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Posted 10/20/2020 12:19 AM (GMT 0)
Last Tuesday night.. wound up in the E.R.
I was vomiting and had severe stomach pain .. and on the toilet for hours .
They did a cat scan with contrast and saw my
Descending colon is very inflamed . Was surprised because I just finished my fourth round of Entyvio and was feeling pretty good.
Turns out I have C- diff. I was put on Divicid.. and seems my stomach is worse from the antibiotic..
Don’t want to go to the hospital due to COVID.
Spoke to my Dr. once today .. I wasn’t that sick when I spoke to him .
I am not taking the second dose of Divicid tonight..since I think it is making me worse .
Had the same reaction to Vancomycin..
I am at my wits end.. This is my third time with
C-Diff in two years .. and wasn’t on antibiotics.
The funny thing is I was on S Boulardi and another probiotic for about a year ... got C diff anyway ..
Could please use some advice
Thanks very much!!!
Posted 10/20/2020 1:37 AM (GMT 0)
C-diff is a serious problem and it needs to be cleared up one way or the other.
Not sure where you live, but fecal transplant is an option for people that can't tolerate or don't respond to anti-biotics.
I would stay on the S Boulardi.
Posted 10/20/2020 5:58 PM (GMT 0)
How is your stomach worse exactly or do you mean other gastro symptoms? I suggest you call your GI asap and explain the situation. Can you possibly take a PPI if it is your stomach?

q
Posted 10/20/2020 6:12 PM (GMT 0)
You may want to speak to an infectious diseases physician, rather than a gastro. Finding a current C Diff experienced physician isn't easy, and yes, it is a serious issue requiring focused attention.

Here is what Mayo has to say about it: https://www.mayoclinic.org/diseases-conditions/c-difficile/diagnosis-treatment/drc-20351697

Good luck!
Posted 10/20/2020 6:37 PM (GMT 0)
Interesting C Diff article:

https://www.intechopen.com/books/clostridium-difficile-a-comprehensive-overview/clostridium-difficile-in-the-icu
Posted 10/21/2020 6:03 PM (GMT 0)
I had a very similar experience myself. After 2 years of Entyvio, and an almost remission like state it all went wrong. In the spring during lockdown I had a terrible gastric upset that had a very rapid onset. Following remote advice and re-hydration remedies didn't work. Ended up in the emergency department with severe dehydration after 40-50 BMs a day. I was on drips for a fortnight, rehydration, hydrocortisone, switched to insulin for type 2 diabetes and various minerals towards the end. Kidneys were protected and went from 5% function on admission to about 40% on discharge and now at about 85%. They couldn't find the agent that caused the incident but in August it seemed to have started again. This time stool samples were sent off within 3 days of it starting. It turned out that I had c.diff. Luckily I responded well to the vancomycin and it had cleared after 10 days. The specialists are now thinking that the UC flare that they diagnosed in the spring could have been pseudomembranous colitis triggered by c.diff. I am much better now. Good luck I'm sure they will fix it for you.
Posted 10/21/2020 8:18 PM (GMT 0)
Thank you so much for responding.. i am so sorry you had such a terrible experience.. but are feeling better 😀. I was put on a 10 day course of an antibiotic called Dificid.. allergic to Vancomycin..
I have been on it for four days .. and am in excruciating pain .. I was told to take probiotics, also .. because the antibiotic is killing all of the good bacteria still in my gut!
The Dr. said if the ten day course doesn’t help.. he will most probably do a fecal
transplant.. that I have been told is a very unpleasant experience!!!
Are you on any meds, now?
Posted 10/22/2020 7:57 PM (GMT 0)
It took a full 14 day course of vanco, for me to shake it, and I was on probiotics the entire time.
Posted 10/28/2020 2:58 PM (GMT 0)
I was hospitalised last November for 2 weeks for a severe C-Diff infection. Was horrendous and put me out of action for months we initially we thought it was a flare. Eventually Vancomycin was my saviour and it took roughly 14 days of that to clear. Thankfully I’m remission free of anything UC related as I’m on Biologics infusions which have been a game changer for me flare wise. Never want C-Diff again.
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