HealingWell
Search Close Search
☰

Flaring any ideas I should try?

Support Forums
>
Ulcerative Colitis
✚ New Topic ✚ Reply
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted 4/23/2018 1:56 PM (GMT 0)
Hi Everyone .


I'm new to UC so learning about it .. Hope someone can give me more in site also.. I have my first flare up and I have to say it's not good.. I've been going to bathroom 10 to 20 times a day liquid stool for 2 weeks.. I did have c diff last year and retested for that and 22 other things and norovirus came up. I do have UC and MY GI doctor did a stigmi on me last thurs and said i'm inflamed up there and that's why the water diarrhea. He said the blood test was wrong and it's my UC. He also said he saw no c diff when he did stigmi scope but for peace of mind i'm going for 1 more blood test at least I hope i called office. I am on 1 Uceris a day and 4 Apriso for the past week.. I was on Canasa suppositories month and half but he said it didnt do much to stop them.. I lost 10 pounds in 2 weeks and try to drink as much water and eat banans . toast. chicken. turkey. rice. Just fustrating its still water when i go. I also have sweats and feel weak then i feel ok. Very strange.. I have appointment with him tomorrow so i'll see what he has to say. I just never had water D in my life and its scary for 2 weeks.. Ty for reading

(I added a subject)

Post Edited By Moderator (iPoop) : 4/23/2018 8:51:04 AM (GMT-6)

Posted 4/23/2018 2:52 PM (GMT 0)
i've been told by my GI that this is all normal for UC.. My question I see a lot of people with loose stools but not maybe like me with water coming out. sorry.. Is that normal? I don't feel like eating which is another problem if someone can give some advice. I'm losing weight and wondering when my appetite will come back getting too skinny. SOS
Posted 4/23/2018 2:53 PM (GMT 0)
With a 10-20 bms a day frequency, I would ask about an oral steroid like prednisone.

Not sure on the conflicting tests, I'd insist on retests on them.
Posted 4/23/2018 2:55 PM (GMT 0)
Hey peter, welcome to HW. I am sorry you're struggling with these symptoms. It sounds like you're doing everything correctly. What did you take when you initially had all those pathogens? Have you had a chance to look at your pathology results? Canasa is great but it would be beneficial to try enemas. If mesalamine doesn't help, try steroid enemas. Let us know how it goes with your appointment tomorrow. have you tried other oral mesalamines? Some people do better on lialda or colazal vs apriso... a switch might be worth a try if you're not having any luck. Did you ever have a full scope or just the sig?

liquid stool is common while flaring.
Posted 4/23/2018 3:17 PM (GMT 0)
Thank you Ipoop and notsosicklygirl.. Appreciate your help and feed back.. I had a full colonoscopy in Jan 2018 and that's when they found the UC. I was bleeding for 8 months and also have hemorrhoids which they were doing the rubber band thing to get rid of but I new something was wrong due to color of blood and the clots coming out. The doctor last week did a stig on me due to going so much and he says its from the lower bowel and inflamed that why so much water. I'm new to it and trying to grasp this.. I still have a few up there so worries me about enemas.. pain ect.. I feel sick on and off. sweating. don't want to eat.. Is tyis normal I don't know if its the meds or UC? I am going to go for another c diff test.. If this is normal then i can deal with it . Its just I don't know much about it and feel like garbage.. Ipoop I will ask the doctor about prednisone. .. notsosickygirl I will also bring up your suggestions.. I thank both of you!! anything else don't hold back i'm leaning. I think its eventually i will be on right meds its trail and error..
Posted 4/23/2018 4:40 PM (GMT 0)
Normal is a "remission" which is a 100% absence of UC symptoms, where you're essentially normal. What you're experiencing now is a "flare" which normally involves the things you describe with and without medications: pain, blood in stool, nausea, diarrhea, frequent bms. It's unlikely your medications are causing those symptoms, rather they help improve those symptoms.

UC goes between periods of flares and remissions.
Posted 4/23/2018 4:48 PM (GMT 0)
Thank YOU Ipoop.. Appreciate your help..
Posted 4/24/2018 3:23 AM (GMT 0)
Are you running a fever at times, or is it just sweats? It can take time for medications to work. Like ipoop said, normal to a flare can include the symptoms you are experiencing. The severity of your symptoms is probably not a normal that can be sustained long term, so it is important to work with your GI to find medications that your body will respond to. In my experience Uceris is good for mild flares, but not strong enough for bigger flares. My first GI also told me Apriso was weaker than some of the others. I would say you are undermedicated right now. On the other hand, I am confused as to why he said the labs were wrong. More experienced people, can Cdiff be diagnosed via scope? I thought that was a lab test thing.
Posted 4/24/2018 1:05 PM (GMT 0)
Hi Spring

I sometimes sweat and low fever but not too offten. My body feels weak from the episodes of bathroom trips but trying to eat and drink.. I had a stool test because i was having bad D and i had c diff last year and they wanted to check if came back plus 22 other pathagans.. Noroviris came back but that only lasts 3 days this was over a week at that time so we wanted to see what was going on and Stig scoped me. He took some samples waiting for that. The norovirus would have passed by then so he came back to its a flare up[. Im going to see him today and want anther stool test for c diff just to be safe..I don't know about the Meds and appreciate you finme people giving me suggestions to ask. This is very new to me .. I have acif reflux along with anxiety.. I work out but can't due to flare or what ever is going on. S today it marks 2 weeks of D all water and hope to end this soon. I believe other poeple with UC have had same watery D as I .. No one knwos when it ends i guess. He started me on Canasa Supp every night then put me on 4 Apriso and 1 Uceris. Seems like a lot maybe just not strong enough. I never in my life had D like this but its eiether C diff or UC.. I thank you and the others on here helping me you all have big Hearts!! Ty
Posted 4/24/2018 1:09 PM (GMT 0)
Also.. Can i eat a nice salad ? Flaring here.. I listed what i eat but i'm getting bored.. That's when i feel like eating.. I love salads. watermellon. blueberries. Tacos with lean turkey Meat? Suggestions Please
Posted 4/24/2018 4:10 PM (GMT 0)
Raw veggies aren't going to site well during a flare for many of us. Stick to bland soups, broths, chicken and potatoes without spices. A little boring perhaps but safer.

Some of us have low-temp fevers along with UC.
Posted 4/24/2018 5:08 PM (GMT 0)
Ty ipoop. I'm losing a lot of weight not hungry most of the day. I'm at doctors now I need to eat more the problem is I get nausea sometimes. No appetite. Sometimes I get spurts then goes away and still going to bathroom a lot. Mucus . Brown water. Hopefully this doctor can guide me or I may just walk into emergency room. Ty again
Posted 4/24/2018 5:47 PM (GMT 0)
Good luck, force yourself to eat if you must. You could try ensure drinks. Ask this doctor for anti-nausea meds.

I barely ate during my worst flare, and lost weight fast. My dear wife was worried so went and got me the one thing she knew I could not resist. A pint of ben & jerries icecream, chocolate with brownie and cookie dough, and all of the goodies in it. I thanked her, smiled, ate a couple spoonfuls and then put it back in the freezer. So I know how it goes! Never, in the history of me, has a pint of icecream lasted so long as during that flare. It'd otherwise not last the day...
Posted 4/24/2018 5:57 PM (GMT 0)
Thank ipoop.. I told the doctor I think I need to go to emergency room and he agreed. I lost 8 pounds in 6 days . They will also retest me for c diff the doctor Said. I wish I could eat ice cream.lol. it sounds like you have a good woman there i"m also lucky 2nd one and the,wait was worth it. I'll keep u guys updated and your all good peeps.
Posted 4/25/2018 7:35 PM (GMT 0)
Keep us posted. Did they admit you?
Posted 4/25/2018 7:52 PM (GMT 0)
Yes. Ty spring.. No c diff . Lots of tests including ct scan of abdomen.. Comes up colotis lower rectum so I'm on if steroids and a whole bunch of meds which I should get a list and post once I get out of here. Today is great so far only 2 visits to bathroom all water B but much better than 15 times so far looks like on the right path. I'll keep you all posted . Thx again.. super nice people
Posted 4/25/2018 8:09 PM (GMT 0)
Glad to hear that things are settling down!
✚ New Topic ✚ Reply