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anxiety over flare

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Ulcerative Colitis
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Posted 3/21/2018 5:26 PM (GMT 0)
hi all I've not posted for a while but in october i started with my 1st real proctitis flare and I ended up taking oral steroids which sorted it out . I'm now on salofalk granules and suppositories. I've had no symptoms since but im so obsessed . every slight pain i get has me worried and i check the toilet every time I go . is this normal ? Will I always be like this ? I have also had to take a course of macrobid for a uti which I did try to flush out first because I was so worried about antibiotics causing a flare . it's taking over my life 😣
Posted 3/21/2018 6:20 PM (GMT 0)
I think we all have Post-Traumatic (Flare)-Stress-Disorder, after an awful flare (at least I did). It gets easier after time in a remission, your worries become less frequent and quieter. You'll have to build up your confidence again and regain trust over your bowels.

Here's the "circle of trust--->" O
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And here's your ::colon:: this faaaarrrr outside from the circle of trust. It's going to take a while to trust it again. Cheer up, laugh a little, and know it does get better smile

And have the courage to flush before getting up. If you aren't looking then your anxiety won't jump. I know we tend to read the toilet bowl like a fortune teller with tea leaves (probably with the same accuracy).
Posted 3/21/2018 6:37 PM (GMT 0)
Thank you for that . you made me laugh .

I guess it's still early days for me . I think the uncertainty of not knowing if or when a flare will happen makes things harder .
Posted 3/22/2018 12:24 AM (GMT 0)
ipoop always gives good, sound, advice. It's so nice to read the knowledgeable posts on this forum. I've had this junk over 20 years now, and still stress when in a flare...as I seem to be now. Just try to enjoy a little of every day and know that better times and days will come again. Good luck
Posted 3/22/2018 4:49 AM (GMT 0)
I was a bag of nerves the first few years, but after 15 years I can take it more in stride. You kind of learn what works for you and what doesn't. The best thing is to have a plan if your symptoms start to increase significantly, preferably one that doesn't involve prednisone.

Keep in mind that you can add a second enema in the morning if you have to. That really helped me stay in remission longer.
Posted 3/22/2018 6:23 AM (GMT 0)
thank you both . to be honest the pred wasn't as bad as I thought it would be . i was one of the lucky ones that barely had any side effects from it . I really didn't want to go down that route but have in and I'm so glad I did .

Thanks again
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