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Ulcerative Colitis
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Posted 11/30/2007 12:46 AM (GMT 0)
I just had my first gastro consult in over 7 years. I saw an amazing doctor from Mass General Hospital in Boston, MA. He was very thorough and questioned alot of what my previous doctor had said/done. I have come off remicade because of drug induced lupus. He is starting me on 6mp. I have already searched some of the previous threads, but was hoping that some of you had some experiences or advice having to do with 6mp.

I am nervous about the side effects and all of the blood work, but i did get a very good feeling from this doctor. Even though this feels very overwheleming, changing doctors...changing medicines...starting to flare again......I hope i am doing the right thing!
Posted 11/30/2007 1:48 AM (GMT 0)
My son took 6mp when he was 12 for a short time, but had to quit because his white count went too low and his liver showed some distress, but he never felt any of the side effects from it. He now takes Imuran without too much trouble (some very mild liver activity if his dose is raised).

My daughter who is 8 has been taking 6mp for a couple of months now and is doing just fine on it, of course she is only on 12.5mg. Every once in a while she'll complain of a headache, but I'm not sure if it is from that or the prednisone, or just one of those things.

I hope it works for you!
Posted 11/30/2007 2:41 AM (GMT 0)
It's good that you found a doctor you trust. That makes a world of difference. I've been on 6mp little over a year with good results. I only had mild side effects in the beginning but once my body became accustomed to it the side effects went away. The blood work, in the beginning, is somewhat daunting but well worth it. Without it, you or the doc won't know how you are responding to the med. But the longer you are on it, the less bloodwork you have to have done. In the beginning, I went every week, then every 2, then every 4 and now I only go in every 3 months unless my dosage changes - which it did recently and I'm back at every 2 weeks.
Posted 11/30/2007 2:55 AM (GMT 0)
Hi. I've been on 6mp for about 1 year and 8 months. It took about 8 months for me to see any improvement in my condition. (I took Dipentum and a lot of other stuff during those 8 months.) I think that in general, the 6mp raised my baseline... I've not had a bad flare on it, although I have had some flaring.

If you think the blood work is daunting, try getting it done in another country in a foreign language! I was traveling for a long time and I needed to get my blood checked 4 times. Each time was a bit of an adventure!

I'd say that it's definitely worth trying and sticking with it for a while to see if you can get some benefit from it.

I've had no noticeable side effects from it at all. And I love taking just one pill a day.
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