flare in other parts of my colon

started in january eating multi grain whole wheat breads with tuna fish/ low sodium, grilled chicken salad, started noticing bloatness, discomfort, went on for 2 month bad smelly and painful gas, no blood no mucus no frequent bm's. stopped all whole grains and felt better, went to gi doctor twice since january, said it want uc, today had my colonoscopy now have uc through out my colon except the sigmod end no blood no mucus no frequent bm"s..( where its been for past 24 years) . have been taking 2 lialda for past 5+ years worked well been in remission, started 20mg prednisone am and pm, doctor said stop lialda, want me to start a biologic,, not sure why he wants me to stop the lialda i have always taken 4 lialda with prednisone which worked... nervous to start a biologic, i have gotten back to almost 1 full solid bm a day, dont feel like im having a flare, advice thank you all Dennis

Post Edited (Spo307) : 5/20/2023 5:32:21 PM (GMT-8)

It sounds like you need more information from your doctor. Will his office give you printed results of your c-scope report, and tell you lab test results if biopsies were taken? If you haven't received them, ask for copies. You can then return here to discuss any terminology or data in the results if you still find them confusing. Several forum members are very helpful at explaining those types of results when the doctors fail to clarify them post-scope. In the meantime, you might feel better avoiding seeds and high fiber bread or rolls that contain them or other potentially scratchy bits of grains or wheatberries. They can irritate the gut mucosa as you digest them. / Old Hat (40+ yrs with left-sided UC; in remission taking Colazal)

I agree about asking if you can try taking the 4 lialda. Yes, entyvio has the best safety profile/fewer potential serious side effects. That's kind of odd your only symptom was the gas and pain, if Im understanding correctly?

CCinPA said...
I don't understand why the doc told you to stop lialda except that he doesn't think it's doing much for you. Many people do well on max dose of mesalamine long term. It sounds as though you have only been on half that all these years. It's great that it worked so long. How does this scope compare to the last one you had? It's possible that the doc thinks it's too severe for lialda and that's why he wants to move to biologic.

To me, severe means many bowel movements with blood and mucus, and pain. which I have none of thank God. I was actually feeling much better.

Spo reports that symptoms were not indicative of a severe flare, also that going gluten-free in recent weeks makes him feel much better. Doesn't sound like he needs a biologic unless pathology reports invalidate his original diagnosis, then it still could be that he's gluten-intolerant and/or needs a different maintenance regimen to stay in remission. Many members have posted here about problems taking Lialda over time so that could have contributed to his current situation. Not every UCer can tolerate extended-release mesalamine. But reading the actual pathology reports seems essential at this point, as Quincy states above. So it's good that Spo intends to contact his doctor ASAP for this additional info! Way-to-go! / Old Hat (40+ yrs with left-sided UC; in remission taking Colazal)

I recently had phone conversation with my doctor about all my concerns and information that I posted here. It seems less urgent now that we had a phone conversation. He wants me to continue on prednisone for another couple of weeks then wean off that and possibly start for lialda two in the morning, and two in the evening, providing everything is OK with my bowl. In two weeks we will discuss further about when I’m coming in for another scope. I did ask him for pathology reports when they come in and he will give them to me and I will post them here. Thank you all for you input. Dennis