really don't think there is such a thing as "typical" with this disease. My first flare disappeared after a week on Prednisone and when my second flare came I was sure Pred would do the trick again. Well that was 2 years ago and I am still flaring. Steroids do nothing for me anymore other than make me want to stand in front of an oncoming train. Good luck to you. I hope everything works out.
Posted 1/28/2017 11:28 PM (GMT 0)
I'm sorry to hear the steroids don't work for you. But that feeling you mentioned of wanting to stand in front of a train--that was what I was expecting because that is my typical reaction to Prednisone. It's baffling that I feel so "normal", but it's definitely helping--the more I take the more my symptoms improve.
Posted 1/29/2017 1:33 PM (GMT 0)
Get a stool test to check for infectious causes to your symptoms (suspicious if you're not responding to pred).

Prednisone took 2-3 weeks to work for me duing my worst flare.

IV steroids are sometimes need (hospital in-patient) or an alternative would by cyclosporine (immunomodulator that's always hospital in-patient).
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