Secondary Auto Immune in addition to UC?

How many people have another auto immune disorder in addition to UC? I remember before taking my medications and being diagnosed I was having excoriating joint pain that would move all around different areas of my body. Once I got diagnosed and got on meds (mezvant and salofalk) it went away. Now 2+ years later UC is not an issue but I am starting to get some new weird sensations. Ever since September my left upper thigh has had a tingling/cold sensation.

I have been to Chiro where they think it’s muscle skeletal as I am pretty tight at the hips and lower back. I drive 45 minutes to work and back daily and work at a desk for 6-8 hours, so this could be a decade of this catching up. Despite frequent treatments I have had little relief. The hips get less tight but the tingling remains. Now there are a host of things it could be including just some tightness in that area but has anyone else experience any sensory issues like this? I know MS can cause these sensations sometimes but I have also heard fibromyalgia, rheumatoid arthritis, lyme etc.. I have seen a couple GP’s, no extensive tests outside of regular blood work and a quick check of the reflexes/my walking. They didn’t seem overly concerned but the sensation is very real and chronic.

I wonder if some residual joint inflammation in the lower back or pelvis is not pinching a nerve in such a way as to produce the tingling. This woud be swollen tissue, or swollen tissue shifting the joint slightly, pinching the nerve. Inflammation around the body is very common with UC, and this is a less exotic speculation than MS. You might ask about a course of diuretic medication to reduce swollen tissue to see if tingling goes away. You might subsequently see if some short course of steroids (again to reduce inflammation) banishes the tingling.

There is some genetic pre-disposition to both autoimmune and more general inflammatory processes with IBD patients. SO something like MS is not out of the question - but it just may be premature to go there.

It is also possible some unrelated condition is making some nerve damage. If the tingling is very uncomfortable, maybe have it worked up by someone other than your GI, without evening mentioning the idea it is secondary to IBD.

Wow the response has been great love this website. It's amazing how inflammation in our bodies no matter where it occurs can have such affects.

I am fairly active. I lift weights (squats, bench, lunges, step ups, fully body presses, curls) 3 to 5 times a week. Then I do cardio (basketball/swimming) 3 times a week. I find no limitations while working out in fact I don't even notice it when I am active but as soon as I am done it's back. It's worse when I am sitting at my computer, somewhat better standing and walking but not completely gone and I have found stretching somewhat helps but nothing has been a complete relief since I first started noticing it in September.

The other thing is after a nights sleep before I get up and go, while I am still lying in bed I don't feel it.