Posted 10/14/2023 12:40 AM (GMT 0)
Hey there UC champs!
So Iam waiting for my first Stelara infusion next week. Iam still flaring despite the pred enemas and Rinvoq and now my face is puffy because of the pred (and yes pred enemas still do that). Meanwhile, I woke up today with a sore throat. I noticed my UC, as usual when I get a cold or sick, is worse as well.
So, Iam thinking something really left field, and probably it doesn’t help that deep inside Iam thinking/hoping maybe I can find a miracle herb that will heal me and I won’t need to take the Stelara. These doubts, fears and miracle ideas come to my mind especially right before starting a new med.
Obviously who wouldn’t want a med free remission managed only through some very safe herbs and diet tweaks??
So I thought, why not try organic Elderberry syrup to “strengthen” my immunity instead?
Entyvio 18 months and failed, Rinvoq 5 months and failed….so maybe Iam not meant to suppress my immune system? Especially looking at how my colitis gets worse when I catch a virus. Maybe I should strengthen it? *gulp* that does come with the potential risk of making a flare worse.
So, Iam curious, has any of you gotten better on something like Elderberry syrup/Sambucol?
Or any other immune boosting botanical such as Astragalus?
I also saw this when I googled elderberry and UC: https://www.middleburglife.com/how-one-mothers-determination-to-heal-her-toddler-led-to-a-new-destiny/
Which further piqued my interest, as this lady claims she got into remission and is now 4 years in remission using Elderberry syrup.
Iam interested to hear/read about experiences.
Thanks in advance