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Minor Proctitis for over a year. What should I do?

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Ulcerative Colitis
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Posted 8/2/2018 2:38 AM (GMT 0)
about a year and a half ago (Late May 2017), I felt a sudden sharp pain for about a second around my lower area close to the anus. When I went to make a bowel movement, there was blood. I assumed it was an anal fissure so I waited a couple weeks before seeing a doctor to see if it would heal on its own, but I had blood in my stool and tissue almost every day since including today. A few months later, I had a colonoscopy and was diagnosed with colitis (or proctitis according to my current specialist). The only symptoms I have is blood in my stool, mucus, and on rare occasions bits of pain on the left side of my lower stomach area. From my previous GI specialist and my current one, they have given me Mesalamine Enema, metronidozole, prednisone, hydrocortisone cream, Hydrocortisone enema, Mesalamine Oral and possibly others (but I forgot the names). The only thing that has ever worked was Mesalamine Enema. I would see results within a couple days, but once I stop using it, there is blood again after a week or 2 depending on how long I've taken it. Any ideas on what to try next?

I refused to take prednisone as the side effects were terrible and had absolutely no effect. Would taking Mesalamine enema again while actively exercising and eating healthier possibly help? Is it dangerous to keep bleeding like this?
Posted 8/2/2018 4:16 AM (GMT 0)
Hi and welcome to the forum. If the enemas worked, why did you stop using them? You should keep using them forever for maintenance if they work, tapering down to once a week or however often you need them. I have to do them every night. Are you on any meds right now? Your cancer risks go up the longer you have inflammation, so best to get it under control.
Posted 8/2/2018 4:46 AM (GMT 0)
find a schedule for enemas makes sense.
Posted 8/2/2018 2:08 PM (GMT 0)
Do you have infectious-proctitis or an Ulcerative Colitis with Proctitis (UP) diagnosis? Although the two sound very similar, they have very different prognoses. Infectious is a one-time course of meds, afterwhich you do not have to worry about it again. UP is a lifetime illness needing maintenance medications for life.

If you have an UP, then you should be taking a maintenance medication for life. A canasa/pentasa suppository is your best bet. A retention enema (rowasa/salofalk/pentasa enema) is also a good maintenance treatment for UP but a bit more then you would need.
Posted 8/3/2018 5:08 AM (GMT 0)

Sara14 said...
Hi and welcome to the forum. If the enemas worked, why did you stop using them? You should keep using them forever for maintenance if they work, tapering down to once a week or however often you need them. I have to do them every night. Are you on any meds right now? Your cancer risks go up the longer you have inflammation, so best to get it under control.

Hi Sara, thanks for replying to me! I really appreciate it. The reason I stopped was because my doctors only gave me enough for 1 month, afterwards they would try a new medication. I guess they were trying to to find something that would have a better effect or wasn't a temporary heal like the enema. I would like to keep getting enemas, but I'm not sure if my doctor would allow it. The last time he gave me enema he only gave a weeks worth... and prescribed prednisone again. Is it usual for people to just ask for the same medication regularly?

Again thanks!
Posted 8/3/2018 5:13 AM (GMT 0)

iPoop said...
Do you have infectious-proctitis or an Ulcerative Colitis with Proctitis (UP) diagnosis? Although the two sound very similar, they have very different prognoses. Infectious is a one-time course of meds, afterwhich you do not have to worry about it again. UP is a lifetime illness needing maintenance medications for life.

If you have an UP, then you should be taking a maintenance medication for life. A canasa/pentasa suppository is your best bet. A retention enema (rowasa/salofalk/pentasa enema) is also a good maintenance treatment for UP but a bit more then you would need.

Hi, thanks for replying! I am not sure which one I have, I believe infectious? since I don't really have any other symptoms of UC, its really just blood in stool. What kind of medication would best help for this? because I've tried many different medications as I mentioned before. I'm only 23 years old if this helps identify which one I have.

Thanks!
Posted 8/3/2018 1:38 PM (GMT 0)
I would recommend calling your gasteroenteroligists office. Ask if you have:

1.) Infectious-colitis

OR

2.) Chronic, ulcerative colitis.

If you have UC then you should be taking the enemas indefinitely, 1-month is not enough.
Posted 8/3/2018 5:44 PM (GMT 0)
Regular enemas to treat......eventually TAPER process to maintenance of twice weekly.

Enemas temporary heal??? They treat, heal area....but not cure. You have no experience what they can do....because, respectfully. your doctor clearly doesnt either.

You don't have diagnosis yet.

q
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