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Started asacol hd 7 days ago, bad pain and my liver ezyme are now high

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Ulcerative Colitis
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Posted 8/1/2018 9:28 PM (GMT 0)
Four days into asacol bad stomach pains .

My liver enzyme normal last week , today way high! Cause of concern they said, it’s asacol, no doubt now.

I just took at dose and with the hour or half hour my stomach hurts bad. I had all the ultrasound come back normal, my white blood count and hemoglobin are normal.

I will know more tomorrow’s when I don’t take the pills.
Posted 8/1/2018 11:07 PM (GMT 0)
Stop it completely.

If memory serves me correctly, mesalamine and you were never a match.

Wht is surgery not an option for you?

q
Posted 8/2/2018 12:46 AM (GMT 0)
That sucks.
Posted 8/2/2018 12:48 AM (GMT 0)

quincy said...


Why is surgery not an option for you?

q

One reason is Mayo has muddied the waters and brought Crohn's into the picture, although other doctors have said no, it's still UC.
Posted 8/2/2018 1:30 AM (GMT 0)
Yes, I know.....that's why I asked it at this point.

q
Posted 8/2/2018 11:29 AM (GMT 0)
Horror stories of infections and blockages. I’m not home bound or anything just not 100% in any means, no accidents in a long while. Enemas are my best friend, with canasa.

Plain and simple I’m not ready.

I want truly be off gluten for 6 months. a few weeks doesn’t stop the anti inflammatory process.

I ordered Mutaflor , going to try thAt.
Posted 8/2/2018 12:59 PM (GMT 0)
I'd wager you're going to ultimately need a colectomy, after reading your posts over the years. Nothing works well enough for you, and you've tried nearly everything available, yet still struggle and limp by with a compromised quality of life. NSSG didn't have accidents either, nothing but surgery worked to give her a good quality of life (so you don't have to be housebound with frequent accidents to go that route). The surgery would let you live your life post-UC, with consistency, no worries about flares, no meds, and no doctors.
Posted 8/2/2018 2:54 PM (GMT 0)
Miracles,

So you're saying that you tolerate the mesalamine enemas, but not the oral tablets? Maybe it is something besides mesalamine you are sensitive/allergic to. Perhaps you could tolerate a different formulation with a different delivery mechanism (like Colazal)?
Have you ever considered going to see Dr. Borody in Australia? He is a magician with ABX and FT. I don't think there is anyone like him in the U.S. (not sure where you live, but assuming U.S.?).
Posted 8/2/2018 5:04 PM (GMT 0)
I would suggest you at least talk with a surgeon to ask questions. In truth, nothing has changed and has only gotten worse.
The more you tolerate, the more you accept it as a norm.

Gluten isn't your issue and wouldn't be causing the inflammation you have....which is IBD-UC.
q
Posted 8/2/2018 5:45 PM (GMT 0)
I talked to a surgeon even though I had no intention of having surgery at the time. I just wanted to understand the process and learn as much as I could.

No harm having a consult. In my case, the surgeon actually gave me some good advice unrelated to surgery in regards to U.C.
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