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Using LDN, cabbage/carrot juice - anyone used chlorine dioxide

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Ulcerative Colitis
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Posted 7/11/2017 12:20 PM (GMT 0)
Hi Guys,

Been a while since I put a post up.

Before I start - I am very grateful to all the contributors to this forum, you guys have helped me through some very dark times with my UC so a big THANK YOU to you all.

Background;

Im 35, male, live in the UK, have UC, severe osteoporosis and been researching this subject deeply for the last 2years+.

At my worst I had 14 BM a day, lost 2 stones in weight in 6 weeks (I'm already thin but I looked like a dying skeleton). I have a super fast metabolism and am a smoker (restarted as I found it helped tame my UC - yes i know its bad for me).

I went from GI to GI to natropath etc nothing worked. I stumbled across a few things that seem to work for my very very stubborn UC so I thought I would share. One of them is new thus I would love some feedback from members too.

I found a Natropath who was trained in Germany, he pointed out the UC varies from person to person, the protocol stays the same, only components change etc

He managed to stop my flare of 4.5 months in 9 days, using LDN, vitamin mega doses and a ton of natural anti inflammatory.

I was in remission for a further 5 months, quit smocking again then I took MCT oil for a few weeks to sharpen my brain and bang I was hit with a nasty flare!!

Currently;

This time he added cabbage/carrot juice and increased LDN dose, flare became under control in a few weeks.

The new thing I'm trying is CDS/MMS as I am still getting a lot of noise from the colon and stomach at night.

Weirdly enough red meat works perfectly with me whilst veg causes problems.

Anyone with experience with CDS/MMS. Also anyone using LDN?

Is the noise from the colon and stomach at night normal in UC?
Posted 7/12/2017 5:00 PM (GMT 0)
MMS/chlorine dioxide is a very powerful oxidant, in the past I did the protocol.
Nasty stuff burns on the way out, did nothing for my UC.
I can't recommend, dangerous stuff.

Old Mike
Posted 7/12/2017 5:08 PM (GMT 0)
Thanks Old Mike,

I'm really grateful you commented as I noticed on many threads you seem to have tried everything over the years and well read.

What has worked for you, I noticed you have tried LDN in the past too, how did that go?

I noticed on your signature you still smoke (I restarted), has that helped you much?

I read something a while ago on biofilm theory and UC , is this something you have researched too?
Posted 7/12/2017 5:25 PM (GMT 0)
Deen: No I never tried LDN,I might have an old thread on what works like LDN.
Quick backround.
Quit smoking 1977, proctitis 1980, azulfadine and rectal cortenema, almost into remission.
After 2 years got tired of old fart proctologist sticking a rigid scope up my butt once a month.
Quit meds, started smoking again this is 1982, also lots of zinc.
Went into remission.
Quit smoking again 1986, went into flare, I am still in the same flare, even with smoking.
Nothing seems to do much for me, selenium seems to do something that makes less D,
and much more solid almost normal stools.

Yes I most likely have a old biofilm thread. Most likely why antibiotics may not do much
for UC, they cant penetrate or eradicate the mucosal biofilm. MMS might but again never
did anything for me but burn on the way out.

I am a big believer in stopping oxidation,increasing mucus,reducing protease.
Not that I have been able to cure myself.
I might even have had agent orange exposure, but UC is not a listed agent orange disease as far
as I can find.
Old Mike

Post Edited (Old Mike) : 7/12/2017 12:02:51 PM (GMT-6)

Posted 7/12/2017 8:27 PM (GMT 0)
Wow that must be horrific.

When you mentioned you are flaring am I right in thinking that you have been bleeding daily since 1986?
Posted 7/12/2017 9:45 PM (GMT 0)
That would be correct,and I am still alive. Go figure.
I think I read somewhere, that smoking tends to stop, progression to proximal disease.
Old Mike
Posted 7/12/2017 11:10 PM (GMT 0)
I'm speachless... (I'm assuming that you haven't tried any of the medicines that most posters talk about anytime in the last decade or so).

I appreciate UC is different person to person but Why not try LDN, cabbage juicers and turmeric. Might be worth an experiment?

I have a lot of respect for you as the suffering must be unimaginable plus the frustration of other things not working over the years.

I read that long flare periods make UC patients highly susspectable to cancer of the colon.
Posted 7/12/2017 11:45 PM (GMT 0)
Alternatives, you name it,except for LDN have tried, many supplements/diets/probiotics.

I stay away from doc's except for stuff they can actually fix.
Been researching UC since 1980, pretty much before there was a lot on the internet.
Believe it or not had to read books, on the subject.

Dont worry about me suffering,I get by.
Old Mike
Posted 7/13/2017 12:22 AM (GMT 0)
book you say ? what's that ?
Posted 7/13/2017 5:41 AM (GMT 0)
Deen, I am currently juicing ginger, fresh turmeric root, and cucumber and emulsifying it with a tablespoon of coconut oil or grass-fed ghee and some black pepper. I drink this down.

I then juice red cabbage, celery, watermelon, pineapple, sweet potato, apple and orange.

Doing so coincides with a bad flare I had after stopping budesonide.

I am going two or three times a day.
Posted 7/13/2017 11:44 AM (GMT 0)
@ Old Mike - Sorry to hear about it. I read once that hypoxia is the route cause of many autoimmune diseases, are you familiar with that?

@TroubleTurds - LOL, so true!

@JerseyGuy1 - Do let me know how you get on, I currently juice x2 a day and it seems to be having a positive effect smile
Posted 7/13/2017 12:45 PM (GMT 0)

Old Mike said...
I am a big believer in stopping oxidation,increasing mucus,reducing protease.
Not that I have been able to cure myself.

Old Mike, are there any archived threads here that I can search for where you expand on this theory? one of my primary symptoms is a lot of mucus, and as such, I have often wondered if this is a sign that my immune system is protecting me from some pathogen by producing a lot of it.

I haven't had that symptom though in several weeks now, but I am taking too many meds and supplements to assign any congratulatory accolades to any specific one. Throwing the whole kitchen at it presently....I'd love to read more about your thoughts though.
Posted 7/13/2017 12:48 PM (GMT 0)
Worth mentioning the naturopath I know believes colitis is caused by a micro bacterial infection, I have also read that this ties in with the leaky gut theory too.
Posted 7/13/2017 12:59 PM (GMT 0)
@ Deen

These theories are really interesting to me. My initial case of colitis was precipitated by what I believed was a horrendous case of food poisoning. I believe that my micro biome bounced back because after only a month of cortenemas I was in remission for 8 years.

Fast forward to now, after an insanely stressful couple of years it came out of remission. This *might have been* because stress destroyed my balance and the bad guys have once again taken over.

I am not at all sure about any of this, but my primary mission right now is to replenish the good guys (and I have no idea WHICH brand(s) of probiotics will do this, so I have been rotating) and I have also been taking my 5-asas. Lots of anti-inflammatory foods and also prebiotics.

I am actually beginning to feel a shift. I believe my "balance" is swinging back into the normal range maybe? my symptoms have really diminished despite seeing a tiny amount of blood yesterday--- and that I believe can be attributed to bad judgement having a big bowl of vegetarian 15 bean soup rolleyes

Maybe some of us DO have an imbalance at the root and it can be of varying degrees? that's why remission can be reached for some and it's harder for others? maybe the invading gram negative bacterias create a different degree of symptoms?

I am so clueless.....but I'll never give up trying new things and hoping for a permanent solution.

These days I have even added extra spinach, sunflower butter & ginger tea.....I have a head of cabbage in the fridge, too, LOL.....call me crazy, but at least these things have redeeming value no matter what!
Posted 7/14/2017 2:06 AM (GMT 0)
I don't think you are clueless at all. I'd say what you are doing seems to be working.

To Old Mike...MarjieKay beat me to it. I read exactly the comment she highlighted just before bed last night. I'd like the same answers.

You've tried so many things over the years. I've read things from you from 2012 and 2013 and wondered, "What is Old Mike thinking today?"

When I saw your comment last night, I immediately wanted more.

Please share.
Posted 7/14/2017 1:36 PM (GMT 0)
Jerseyguy:
I have posted research on many possible IBD pathways, most go down a black hole.
Part of this is due to the mouse/rat models the research people are using.
You will find in the research that even light dark cycles, or swimming can make the
induced IBD better than controls.

Another interesting thing about mouse models with wild type mice is that once,
inflammation is induced with say DSS, if you take the DSS away the mice get better,
we don't. So something else is going on with humans.

Diet, over the years on this site it seems that if people do a radical switch from, vegan to paleo,
they can improve, or meat eater to vegan they can improve.

Stuff to look into.
Epigenetics. Why both identical twins are not 100% concordant for IBD.
Why FMT works, at least in some.
Radical Induction Theory,REDOX cycles, protease inhibitors,autologous vaccination,
hygiene hypothesis.

After studying the literature on IBD for the past 37 years, I have no friggin idea.

Old Mike

Post Edited (Old Mike) : 7/14/2017 10:15:16 AM (GMT-6)

Posted 7/14/2017 1:42 PM (GMT 0)

Old Mike said...
Stuff to look into.
Epigenetics.
Why FMT works, at least in some.
Radical Induction Theory,REDOX cycles, protease inhibitors,autologous vaccination.

Thanks, I will.....although your final comment "After studying the literature on IBD for the past 37 years, I have no friggin idea." seems to summarize the last 18 months for me.
Posted 7/14/2017 2:19 PM (GMT 0)
@MarjieKay

You are defn on the right track.

My knowledge of IBD improved massively when I met my nautropath, he studies research and reads books on out of the box thinking treatments for fun, he has been doing this for the last 20years but he is not a IBD specialist despite helping/ curing many over the years. Here are some things that work with certain people. I must stress that UC is different from person to person so there is no magic bullet;

- Probiotics
- Detoxification of the blood and liver (inc chelating of heavy metals from the G.I.T)
- Natural anti inflammatory
- Boosting immune system
- Anti microbial/bacterial (e.g. coconut oil)
- LDN
- Vitamin & Mineral treatments
- Diet
- Juicing (jerseyguy1 has more knowledge than me on this)
- Avoid junk/processed food etc
- IV of vitamin C
- Fecal transplant
- Hypoxia
- Nerve damage and blood flow to organs
- Stress - one of his patients divorced his wife and since then he has never had a flare !!
- Stomach PH
- Pollution esp water contamination

Worth a mention that stomach PH is lowered by stress

@Old Mike, Thanks for the heads up I'll research into those and ask him too.
Posted 7/14/2017 3:05 PM (GMT 0)
Thanks for this list, Deen !

Many of these things have been on my radar to experiment to help tip the scales in my favor. I am pretty sure a specific situation that is creating some continual stress needs to be dealt with.

When anxious or stressed, I can feel it in my GI, so it doesn't surprise me to see it on this list.

Anything we can do to make things even a little bit better helps!
Posted 7/14/2017 4:09 PM (GMT 0)
@ MarjieKay

Knowledge is power.

Only a fool would put blind faith in the hands of a group of so called professionals who openly admit they don't know what causes UC, don't have the cure yet mock sufferers for trying to find a solution.

I forgot to add, Youtube these guys;

1. Dr Josh Axe
2. Dr John Bergman
3. Jini Patel Thompson
4. Dr Mercola

Also look into bone broth - that didnt work for me but its done wonders for others.
Posted 7/15/2017 8:29 PM (GMT 0)
Thanks, Deen...I will look into these fellas. The only one I don't recognize is Bergman...

Let me ask you this, when you started smoking again, did your symptoms disappear? I quit about 2 yrs before my diagnosis. Seems a stretch to tie them together due to so much passing time.
Posted 7/15/2017 8:36 PM (GMT 0)
Smoking did not stop my flare or cure me but what it did do was lower my bm and also reduced the quantity of blood. I read somewhere that 60% of colitis cases are ex smokers.

The other thing I read about smoking and IBD is that leaves a layer of Mucus or something like that in your colon thus acting like a plaster on the ulcer.

However smoking brings other problems too etc
Posted 7/26/2017 2:28 PM (GMT 0)
Hi guys,

A quick update - I have been taking 1 teaspoon of CDS in water x2 a day for the last 2 weeks ish and the colon and stomach noises have died down and almost gone.

I have also observed that cheap cooking oil like sunflower oil/vegetable oil (transfat I suspect) seems to be directly correlated with the stomach/colon noise.

I keep detailed daily diary of what I consume and when thus I can track this.
Posted 7/26/2017 3:53 PM (GMT 0)
This is an interesting thread for me (former smoker) as I never knew there was a correlation, nor research into whether or not nicotine would reduce/aid in lessening symptoms. I found this NIH article:

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2014383/

Onset of my symptoms was 5 years after quitting smoking (2 years ago now). I'm very curious to see if nicotine patches in combination with my current protocol would be successful, given I cannot take steroids at all. So, thank you for the thought provoking thread.
Posted 7/26/2017 7:26 PM (GMT 0)
Hi Fos4snt,

Unfortunately it's not the nicotine as I was on patches before and still flared. I have looked into this and found the following;

1. Smoking creates a Mucus in the colon and stomach thus acting as a barrier.

2. There is evidence that the nitric acid in ciggerates helps with IBD

Hope that helps
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