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Xeljance questions

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Ulcerative Colitis
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Posted 9/21/2020 7:39 PM (GMT 0)
Hey guys,

I have been reading over old threads, but I still have a few questions.

1. I am seeing some people talk about the dosing be lower for RA than it is for UC. Are some of you staying at higher dose for longer than 8 weeks? I was on 21 mg for 60 days, then am on 11 mg once a day. Saw an increase in symptoms from virtually no symptoms. (Yes, yay, I was feeling almost normal again the last week or two on 21 mg.)

2. Are any of you seeing the pills in your stool? After dropping the dose, I have seen them in my stool twice in the one week.

3. Are there copay/out of pocket assistance programs like with Entyvio? My out of pocket is almost 3k, so the assistance with Entyvio was super helpful.

4. Did you docs make you go on more meds for elevated cholesterol? My triglycerides were the biggest thing that is high now.
Posted 9/21/2020 8:34 PM (GMT 0)
1. I was on the high dose (2x10mg) for 16 weeks then tapered via 15mg to the low dose (2x5mg). I started to flare 3 months later but got it under control with 5ASA enemas.

2. I don't inspect my poop so not sure. I've never noticed it.

3. Not in the US so can't comment.

4. No because it's not gone above normal, although it was at one point high end of normal. It reduced after i started being able to eat lentils and refried (black) beans several times a week.
Posted 9/21/2020 11:27 PM (GMT 0)
Thank you poopydoop for your detailed reply.
Posted 9/22/2020 7:54 AM (GMT 0)
My doc said I'd stay on the higher dose for 16 weeks, if necessary to attain remission.

Normal for Xeljanz XR to come out appearing whole but not the immediate-release version.

Pretty much every brand name medication that does not have a generic yet has a discount card or patient assistance program. Here is Xeljanz's: https://www.pfizerpro.com/product/xeljanzuc/hcp/support/co-pay-savings-card
Posted 9/22/2020 11:44 AM (GMT 0)
Thank you noodlesnoodles. I am taking xr, and I will check out the link.
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