Charlie789 said...
They mention in this paper that FCP may not be a good indicator for "deep crohns" and that scopes and CT scans may miss deep crohns....im guessing deep crohns is where the disease is high up in the small intestine and not in the TI??????
Not sure, my sister has crohns in the TI which was missed for YEARS because they couldn't get the scope through the sphincter between the large and small intestine (ought to have been a sign something was wrong...). Her colon was clear of inflammation so they told her her symptoms were IBS.... it did not show in fecal calprotectin because the calprotectin breaks down as it travels through the colon and therefore FCP is most sensitive to inflammation in the rectum. [My other sister with crohns has the same with FCP and her inflammation is in the transverse colon.] Anyway eventually she went to a more competent doctor and they found the inflammation in the TI by doing a capsule endoscopy. The sphincter didn't work properly because of scar tissue... Humira put her in remission..