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Normal Heart Rate for POTS?

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Posted 10/12/2017 7:06 PM (GMT 0)
I am a 21 y/o female, and I've been diagnosed with POTS for about 7 months, although I've been dealing with it for much longer. I am going in to be tested for MALS soon with a vascular ultrasound, but I am concerned that my heart rate is too high in general. When I am sitting or laying down, it's usually between 110 and 135, when I stand up it goes to between 130 and 160, and with any light exercise (walking, walking up a hill) it goes to 160 easily (recently it's been getting to 195ish). Do other POTS people have similar heart rates? It's disconcerting to check my siblings and see them at 60-80 while I'm at 140.
Posted 10/12/2017 8:11 PM (GMT 0)
CinnamonSticks, this forum is pretty slow. I would ask my cardiologist about your heart rate to get his thoughts. Try to stay away from comparing your situation to others. Whether they have POTS or not, every person's situation is different. Good luck with ultrasound. Take care.
Posted 10/12/2017 8:23 PM (GMT 0)
My cardiologist doesn't know. POTS patients are few and far between. I've also tried asking my neurologist (he only has 1 other POTS patient), my GI, and searched thoroughly on the web. Unfortunately, there are very few places to get this sort of information.
Posted 10/13/2017 12:21 AM (GMT 0)
you serious!! a cardiologist not knowing about pots!! go elsewhere-and fast. bpm goes up 30 bpm usually and in 10 minute cycles, in the main. this is a median range. 160 is not that high at small intervals. 195 at longer intervals would need a consult. i am 130 with walking going up hill i hate to think. i carry weight, making the ticker work harder. are you carrying more weight than the docs like?
Posted 10/13/2017 1:31 AM (GMT 0)
Oh no, you need a new cardiologist, POTS has been around a long time. And he doesn't know, seriously get a new dr ASAP.

Take care.
Posted 11/5/2017 6:09 PM (GMT 0)
That doesn’t sound much like pots to me. I’ve been diagnosed with POTS and when laying down I have a normal heart rate of 70. Once I stand it jumps to 115-120 moving 140 ish, and using stairs, 170. Having POTS would mean something like brushing your teeth would cause a spike in your heart rate because your arms are moving and you’re standing. This then would make you feel immensely nauseous and dizzy. You’d get breathless and potentially even pass out if you didn’t lay down. If your heart rate is naturally high I’d recommend asking to see if you’re at risk of a heart attack. POTS isn’t just a high heart rate. There are incredibly debilitating symptoms that come with it. For example I cannot go to a mall without my wheelchair. If I do I have five minutes to walk before I faint. I can’t bend down to pick things up because I get dizzy. Definitely check with a cardiologist to see if everything is normal with your heart. It may be a valve is clogged, never self diagnose POTS there are a multitude of things that increase your heart rate that could be deadly.
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