Posted 3/28/2023 2:24 PM (GMT 0)
Hello All,
Update-6 weeks post Stelara infusion:
It's been almost 6 weeks since I had my first Stelara infusion. I weaned myself off of the prednisone, because it seemed to be affecting me (besides the weight gain). Now my arm/elbow pain is back. I also feel a slight pain on my right shin (it was much worse before I started the steroid). It's just on the left side (feels muscular but it's near the elbow). No pain now on the right side. The lower back/tailbone pain is actually better. Because my new home job has me sitting all day, there is still some pain.
I have noticed that the mucous in the stool seems to be gone, so that is a positive. I just do not know what kind of doctor to go to for the arm pain (maybe start with an X-ray I guess with my pcp). By the way, I'm still taking the genetic Lialda when I can remember (not sure if it helps or not). Been under a lot of stress with this new job and my father getting a blood infection and ending up in the hospital. Stress seems to really do a number in my acid reflux. Also, I did get a rash behind my neck a couple of weeks after my infusion (felt like eczema). It only last about 2 weeks. The same thing happened after the Covid vaccine. Not sure if it's related or not. I will hopefully get a stool test soon to see if my numbers are lower.