No D for the past 2 months How I did it

Nothing.
This stopped the D, not bleedng'
Oldmike

Old Mike said...

Still some blood. No MED's since about 1982...
This stopped the D, not bleedng

I hope over the years that you had regular colonoscopies to make sure the bleeding did not indicate cancer.

Hello Old Mike,

Thank you for sharing the information. I am interested in trying out your suggestion. I have ulcerative colitis, pancolitis actually.

I am a little unclear on what you are saying. It sounds like from your other posts you have refined what you are currently doing considerably from the past. I am interested in what you are doing now.

You mention up regulating the 'Intestinal Alkaline Phosphatase/IAP'. Can I take something directly to increase the IAP? Or, am I to understand that by taking Calcium, Mag,and Zinc and Vitamin K (once a week) this will increase the IAP in my gut?

Did you start out at the full dose of Calcium,Mag,and Zinc then drop down to 1/3 dose after you saw improvement in 2 months or so? Should I starting out take 1 pill of the Calcium, Mag,and Zinc at breakfast, lunch, and dinner?

Thank you much,

I see in a previous thread..

Old Mike wrote:

Somebody said...

I started out with a 1/2 pill then went to 1.5 then back down to 1,which seems to be enough.
3 pill full dose might work better, don't know right now. I am always on the look out for adverse events.

I started taking 1 pill at each meal yesterday on Monday 11/15/2021. I am taking the same brand and dosage as Old Mike, but I got mine from Amazon. I plan on taking vitamin K1 weekly as suggested (when it arrives).

I checked my other supplements for: inorganic phosphate such as calcium phosphate additive and di-calcium phosphate.

I'll post back in a couple of weeks or so with any change.

about me:
I have had UC for 5+ years
I have 4 to 6 BMs a day and was having a little blood, but the blood seems to have cleared up.
I am currently on a monthly dose of entyvio. I have seen some improvement and hoping for more.
I see a GI and am working with a homeopath.

Stop stop total disaster hard stool must have penetrated rectum rectum went necrotic waited about 3 days cuz I didn't know what was going on went to hospital got emergency surgery at 1 in the morning to have a colostomy still having a small part of bottom of rectum and most of colon kidneys are only at 11% function I'm still draining pus out of some kind of abscess in my body cavity probably still touch and go almost didn't make it make it put in this post on for my phone talking into it cuz my right hand is paralyzed from the surgery somehow stretch their broken or crushed nerve my right arm 15 days on bags and bags of antibiotics trying to kill any infection home now but can't use right arm even change my own bag yeah this was disaster disaster old Mike

Just to correct kidneys were at 11% function prior to surgery they came up to full capacity real fast after surgery and antibiotics just to add a little bit of perspective I've been able to avoid doctors biologics medicine and all the other crap that goes with UC for the past 40 years I'm not sure exactly how this happened other than a super hard drive stool perhaps cut into my rectum my big mistake may have been not drinking enough water don't know or it was bound to happen anyway don't know the other weird thing is the pathology was UC didn't find any colon cancer how strange is that the other weird thing is lungs are clear and I smoke telling you guys all this because you deserve to know stick with the meds and doctors hopefully you'll be better off right now this possible it's still on my body cavity has to keep on draining hopefully it stops I can't imagine how much is really in there was not out of the woods yet until these drains are pulled and I'm on my own without antibiotics of course since I still have most of my calling and anus I'm still subject to UC which is a not a good thing old Mike

Hi Mike...how are you doing today? It's a relief to hear no cancer...because that and possible repercussions of continuing inflammation is what my concern has always been.

Would you be able to clarify...do you, at this point, have a colostomy to allow the healing? Do you know how much was removed above the rectum?

Please let us know how you're doing if you're feeling up to doing so.
Sending healing vibes your way.

q

Sorry to scare everyone I saw the other thread. All drains are out well interventional radiology drain is out there was a large plus pocket somewhere in my back which when I got out of the hospital on November 24th was still draining 75 mL of pus sometime in December a new drainis put in and repositioned this time we got it all body finally killed the infection. Yes I have a colostomy I have a rectal stump also have a potbelly the incision has healed my right hand which was paralyzed when being stretched out on the surgical table I can now move it fully but it still tingles and is cold last week I drove myself to the barber have been afraid to drive because right hand was not functional finally got my first haircut since October the bag is not particularly fun but my gut seems to work pretty well I've gained back about 8 pounds out of the 20 I lost I was very sick almost cranked out 20 days in the hospital knocked up about 179,000 worth of bills still have some bladder pain some difficulty peeing due to the Foley catheter that's a whole experience in itself but either putting it in or taking it out must have caused some bladder damage or from the irritation my immune system is still going after things it does not like had urine tested a number of times no bacteria. I'm talking into my phone to record this so some of the words might not be spelled correctly. Anyway still here gaining weight take care of myself all the home Care nurses have dismissed me a long time ago cuz I'm pretty much fully functional. I will say this has been a crazy experience. Interestingly enough my surgeon is about a 30-year-old lady the experience is I guess loss of modesty you're exposed to all those nurses and doctors and after a while you sort of get used to it. I guess that's about it still in recovery mode but hopefully nothing else will go wrong and I will be around for the grandkids for years to come. I am also known as poppop Mike. See you. Old Mike. PS. Forgot to mention a few things besides my mess. Back in December the wife broke both wrists while ice skating. Moral of the story don't ice skate at 76 she is not out of braces yet but the funny thing is she is not mentally capable of helping me with the bag when I couldn't move my right hand nurses or my son had to do bag changes for me. So after she broke both her wrists and was in hard casts think about things you can't do for yourself I had to do it for her. Let's see when I last saw the surgeon last month and she did her rectal exam before she did it I told her first do no harm that was a fun experience. Anyhow last thing she said to me was see you in 6 months. As soon as I get fully up and running and covid has died down more I'll have to take her a gift for saving my life and a large shopping bag of candy for the nurses on the floor where I was. You might have noticed I started writing this about 3:00 a.m. I wake up a lot but I go to bed about 7:00 or 8:00. Old Mike

Post Edited (Old Mike) : 2/11/2022 2:09:00 AM (GMT-7)

Many of us didn't think you had made it, Old Mike. Glad you are doing better!

Oh my God. I'm so glad you're alive.

Thanks all, appreciate the comments.
I stil look like I just came out of a WWII concentration camp,but getting back more
muscle mass. By the way, surgeon told me when she got to the rectum, it was necrotic and the tissue
was falling apart. What else,took a walk down the block the other day and ran back home, just to see if I could
do it,laying around for 3 months is not good. Have no arthritis at my age, immune system has not attacked joints,but did not like the colon.
I can't saay enough about the hosp I was in, great care,private rooms,good docs,and nursing staff.
Time for a bag change, and a shower,need to clean up Tommy Stoma. See Ya.

Oldmike

Whew!!!! So glad you came to update us! So sorry for all you’ve been through!

Yep I broke wrist on my dominate hand a couple years ago and had to have metal plate and pins put in. Can’t imagine going through that with both hands! What a mess.

Hang in there! Sounds like you are getting better every day!