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Ulcerative Colitis
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Posted 1/26/2018 9:36 PM (GMT 0)
Hi! I'm new to this forum. I am 22 and was diagnosed with UC (proctitis) this January 2018 after having a flare up of bad symptoms (urgency, cramping, blood, mucus, weight and appetite loss, etc.) for the 6 months prior. Turns out I also had a parasite (Giarda) on top of the UC :/. I had a colonoscopy with a biopsy and am now taking Canasa suppositories every night (started Jan 6th). Within the first week or two I felt so much better (had more energy, regular appetite, can run and do yoga again). But now I have been back at college for a couple weeks since after winter break, and I am having symptoms again (gurgling stomach, mucus, tenesmus, cramping). Maybe it's the stress/new routine/change of environments? I am waiting for my doctor to call me back but was wondering if anyone had a similar experience of getting suddenly better and then experiencing symptoms soon after. Would you recommend any over the counter supplements, probiotics, vitamins, etc. in addition to the Canasa? Just want to feel better and not be hindered by my UC :/

Thank yousmile
Posted 1/26/2018 11:17 PM (GMT 0)
Your doc didn't give you any pills to take like lialda or asipro? These will help reduce your inflammation. As for vitamins and supplements, each person responds differently. I take fish oil, tumeric, L-glutamine and a few others. It didn't control my flare but made things feel a little calmer. It's trial and error.

So sorry you havd to deal with this and school, it's really rough. I hope you find what works for you. But i would call your gi doc and let them know your symptoms are coming back so they can give you more meds. smile
Posted 1/26/2018 11:26 PM (GMT 0)
That sounds rough. I think I would want to be taking something rectal for in the morning as well.
Posted 1/26/2018 11:47 PM (GMT 0)
if the proctitis was only a-3 cm at the very end, the suppository-only makes sense. if it was much higher, and enema might make more sense.

if it went into the sigmoid colon, and oral pill could help - at least help prevent spreading.

sometime the underlying disease pushes back and you can see some initial improvement and then the disease re-asserts or spreads. in your case it seems a little fast.

OTC can help wit symptoms like D, but not with bleeding or urgency so much.

probiotics are a reasonable recommendation for anyone because so much recent research has pointed to the importance of healthy balanced gut microbes. vit-D is in general good for the immune system, but I would not go mega-dose unless you have bloodwork that says you are deficient.

good luck
Posted 1/27/2018 2:17 PM (GMT 0)
Yes, it's common to have your symptoms return after time. It means that you need stronger doses and/or more medications to control your UC.

Some take multiple canasa a day.

Some take stronger retention enemas: mesalamine/rowasa/pentasa/salofalk.
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