Hi, I'm dealing with the same.
Bit of background. I was diagnosed with pancolotis 3 years ago, first year I was just on Pentasa (mesalazine) then had to move up to Azathioprine a year later. Back then it was mainly stomach pain, diarreah, mucus and a little blood.
Since about
a year and a half almost, I have been bleeding daily, with every bowel movement. It literally drips in the bowl.
This also causes pain afterwards in the anal passage I assume, that throbs and radiates to the genital area. If I have to go more than once, it gets worse, I can only assume because the first one
opened the sores and the 2nd or 3rd rub on it... then again how would I know when I can't actually see what's going on..
During a year of this, I Have been on rectal meds, starting with retention, then foam, then suppositories. Ive been on the mesazaline suppositories nightly and budesonide foam in the morning for 5 months now and still bleed daily.
I've also been on 1.200mg x 4 daily of Mesalazine oral (Mezavant) for the last 8 months or so.
My GI also did mention its limited to the last 4cm and is tough to treat but not serious. this is hard for me to believe when I see blood dripping everyday but ok..
I have an appointment scheduled with a GI that will hopefully approve a biologic because like you, I don't know what else I can do.
Diet always comes to mind and cabbage juices etc but then I think how the hell is that going to fix the last 4cm thats inflamed if even rectal meds don't do it, Steroids included (foam)
1Wish
Post Edited (1Wish) : 12/12/2021 5:37:43 AM (GMT-7)