Miracle for me: I want to raise awareness in at home (via enema) FMT for the treatment of UC

Hi all,

The point of my post is to raise awareness in at home (via enema) FMT for the treatment of Ulcerative Colitis. It has been a miracle for me.

I was diagnosed with ulcerative colitis about a year and a half ago. It was well controlled with Lialda, but still significantly impacted my life. This past March I had what I thought was my second big flare, but this time I also contracted c-diff. (superbug bacteria that UC patients are more prone to get).

Long story short, C-Diff is miserable. I was prescribed vancomycin for 14 days and started to get better but still hadnt kicked the bug. This is when one of my doctors mentioned FMT as a possible treatment if I failed my second round of antibiotics. It has a 90%ish cure rate but only FDA approved for C-Diff after two failed rounds of antibiotics. I started looking at the specifics of FMT, how it is administered ect. Turns out there isnt much to it; its just a matter of getting someone elses poop into your colon. Some doctors do it via colonoscopy but the data is pretty similar for enema ect.

It turns out that the data for FMT as a treatment for UC is extremely positive and extremely low risk (assuming you have a healthy donor). My thinking was that I could cure my C-Diff and potentially really help my UC at the same time. Kill two birds with one stone. I did a ton of research, met with a FMT expert who acted as my consultant to do this at home (since I hadnt yet failed my second round of antibiotics, and docs cant legally treat UC with FMT yet) and also picked the brain of another Cedars Sinai doctor that is doing the research on FMT/UC behind the scenes. Side note: I also recommend youtube and www.thepowerofpoop.com to get your technique down.

My wife (healthy, no antiobiotics, not overweight) was my donor. We did FMT daily (at home enemas) for 7 days. I felt a rush of energy each time (wasnt expecting that) and did my best to retain the enema for 6 hours. The longer the better, but it depends on the extent of your inflammation. It will be harder to retain if you are very inflamed. We took a break for a few days and then did another 7 days. At the end of this I was clearly cured of C-Diff (we expected that based of the data) and it had also put my UC into full remission. I ate pizza and drank beer for the first time in two years. (not making that a habit....im back to organic and a paleo-ish diet). I have had more energy and this treatment has given me so much hope; almost to the point where I want to dedicate my life to raising awareness about this treatment. (So many of us cant afford standard treatment, so many of us arent getting the results we want from standard treatment)

Back to FMT...The protocol based on my conversations with doctors involved in research was to blast my colon with FMT the first couple weeks. Once your gut biome/bacteria is replaced the frequency of the at home FMT enemas would be decreased to doing it weekly.

From my conversations with my doctors, weekly FMT can soon replace my other maintenance drugs (Lialda ect).

I want to reach out to anyone that is feeling awful with their UC. Do your research. Find a donor. Dont be squeamish about poop. Try this treatment. Its been an absolute miracle for me. C-Diff was a blessing because it led me down this road where I learned about FMT and how much my UC was related to an imbalance in my gut bacteria. There is hope!!