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should I cancel my vacation

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Ulcerative Colitis
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Posted 5/24/2018 9:46 PM (GMT 0)
I am so sorry for your disappointment. I feel you on it seeming like we can't make plans and such. I went the last time, but I am very reluctant to make plans now as I want to feel good. I hope you can find something that works for you as well.
Posted 5/24/2018 10:23 PM (GMT 0)
Spring, I am so depressed today and the prednisone does not help. I am in an active flare that got worse overnight and I could not go overseas feeling like that. I cried enough water today to fill Niagra Falls. I should be in Rome this weekend instead I'm all wired out on 40mg of prednisone. I do not understand how this happened .... my disease is not severe... I just don't understand... I can't bear to look at my suitcase to unpack it. ahhhhhhhhh
Posted 5/26/2018 3:59 AM (GMT 0)
No it doesn't help at all. Prednisone feels like a second disease that doesn't even make the first one go away. Hugs.
Posted 5/26/2018 1:46 PM (GMT 0)
Since you've gotten worse, seems the best decision.
Hope you start to improve soon.....

Will you be rescheduling your trip?

q
Posted 5/26/2018 2:32 PM (GMT 0)
Please help me! I am going off the deep end here. I didn't get on that plane on Thursday and on Friday the prednisone kicked in and the flare stopped. Now I am stuck at home with too much negative energy. I can't calm down and my family has had enough. I can't stop thinking about how I should be in Italy with all of this energy and while I want to reschedule it.. I am starting to have doubts that I cannot obtain a long remission.

I have a CT scan scheduled for Thursday to rule out ischemia- it seems as if my splenic flexure has issues with ulcers not healing. Then I guess if that's normal we start Remicade. I did have side effects from Humira like insomnia and then fatigue and never felt amazing on it. Maybe I was never really working properly. I am not sure if Remicade will help now. I can't stop thinking that if I tried Prednisone instead of Uceris that I'd be in Italy now. How do I stop this horrible prednisone rage? I can't stop the obsessive thoughts that I could have made the trip and I may never be well enough to go in the future. This disease is killing me mentally. I need support and advice please help!
Posted 5/26/2018 2:36 PM (GMT 0)
Can you go on a small local outing today to give you something else to do and think about? I felt with anxiety on high pred, but not rage, so I don't have much helpful ideas
Posted 5/26/2018 2:57 PM (GMT 0)
I felt euphoric the first time I was on prednisone. I think it's because I am so disappointed that we cancelled the trip. I keep thinking over and over again that I could have done it and would have had all of this energy to use it. It's not rage but more obsessive thinking about my missed trip and lost hope for my future.

Do people ever get in long remissions?
Posted 5/26/2018 3:46 PM (GMT 0)
Yes they do once they find the medication that works for them. If you switch to Remicade you really need to be on Imuan with it. This may be why you didn’t respond so well to Humira. Look at IPoops signature. The odds of lymphoma are 1-2% based on newer studies.
Posted 5/26/2018 4:45 PM (GMT 0)
To deal with the roid rage I do anything I can to distract my thoughts ... long walks, gardening, funny movies/TV shows, decadent treats (food, clothes, SHOES!)

Sorry you missed your vacation. Hopefully you can find a way to enjoy your stay at home vacation instead.

My mantra ... "this too shall pass"
Posted 5/27/2018 3:56 PM (GMT 0)
Oh no countess, that is the worst. It's good you're getting some relief, but I am sorry you feel like you could have gone on the trip... There is a great depression board here if you're feeling down and want to talk to people who relate. I think we all feel that down on prednisone, but yes, the situation with the trip is terrible timing. When you are in remission, you will go and enjoy yourself without feeling nutty from prednisone, then hopefully you will feel better about rescheduling. It's easy for your mind to go to dark places when you're on prednisone. I used to have to take anti anxiety medication to stop my OCD negative thinking. Things will get better.
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