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Helpme understand my colonoscopy report

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Ulcerative Colitis
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Posted 8/7/2018 4:43 AM (GMT 0)
Does anyone know what mayo 2 is in my cecal patch?
That's what is says in my colonoscopy report.
I think unfortunately that means I'm not in remission sad

Post Edited (Emily6) : 8/7/2018 12:53:50 AM (GMT-6)

Posted 8/7/2018 12:36 PM (GMT 0)
Here's what I could find, (TL;DR looks like you have moderately active inflammation):

"Within the endoscopic component of the Mayo Score, a score of 0 is given for normal mucosa or inactive UC (that is a remission), while a score of 1 is given for mild disease with evidence of mild friability, reduced vascular pattern, and mucosal erythema. A score of 2 is indicative of moderate disease with friability, erosions, complete loss of vascular pattern, and significant erythema, and a score of 3 indicates ulceration and spontaneous bleeding [26]. "

Source: /www.ncbi.nlm.nih.gov/pmc/articles/PMC4124270/#__sec9title
Posted 8/7/2018 3:05 PM (GMT 0)
Hmmm. Ok so that explains my mild yet persistant symptoms. Dr will likely recommend changing my meds. What's the next step up after mealamines?
Posted 8/7/2018 3:08 PM (GMT 0)
Try another mesalamine....pentasa oral and rowasa retention enemas. Or oral Uceris and steroid foam in conjunction with meslamine enemas.

q
Posted 8/7/2018 4:01 PM (GMT 0)
If you've maxed out the mesalamines at 4,800mgs orally, and 4,000mgs rectally via a rowasa enema without relief then it's time to consider:
1.) Immunomodulators (azathioprine/imuran/6mp) which are generic, oral pills that take 3-months to work. They require blood monitoring the duration you are on them. Gasteroenteroligists are starting to leer away from these, as they have a very small (less than 1% odds) chance of causing a lymphoma (predominately adolescent males affected).
2.) Biologics like Remicade/Humira/Entyvio are injectable, brandnamed medications that work in 3-6 weeks, and do not require blood monitoring. I've been on remicade since 2012, have had zero side effects, and have experienced remission from it.

I'd discuss both with your gasteroenteroligist. The Crohn's and Colitis Foundation of America has a good risk versus benefit watch/read, if you're concerned about these medications:
Webcast: programs.rmei.com/CCFA139VL/presentation/player.html
Transcript: http://www.ccfa.org/assets/pdfs/risk-and-benefits-transcript.pdf
Posted 8/7/2018 6:41 PM (GMT 0)
Thank you. Very helpful. I meet with my gi next week by then the biopsy reports will be in. But they are already hinting at moving up to stronger class of meds. Yes I'm nervous so really appreciate the tip to look up the pros/ con info on the website. Will do!
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