Posted 4/19/2018 2:54 AM (GMT 0)
First time posting here and thank u for being so supportive on this forum.
UP - Proctitis
I had 1 mini flare up every 2 years. And I have to add all these while I feel generally energetic and healthy, no D, no pain, and almost minimal blood.
2014, some mucus, lots of gas, minimal to no blood and no pain, no D. just minor urgency. (few weeks)
First time treated with (sorry been a while i forgot the name) a pill that you put up your butt.
2016 again, mucus, gas, no pain, just wet fart. (few weeks)
I got pregnant the same time and opted no med, and all symptoms disappeared without a trace!!
2018 this time similar. mucus, gas, no pain, just wet fart with minimal blood.
Been 2 weeks and symptoms almost cleared off on its own without meds, but since I had a colonoscopy yesterday, the Dr will see me tmr and give me meds to put up my butt again.
So overall, these 3 times are super mild. And apart from the couple of weeks of flare during the above 3 times, I eat whatever I want, junk, feeling really healthy, formed stools, no pain, no C, no D, no blood. Of course with this recent episode reminds me of UP is there, always there somehow though invisible. I decided to start eating healthy and anti-inflm foods from now.
I read many places if UP were to spread to full Ulcerative Colitis, its only 10% rate. Even my GI said that. "Over 90 percent of the those who have idiopathic proctitis never develop colitis higher up in the colon. " But of course there are people with recurring colitis coming back online and more active on forums looking for answers so its hard to find an exact sample simply on forums.
And also if they do spread, MAJORITY does so within first 2 years of diagnosis.
So my question is, please shoot me with your positive stories of UP being in remission most of the time like me and minor mild symptoms. Please tell me UP patients can live a long life!
Please make this a feel good forum! Thanks for support!