HealingWell
Search Close Search
☰

I thought Canasa was my “Wonder Drug”

Support Forums
>
Ulcerative Colitis
✚ New Topic ✚ Reply
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted 12/30/2017 1:44 AM (GMT 0)
I was diagnosed with UC last month. I was relieved to FINALLY have an answer and after a ONE DAY on Canasa, I saw a HUGE difference. I felt normal again. I could finally eat normally and live my life normally! well, as we all know, it’s STUPID expensive. After two weeks I went off of it. A couple of weeks later my symptoms came back with a vengeance. I still only have diarrhea 2-3 times a day (you know, anytime I eat) and it involves blood.

I finally refilled the Canasa prescription because it solves everything. A week in and today NO FOOD has stayed in my stomach. I’ve tried every supplement under the sun. I went to an acupuncturist for the first time today. I’m willing to try anything. I’m willing to accept any advice.

Currently taking:
1000 mg of Canasa at night
Vitamin C and D
Aloe Vera supplement
Krill Oil (read it had more Omega 3)
Turmeric
Probiotic*
Bosweilla

Help?!
*looking for a new probiotic
Posted 12/30/2017 2:03 AM (GMT 0)
you need more drugs and less of all the other stuff -

when can you talk to your doc ?
Posted 12/30/2017 2:30 AM (GMT 0)
I will call after the holidays. Symptoms just started back up.
Posted 12/30/2017 3:16 AM (GMT 0)
I didn't have any results either from acupuncturist for UC but she (Chinese Medicine Doctor) did help my bum knee when no MD could. I also took herbs she sold me, no help from them or cupping with smoke either. Yes I've tried a mighty lot of things in my time too.

I get my Canasa from Canada since my deductible is so high, yes stupid expensive in US.
I no longer need/use Canasa or mesalamine enemas since getting into remission through diet. My bleeding stopped when I figured out what was creating problems for me which may not be the same for you. Wheat and fiber in foods cause bleeding for me. Mesalamine enemas were very helpful stopping the bleeding and diet modification keeps me in remission.

Mesalamine enemas are stupid expensive too in US and not cheap in Canada but they worked for me and many others here. Give them a try.
Posted 12/30/2017 3:36 PM (GMT 0)
Do you know if you have UC limited to your rectum or does it go further? You might try swaping out canasa for mesalamine retention-enemas which are 4.0 grams (instead of canasa's 1.0 grams) rowasa/pentasa/salofalk enemas. Adding an oral mesalamine might help as well (balsalazide disodium is affordable).
Posted 12/30/2017 7:52 PM (GMT 0)
I agree that more rectals are probably a good idea Some of us use these meds 2x daily. They can be expensive, but it's cheaper than a lot of the other drugs that become necessary if you continue to have aggressive inflammation. I used to order generic supps from canada when I was uninsured.
✚ New Topic ✚ Reply