From proctitis to pancolitis

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MarkWithIBD

Regular Member

Joined : Jun 2018

Posts : 452

Posted 10/5/2019 7:09 PM (GMT 0)

Part of the reason why they discharged me from the hospital is that it had already been 1 week, and they needed to minimize my risk of infections. I had a private room, but that didn't seem to matter. They gave me a stool test when I got to the hospital, but not on leaving. With the amount of blood and frequency, I wonder if an infection would even come up in a stool test right now? Anyway... your advice is good.

I'm amazed that nopal water did it for you. I wonder if it was just really flushing out your system somehow. I feel like UC flares fill us up with a lot of waste byproduct from inflammation and dying tissue. Have you ever had your detox genetics done? Mine are pretty bad. I have SOD2 and GSTP mutations which means my body does not make enough antioxidants.

It's funny how the things that get you better in one flare may not work in the next. And by funny I mean... depressing.

CCinPA

Veteran Member

Joined : Dec 2014

Posts : 2813

Posted 10/6/2019 10:59 AM (GMT 0)

I had been in a simmering flare on just Asacol and doc wanted to move me to biologics after I had issues with azathioprine and had to stop taking it (high LFTs). I didn't feel like I was bad enough for biologics so tried the nopal water after doing some research on nopales cactus. It's eaten in Mexican cuisine and is an anti inflammatory folk remedy. Most of the info I found concerned lowering blood sugar level in diabetics but I also found mentions of helping with arthritis and IBD. I figured it was worth a try and it was just enough along with the Asacol. I even had another scope 4 months after I started drinking it that showed only very little mild inflammation remaining -- a vast improvement over the previous scope. Never had any genetic testing done.

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