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Anyone have dysautonomia

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Posted 1/13/2011 8:20 PM (GMT 0)
Looking for others that have this problem. I thought that things had gotten better but right now just don't know.

Struggling.
Posted 1/15/2011 4:09 PM (GMT 0)
Sheila1366

Welcome to HealingWell and I hope someone comes along who has experience and can answer your questions.

I am truly happy that you found our site.

Kindly,

Kitt

Posted 8/17/2011 3:54 AM (GMT 0)

Sheila1366 said...
Looking for others that have this problem. I thought that things had gotten better but right now just don't know.

Struggling.



Hi Sheila1366,
I just now joined this website, after doing a google search on possible links between PFO closure and worsening dysautonomia. I attempt to educate myself on my health issues, but not TOO much research, ya know? We know our bodies more than anyone else, although the mind is a powerful thing, and only speaking for myself, if I go from link to link to link on the internet with my symtoms. I get more and more confused most of the time, if anyone can relate to that confused

Since my search, somehow led me to this site and your post, I decided to start here before exploring the site more.
Posted 8/17/2011 1:43 PM (GMT 0)
Hey there. Dysautonomia is hard to research for sure. I am having a lot of problems with my stomach right now due to gastroparesis.Some people that have dysatuonomia have GP also. My heart has been doing some funny stuff lately and bp is up and down. Main thing is my stomach. Losing a lot of weight and very weak from lack of food.I think you can find more on a website called ...butyoudon'tlooksick.

Sorry not much help right now, really sick today.

Finding a specialist is key.

Hang in there.
Posted 8/17/2011 2:12 PM (GMT 0)
No worries about being not much help, I probably didn't make myself too clear, if you know dysautonomia, most likely you're familiar with the "brain fog" term. That's me a LOT of the time. I actually have several specialists working together, what I was researching was the relationship of Dysautonomia getting worse after a PFO closure.

I do hope that you get better soon, or that more research/solutions can be found.

butyoudontlooksick.com is an AWESOME site for anyone with an "invisible illness" !!
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