Someone explain this before I have a cow!

Well, that night I went and ate at Pancho's in a deep funk.  For those who don't know what that is, it is THE worst for you fake mexican food in existance, and I ate a lot of it.  Even when I'm not sick i shouldn't have made it out of there alive.

But I did.  And I didn't have to go to the bathroom for 3 hours.  And then it was a non-event really.  So I waited all night awake for it to hit.  Nothing really.  Went at 4am,5am, 6am, and 9am.  All mostly non-events except one that I had to wait on the bathroom.  No blood, very very little pain.

WTH?  The day before I couldn't eat a straight up hamburger patty...or anything AT ALL for that matter and was sick as a dog.  So the 40mg of pred just miraculously works after the heavy dose in the hospital did almost nothing?  And it's been getting better too.  He did a sig scope yesterday and sure I felt like crap after that, but still.  What, this whole time I needed to be eating the worst food possible in existance?????

So now I'm really doubting starting this super expensive treatment, however I know it will come back.  I just hate so much drug, and being so bound to it to keep me well.  But what the heck?  Is it placebo since they are so sure I will get better on the Remicade?  I don't take it till tomorrow morning.  I'm so stressed about all of it, especially now since I don't know if it's the right thing to do.

I have still had a few runs to the bathroom.  But this is really freaking me out.  I know last time I had a colonoscopy it cleaned me out and I was well the next day, but this was even before that point.  And I do still have ulcers and they were bleeding after he irritated them with the scope.  But I have been more well since I started getting help Tuesday night than I have been in 5 months!!!!

Denise and Beth, ramble on! I don't have any answers and we are in a similar boat with my daughter. She's been on 60 mg of prednisone for 2 weeks and the doctor doesn't feel she has improved enough on such a high dose. Waiting to get the bloodwork back about starting 6-mp. He did mention possibly starting Remicade until the 6-mp kicks in because he can't leave her on such a high dose of steroids for so long. He took her off Asacol for about 5 days to see if that was causing a negative effect but then decided it was OK to put her back on (but at 6 pills a day not 12).

She seems to be getting better (although quite slowly).  Her morning bathroom routine is not as intense or so lengthly. She has made to school part-time every day since last Friday (after being out 1 month). Of course she will be out next Monday and Tuesday for her prep and colonoscopy.

So like both of you, does she start new medicine and if so, what? In the back of my mind I would like to believe that she is just one of those people who take awhile to have the prednisone kick in. The nurse practitioner who I often speak with says sometimes we see things because we really want to believe it (as in my feeling that my daughter is mending) but that we will see exactly what is happening with the colonoscopy. And then we can make some decisions.