I was diagnosed with UC (15cm inflammation starting at rectum) in late September after a few months of symptoms (my symptoms were mainly urgency, bowel frequency was just 1 or 2 above the norm, and when there was blood it was always just a drop or so worth). My doctor prescribed me asacol 4g enemas, and they seemed to work instantly. Mentally this helped a lot, as I felt my case was by all accounts mild and easily treated, but it looks like that's not really the case.
After 10 days of using the enemas, I developed chest pain. After the chest pain did not go away after a week I stopped using the enemas as I read that in very rare cases mesamaline can cause inflammation of the heart or sac around it. The pain continued, and fearing it was cardiac related, I went to the ER. My blood tests, chest xray, ECG and chest CT did not show anything out of the norm and I was discharged and told to follow up with a cardiologist if it continued.
Shortly after this, a venous malformation I have in my face next to my ear that is invisible unless I bend my head forward for awhile and let it fill with blood, has began to swell randomly and cause considerable pain. This had never happened before my UC diagnosis, and I am planning to see an ENT about
it.
My chest pain continued, so I saw a cardiologist who basically said my CT scan seemed fine, but it could be peritonitis and scheduled me in for an echocardiogram for early November. The doctor also prescribed me ibuprofen to take for a week. I know ibuprofen is supposed to be terrible for UC, but I was desperate to get rid of the chest pain and the mental toll it's taking on me. I have now taken close to the max dose of ibuprofen for 5 days now and have not had an increase in my UC symptoms or a decrease in my chest pain.
To add to all this I feel the vision in one of my eyes has suddenly gotten blurry and I'm finding it difficult to cope with all this. I would rather have severe intestinal issues than deal with these extra symptoms. I have been off UC meds for 10 days now (doctor agreed to put treatment on hold until the chest pains are figured out) and while I'm only going 1-2 times a day with no urgency, blood or mucus I'm terrified that my colon is silently becoming more and more inflamed while I'm trying to figure these others things out.
Is the rest of my life just going to be dedicated to endlessly treating endless symptoms? Things truly seem hopeless right now.
edit: forgot to add, the inside of my mouth/gums get random patches that have a bloody taste to them that come and go
Post Edited (mRow6) : 10/22/2017 3:23:16 AM (GMT-6)