Neuropathy

Theanxiousaries

Regular Member

Joined : May 2021

Posts : 431

Posted 2/16/2022 2:47 AM (GMT 0)

Anyone experience this after their entyvio infusion. It’s in my face, back and groin

xy123

Veteran Member

Joined : Feb 2014

Posts : 1137

Posted 2/16/2022 3:29 PM (GMT 0)

What exactly do you experience? When does it start? How long does it last? You may be allergic to the drug.

FlowersGal

Veteran Member

Joined : Feb 2017

Posts : 1877

Posted 2/16/2022 4:51 PM (GMT 0)

Never had it. Sometimes my feet are very sensitive when I first get up but I attribute that the age. And for me the benefits of entyvio greatly outweigh any possible side effects. UC comes with a lot of associated effects just on its own so sometimes it’s hard to tell what’s causing what. Try to focus on the positive and don’t go looking for trouble.

VanJordan

Veteran Member

Joined : Dec 2019

Posts : 566

Posted 2/16/2022 6:06 PM (GMT 0)

No but I got it from flagyl. My naturopath responded by giving me high dose B vitamins and a B12 injection, and my symptoms went away in a day.

straydog

Forum Moderator

Joined : Feb 2003

Posts : 19850

Posted 2/16/2022 6:33 PM (GMT 0)

TAA, are you sure your anxiety isn't getting ramped up? You can always call your dr.

Sara14

Veteran Member

Joined : Mar 2007

Posts : 7914

Posted 2/16/2022 8:27 PM (GMT 0)

I'd call the doctor. It's not fair to say someone is "looking for trouble" because she or he is experiencing a distressing symptom after starting a new medicine.

poopydoop

Veteran Member

Joined : Dec 2018

Posts : 2072

Posted 2/16/2022 9:16 PM (GMT 0)

I had the same thoughts as Susie: Those kind of symptoms could also be anxiety-related. I would also call a doctor when you're worried about it.

FlowersGal

Veteran Member

Joined : Feb 2017

Posts : 1877

Posted 2/16/2022 11:53 PM (GMT 0)

Looking for trouble was a bad choice of words. My bad. What I was trying to say is that when I had heightened anxiety I was super vigilant about body responses. Most of the time, unwarranted.

One thing I’ll share — a neurologist sent me to some kind of nerve response tests — can’t remember why but maybe because of the sensitive feet issue — and those tests were truly one of the worst experiences of my life. They stuck needles and electrical probes in my legs and calves. Makes me shiver just thinking about it again. I came out shaking and a nervous wreck. Never again!

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