HealingWell
Search Close Search
☰

left side burning pain/weaning prednisone

Support Forums
>
Ulcerative Colitis
✚ New Topic ✚ Reply
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted 11/6/2017 4:40 PM (GMT 0)
Hi All

so I dropped to 15mg prednisone from 20 last Thursday. This weekend I had my usual psycho mood and crampiness that I experience after each drop. Yesterday my intestines were singing loud noises and I have had increased gas that i am able to pass. This morning my Bm seems to be firming up, but like a pile of thick ribbon no blood or mucous present ( I use nightly Rowasa so its never real firm). The problem is that I have left sided burning after the Bm. I took tylenol and I am going to speak to my doctor today regarding the prednisone wean. The burning pain hurts!
My flare started out of nowhere in September... was feeling great.. had a few glasses of wine and next day had urgency/diarrhea at the mall. I did not have this pain prior to the flare. Its on the left side(where my inflammation was 50-70cm/above the sigmoid/ my first 40cm are all healed with normal biopsies per the sigmoidscope a 5 weeks ago. I think I may remember this pain on my lower side when I was healing with the Rowasa enemas last spring. I don't have diarrhea but the pain hurts and the noises were loud off and on this weekend. What is this?? I am asking the doc about the pred dose.
Posted 11/6/2017 5:09 PM (GMT 0)
What you could do is alternate the taper...15, 20, 15, 20, 15, 20...15, 15, 15....

The ribbon stools denote rectal inflammation (assuming UC) , although you say no inflammation. Not classic healing process of UC.

Usually, as healing improves stool shape will change as inflammation becomes limited in the rectum.

Have you had stool sampling done?

q
Posted 11/6/2017 5:33 PM (GMT 0)
all stool cultures negative.
I do not have any rectal inflammation and I do not have urgency etc. Its as if its hurts to make stool. I know this is all weird because my inflammation was 50-70 and my doc said you could see where I was treated by the enemas as the first 40cm was normal/with normal biopsies ( I had past inflammation there 5-20cm). He still thinks its UC and not Crohns based on my previous scopes and how it looked in the beginning. I am going to ask to alternate the wean when I talk to him.
Posted 11/6/2017 5:58 PM (GMT 0)
Painful stools are common when you have severe rectal inflammation but have healed further up. Rectal inflammation is always the location with the very, very worst of our inflammation with an UC. As we heal higher up, our stool begins becoming more solid and larger. The rectum is still very unprepared for solid and bulky stool. As inflammation narrows the inside diameter of the rectum and leaves it raw and bleeding. When you pass solid, bulky stool through an badly inflamed rectum, it feels like you are pooping out broken glass or razor blades (painful to say the least). You could ask for a steroid suppository or enema top treat down low.
Posted 11/6/2017 6:11 PM (GMT 0)
my pain is on the upper left side and not down below. I do not have any rectal inflammation or pain. I use nightly enemas that work.
Posted 11/6/2017 7:58 PM (GMT 0)
So, it sounds like spasming. Your term of making stool may be misunderstool as having a bm.

Ribbon stools....do you have hemorrhoids?
You might have IBS with rectal sphincter contractions causing that.

Have you tried antispasmodics?

What i general do you eat....some foods can cause excessive gas and spasming from the gas.

UC healing doesn't happen in the process like yours even with rectal meds. But the fact the upper area hasn't had improvement is an issue and is painful.
I wonder if one can be on Uceris and tapering off pred?

What happens when you're taking probiotics, and what ones have you tried?

Have you tried fibre supplements?

q
Posted 11/6/2017 8:16 PM (GMT 0)
right the pain happens after I have a bm and its a burning sensation up near the splenic flexure and it hurts. Maybe it is spasming but I don't really like Bentyl because it makes me feel weird ( I do have it and should see if it stops the pain). I tried primadophilus reuteri a few weeks ago and ended up with pain and diarrhea from it (just like vsl3 and culturelle when I tried them). The doc told me to stop. I have not tried fiber supplements
. I guess I assumed spasming met cramps and this is more like a pain or burn. I have a feeling that last year the UC spread up the left side and I was only treating with Rowasa at the time which worked wonders. I added balsalazide later but only 2 pills twice a day. The doc thinks I wasn't having symptoms because the Rowasa was keeping the first 40cm in check and if the upper left side was mild then I didn't notice anything. I think it progressed to moderate so hence the diarrhea starting... that's why I am on prednisone and 9 balsalazide now in hopes to wean to just the 9 balsalazide. Honestly I never had more than 3-4 bms a day even during a flare . I am a very confusing case but its awful regardless.
✚ New Topic ✚ Reply