Hi strippedgears, I am so sorry about
your son! I was also born with a VSD but it was not diagnosed until this past august. I am a 32 yr old female. I have bradycardia that was also dx'd in 8/05. My heart rate was in the 20-30 range so I ended up with a pacemaker. I also have syncope due to low blood pressure. This is a result of what they are diagnosing as Multiple System Atrophy (MSA) a Parkinson's type disease that is fatal. I wonder if you have received a second opinion from a cardiologist?