HealingWell
Search Close Search
☰

I have relapsing remitting, drug-resistant c. diff., which means I didn't respond to Difici or Vanco

Support Forums
>
Ulcerative Colitis
✚ New Topic ✚ Reply
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted 9/6/2021 1:33 AM (GMT 0)
I have had C diff for a year now. I've been on Vancomycin and Dificid. Nothing is working. I also tried Oregano Oil, Olive Leaf, probiotics, iodine, and eat high probiotic fermented foods and drinks. I can't get a fecal transplant due to Covid and openBiome is closing their doors to donors. I also have an inflamed gallbladder that needs to be removed, but the Doctor won't because of my C Diff. So...I might live and I might not. I might have to now go on leave at work. Sick, frustrated and sooooo tired of this horrible roller coaster ride! Has anyone had any success with herbal remedies? HELP!!!!
Posted 9/6/2021 2:16 AM (GMT 0)
I am sorry you are experiencing this. I don't have any advice as I haven't had much luck with alternative supplemental or herbal remedies..

The 2 times I had c-diff I was in the hospital and they eventually got it under control with iv antibiotics.

Could that be an option for you? Infusions of antibiotics?

I wish you the best if luck.

Clo
Posted 9/6/2021 2:01 PM (GMT 0)
GP,

Have you asked your GI if you could do a combination of Vanco and Dificid?

Some people have done home FMT. I know about it but you use the search feature on Healingwell.
Posted 9/6/2021 6:20 PM (GMT 0)
Sorry that all these complications are bugging you. Have you tried Lactobaccillus GG? It's found in the original formula of Culturelle, and was reportedly researched for many yrs by gastroenterologists. I heard an MD researcher speak ca. 2014 at a med center IBD support group meeting, who said that L.GG was especially helpful toward fending off C.Diff., and he was known to have a lot of experience treating IBD patients over time so I listened attentively to his comments. *** Also, an RN very experienced with UC posted here in the past that patients should take probiotics 2 hours after their last dose of a daily antibiotic, info which might help you. / Old Hat (40+ yrs with left-sided UC; in remission taking Colazal)
Posted 9/6/2021 11:41 PM (GMT 0)
Sending healing hugs, Grammy! I suffered with a recurrent Cdiff infection some years ago. At the time, I didn't try any herbal remedies because my gastro suggested a FMT and I agreed to go that route. Thankfully, it cleared things up.

I see that you've already tried oil of oregano. What about manuka honey? I use Wedderspoon monofloral 16+ when my fistula gets fussy and it usually helps the infection to drain. Here's an older study on manuka's effectiveness against Cdiff: https://pubmed.ncbi.nlm.nih.gov/23651562/
✚ New Topic ✚ Reply