UC and sore lips

Hello All,

Just wondering if any of you with UC have experienced painful sore/burning like lips? I seem to be in the start of a flare unfortunately and my lips seem to be very sore- I’ve actually noticed a trend with my lips when I’m in a flare. Also at Christmas my lips got quite swollen and my face came out in a rash was going through a difficult time so put it down to stress, my GP gave me a course of steriods and antihistamines and it got it under control but I’m thinking now it was the start of my UC as I’ve noticed some blood on the stool recently.

Might try a Vit B supplement as I’ve heard this can help even though my UC was always confined to proctitis.

I’m on Infliximab infusions every 6 weeks & Saloflak granules, they have been working well the last while as my stool sample came back normal a few months back. I do feel this flare is completely down to stress unfortunately (have a huge cyst on my ovary) I was also put on an injection call Decapeptyl (to shut my ovaries down temporarily for three months in the hope that it will shrink the cyst and help with endo before surgery). I feel like there’s a lot going on with my body at the moment!

Anyway I’m due my next infusion in two weeks and also have an app with my Gastro this week thankfully. Should the next infusion hopefully help my flare and put me back into remission a bit or will they try and change meds if it’s only down to a stressful period if that makes sense?

Thanks for any input you’ve all been so helpful on this forum over the years!!!

Sue

Saloflak Granules 3g
Infliximab infusions 6 weekly doses
Recently added a digestive enzyme/probiotic

Sorry to read that you're experiencing stress and the painful lips problem besides. In my outside browsing I've seen a couple medical articles stating that polycystic ovarian syndrome is a complication that can affect female IBDers-- so it seems that your gastroenterologist + gynecologist should cooperate, at least by sharing your lab + medical reports, in order to give you the best available treatment/advice. It could be that the gyn medication is affecting your lips. If the gyn medication successfully shrinks your ovarian cyst, you may then qualify for laparoscopic surgery rather than an open-surgery procedure. *** If that's what your gynecologist is aiming for, he/she should explain the rationale to you. In the absence of adequate information from your doctors, prepare to be your own advocate! Tell them you need more information about your prescribed medication and likely follow-up treatment. Here on the forum we have received posts from other female members in the UK who experienced difficulties due to their gyn or gyn "consultants", or the gastroenterology "consultant", who failed to give them adequate or up-to-date information on health complications disturbing their lives daily. *** Wishing you good luck toward a solution for these issues! / Old Hat (40+ yrs with left-sided UC; in remission taking Colazal)

You're very welcome! I recently went through the need for persistence in the dermatology dept. We're supposed to have an annual skin screening as we age. I'd prefer to stay with the same dermatologist for that, but 2 I had for screening in the past subsequently quit my insurance plan! So I located a younger generation derm who practices at my gastroenterologist's med center, only it took me 6 months on a patients' waiting list to get an appointment. Then, at our initial office visit, the patient assistant + the derm each wanted to know why I didn't return to see the (older) derm who did my 2019 screening (at that same med center). I managed to stay calm and explain that the 2019 derm had told me post-exam that she was quitting my insurance plan. Then the pandemic closings disrupted office visits afterward so I had to get on a waiting-list for a new derm who would take my insurance. [Sigh] Fortunately, the younger generation derm agreed that a relatively new mole appearing near 1 of my knees warrants scrutiny, therefore I can return there for follow-up in a few months! *** 1 thing that helps me relieve health-related stress is to focus regularly on something I really enjoy (recorded or broadcast music) or can laugh at (published cartoons) for a while when I put chores aside. Occasionally I'll find a cartoon that makes fun of what can happen at a doctor's office to annoy or vex the patient-- then I know I'm not the only patient experiencing long waits, etc. *** Let us know how you're doing as time permits. Several yrs back I had multiple gyn failures before a savvy one finally referred me for an MRI that turned up a totally unexpected endometrial malignancy. / Old Hat (40+ yrs with left-sided UC; in remission taking Colazal)