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2ND Surgery consultation on Monday

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Ulcerative Colitis
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Posted 9/15/2017 9:47 PM (GMT 0)
Finally got off my butt and made consultation with another surgeon.This Surgeon in New York City[i live on Long Island].Going to Cornell to meet with Dr Parul Shukla. Hope all goes well.Really need to just do it even though I'm not in a bad flare.Think I'm just going to go with him unless something turns me off.Wish me good luck
Posted 9/15/2017 9:55 PM (GMT 0)
Best of luck!! make sure you have a list of written down questions so that you don't forget what to ask, and then let us all know how it went.
Posted 9/16/2017 12:13 PM (GMT 0)
Good luck! Keep us updated on your decision.
Posted 9/16/2017 7:13 PM (GMT 0)
From being on here so much i kind of know whats ahead of me if i have surgery.Im in good shape,not flareing so i hope to hear good things from Dr.Only thing i really want is my own room after surgery.Usually don't care who's in room with me.But i know wearing bag will be an adjustment so rather have some privacy and an 80" flat screen{just kidding-TV would be nice].Hope for the best
Posted 9/16/2017 7:49 PM (GMT 0)
I always had a private room and TV, but not too many channels unfortunately. I hope you get good news, it would be nice if you didn't need to have surgery, but i know you feel like it's coming at some point in the future, either now or later, so perhaps now is the best plan. You just have to realistic that after surgery you will use the bathroom more and deal with a host of issues you're not used to. I have a lot of noises when I go to the bathroom, it can be embarrassing, especially in public restrooms. I can avoid going in public restrooms often, but sometimes you feel like, you're in there, so you might as well, and it can be noisy. I use more TP than I used to, and I suffer if I eat spicy foods. I love spice too, so it's a bummer. The anal area can get upset pretty easily. I keep cream in my medicine cabinet. However, I don't take drugs. I don't go to doctors. I don't need monitoring. I don't spend money on those things. I don't avoid certain foods (aside from very hot peppers). I don't worry about flare ups. there are pros and cons for sure.
Posted 9/17/2017 4:33 AM (GMT 0)

notsosicklygirl said...
I always had a private room and TV, but not too many channels unfortunately. I hope you get good news, it would be nice if you didn't need to have surgery, but i know you feel like it's coming at some point in the future, either now or later, so perhaps now is the best plan. You just have to realistic that after surgery you will use the bathroom more and deal with a host of issues you're not used to. I have a lot of noises when I go to the bathroom, it can be embarrassing, especially in public restrooms. I can avoid going in public restrooms often, but sometimes you feel like, you're in there, so you might as well, and it can be noisy. I use more TP than I used to, and I suffer if I eat spicy foods. I love spice too, so it's a bummer. The anal area can get upset pretty easily. I keep cream in my medicine cabinet. However, I don't take drugs. I don't go to doctors. I don't need monitoring. I don't spend money on those things. I don't avoid certain foods (aside from very hot peppers). I don't worry about flare ups. there are pros and cons for sure.

I'm pretty much the same as NSSG but I need to take medicine for chronic pouchitis. It's not that bad and is more manageable than UC.

At NYP Cornell CR surgery you'll get the top floor of the hospital if there is space available. They are all private rooms but if you get a room on the East side of the 14th then you'll get to see all the boats going up the East River. It's a great view. You'll spend a lot of time sleeping and recovering. I swear that my uncle came by to visit for a 2nd time just to watch the tug boats.

Dr. Shukla was a very nice guy. More friendly than my surgeon.

The hospital is great.
Posted 9/17/2017 3:52 PM (GMT 0)
NSSG,the main reasons i HAVE to have surgery of course is my chances for cancer.I have had UC since 1985 so like my Gastro has said every 10 yrs u have it it increase your chances of cancer.So thats 1 reason.The 2nd is what happened to Glen Frye of The Eagles.He had pnuemonia and UC.Now u know they have to give u Antibiotics to kill the pnuemonia.Thats dangerous to us with UC.In 2008 i got pnuemonia in both lungs,ended up in hospital for 7 days being pumped with IV antibiotics which destroyed my colon.I had BIG D for 7 months until 6mp and bunch of other meds kicked in.It was a terrible time in my life and i don't want to go thru it again.So at 58yo do i wait and hope and pray that i never need anti biotics ever again?? don't think i should take that chance.Glen Frye took that chance and he is dead.I also don't have a spleen which helps your immune system.Do i really want to go thru 2 surgeries/wearing a bag etc etc et?c-NO I DONT. Do i want to live a long life???YES I DO-So surgery is prob good idea in my case
Posted 9/17/2017 7:04 PM (GMT 0)
Yes, it is a good choice in your situation. I doubt you will be too shocked by the changes your experience, considering we are pretty well-versed with using toilets everywhere and anywhere, rushing, and making horrible noises and odors... Compared to some of the stuff I experienced while flaring, this is not so much to get excited over. If I think back to when I had never used a public toilet to do #2 (preUC), it's all pretty disturbing to imagine. Now I complain about slathering a drop of cream on my butthole. With UC, I was inserting full bottles of enema in my butt, using supps, cream on the outside, getting my butthole inspected by GIs, getting infusions, taking drugs, getting frequent blood draws. I feel kind of silly complaining about using a drop of cream on my anus... but I didn't want to say I don't use anything for maintenance.
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