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The Road of Life Twists and Turns Part 9 of 9

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Posted 1/22/2012 10:05 AM (GMT 0)
Holy Moses MT! That's some storm! Hope you're doing OK and that the power is restored very soon!

Denise, thank you, and hope you bounce back from your cold very soon.

Kitt & Bill, you did a great job around here yesterday!

MMM x
Posted 1/22/2012 11:06 AM (GMT 0)
Hey all!

Thanks for the birthday wishes! Goodness, I am 27. And congrats to all of my fellow January birthdays, there are loads! I am doing pretty well. Counting the days until I can lay on the beach and give my dad a hug :)

Denise, I have a head cold also! I always feel like such a wuss because head colds kick my butt. They don't allow me to sleep, and let me tell you, this girl without her sleep = not a good thing. I hope you are better soon!

Mock, I can't believe you're 4 days without power! I'm sorry for the hardship you're going through, I hope you get some energy flowing soon. Thank goodness you had all the camping supplies! If my power went out right now I would have no way to really sustain myself. Kudos to you for being so well-rounded that you're prepared.

***A special shout out to Kitt and Bill for being such GREAT forum mods. You're both awesome and we're lucky to have you!***

Take care everyone,
Ashley
Posted 1/22/2012 12:17 PM (GMT 0)
Ashley-

Happy belated Birthday!


Looks like I am to become a grandpa in September. Just found out yesterday that my son's GF is pregnant.

Take care,
Bill devil
Posted 1/22/2012 2:08 PM (GMT 0)
CONGRATS BILL!! What will you be called? Grandpa? Pops? Poppa?

What exciting news!!
Posted 1/22/2012 3:19 PM (GMT 0)
MT,

I have heard some of the reports from your area and  am so sorry to hear you have been without power for so long.  I talked with my son yesterday and he had told me of  Yaquina River flooding in Toledo, OR as he worked at GP Paper Mill there for many years until he moved to Vancouver, Washington just over a year ago.

Being from the midwest we have been hit with major blizzards however we have been lucky at our house as the longest the power has been out for us was about 10 hours.  We also have the wood burning stove, and alway keep gallons of water as we too have a well.  No power, no well.  And of course the automatic garage door opener doesn't work but hey, who is going out in a storm like that.

I cannot imagine the devestation you must be feeling at the loss of your orchard.  Sending only good vibes your way and please know I am here for you.

Denise,

Dang ole nasty colds can really knock you down and please do take care of yourself.  I will send you a batch of my chicken soup for the soul.  :)  Glad to hear you are getting established with a new GI Dr. and yes, please do start a thread re your experience.  I know we have many members asking questions on this very topic.

Ashley,

Hey there, your thanks is truly appreciated.  Also your support in the forum yesterday was very wise and  helpful to us.  It is always difficult when conflict hits the forum and emotions start to run high.  This is rare in the GERD forum but both Bill and I felt it needed to be controlled so we did our best and we were working together on how to diffuse the situation.

I would love to lay on that beach with  you so remember to takes us along in your thoughts. ((((((((((Hugs)))))))))))

MMM,  Hey there,  I thank you for the compliment and want you to know that I am glad you kept right on posting yesterday and trying to bring things back to normal.  I know I too was letting my emotions get caught up in what was being said and after reflection I went back and rephrased some of my comments as I realized I was getting caught up in the whole situation.  I know I have a tendency sometimes to knee jerk  and respond to quickly in my comments.  My goal is to never cause any harm to any of the members.

When we respond impulsively, it is a natural and honest response. However, is it the smart thing to do? What can be resolved by doing so? I am back to thinking before I respond.......... :-)

That got a bit long, sorry.

Bill,

There is something wonderful about having a new baby in the family and I am so glad to hear your good news.  You are now going to start wearing a new hat in the role of Grandpa.  It is a special honor and blessing to be called Grandpa. 

I pray all goes well and I always am glad to share re the joy of being a Gma so feel free to ask me anything.

Thanks for the teamwork yesterday.  It made me feel good to know we were working together on the problem and I am honored to be your team mate in moderating this great forum.

To All of you,  may your Sunday be special and know how much I support everyone.

Gentle Hugs,

Kitt

Posted 1/22/2012 6:53 PM (GMT 0)
Ashley-

Thanks, I am thinking Grandpa.

Kitt-

Thank you for all your help. I can't think of anyone I'd rather be partnering with. You compassion and insight is amazing my friend.


I got to thinking late last night that no matter if we have a grandson or granddaughter this will cure me of my coaching withdrawls! Just have to get this youngun' started early. LOL!

Take care,
Bill devil
Posted 1/22/2012 8:00 PM (GMT 0)
Ah Congrats Bill - you can't beat a new baby for taking your mind off all else too! How lovely.

Kitt, you're very welcome - I did my best. GERD knows how to push everyone's buttons I reckon!

Hope MT and family are staying warm!

MMM x
Posted 1/22/2012 9:30 PM (GMT 0)
Grampy Bill! :)

Congratulations! Here's a suggestion...papa! My father is called papa by many of the grandkids.

Kitt, I'm glad I missed the fireworks. It's hard to be a moderator. I'd don't know if I could of handled things like you and Bill did. Great job!

Denise, Those head colds are brutal! I've got the sniffles, but not sure if it's allergies or cold. We'll see...

Hugs to all!
Posted 1/22/2012 11:35 PM (GMT 0)
MMM, Joy-

Thanks, I am sure I will end up being papa or pappy.

Bill
Posted 1/22/2012 11:54 PM (GMT 0)
Hello Friends.

sorry I have been absent since Monday or Tuesday.. I have been in the hospital again. I had a gall bladder attack on Monday nite, didn't know what it was and then went to work and had another one on Tuesday nite about 11pm. I got my husband up and told him to take me to the hospital. Long story short... I had 2 stones in the duct that the surgeon managed to get out after doing a intra-operative cholangiagram.(sp?) Anyway he took out the stones he found and ran the ducts again and didn't see anymore so it saved me another test going down my esophagus They tried to get my NF surgeon but he was out of the country. So the local general surgeon did it. I feel pretty good, just had the surgery on Friday. The GI doc here wanted an MRI done and he was just a jerk. If you get the idea I am not fond of him you are right. My pacer is MRI approved but not for an MRI in that area. Anyway.. I got home today and I am pooped but I am happy to be home. Will talk to you all soon.. Have a good nite and
Reach for the Sunshine... Rainbows will follow...
Sandi tongue turn smurf smurf tongue turn smurf smurf
Posted 1/22/2012 11:55 PM (GMT 0)
Kitt
AshleyRose
Mudmagnetmum

all

thanks for the kind words and good wishes

Kitt yeah the rivers to the south are flooding an parts of oregon and south west washington are getting very wet even by NW standards

Ashley..yes well prepared...my wife says im... "too"... well prepared...she chuckles and says "paranoid ?" with a questioning tone of voice and then chuckles

sooner or later almost every part of the country gets its turn at the "bad" weather or other natural disaster...guess it was our turn

spent most of the past two days chain saw in hand clearing neighborhood roads and our fence lines...real work!

---

Bill congratulations !, i bet you can hardly wait to hug and to the new arrival...grandchildren love to play with their grandparents and of course, vice versa......i can hear it now, as your hand is taken hold of by your grandchild some day in the not too distant future, "lets play pony"..."grandpa push me on the swing!"...heaven

best wishes
a very wet and tired (but not under fed ;) mock turtle
Posted 1/23/2012 12:01 AM (GMT 0)
Sandi

im sorry you went thru all that worry and pain. glad the people at the hospital were able o get right at it even though your regular doc (surgeon) was away

when stuff like this happens i always think, thanks God one more trial is behind me...i hope for your speedy recovery

best of good luck to you
mock turtle
Posted 1/23/2012 2:54 AM (GMT 0)
Sandi-

Now you are starting be like the rest of us. Once it starts it never ends....I remember having a gallbladder attack that lasted for almost 4 days straight. Had a very rude ER doc tell me it couldn't be my gallbladder because I didn't have stones and I was a fat female over 40, WHAT? Anyhow turns out my gallbladder had stopped working and was removed within a week or so.
Praying you don't have anymore stones and heal up quickly.

MT-
I remember many nights with chainsaws in hand from tornadoes, ice storms, severe straight line winds. Make sure you get some rest, don't need any accidents. Have they gotten your power back on yet?

Yes I can't wait to see that little one. He or she already has a bow, fishing pole, plenty of baseball/softball equipment, and a Martin LXM guitar!
Don't think papa is ready to spoil a grand child, do you?

Take care,
Bill devil
Posted 1/24/2012 2:46 AM (GMT 0)
Bill

one day after your last entry above......we just got the electricity back! yippie

four january nights without power , yuk ( we actually pitched a free standing tent in the living room and crawled in with sleeping bags) yes furry pets too!

yes i will take it easy with the chian saw etc as w pick up the pieces...im not as young as i used to be :)

thanks

mt
Posted 1/24/2012 5:28 AM (GMT 0)
MT-

Good to hear the power is back. you did what I definitely would have done. Went camping in the house! Good for you, being resourceful!

Take care,
Bill
Posted 1/26/2012 6:06 PM (GMT 0)
Hi all-

Just an update before I head off for an MRI.

I got the results of my manometry yesterday. I do have some swallowing problems now. The top is normal and the area of the wrap is functioning great, no obstructions from the wrap. But the middle area of my esophagus is damaged and doesn't move things down right. The god news is that he expected things to be WAY worse than they are. He said it's from all the years of reflux, all the dilations, and then the tear of course did damage too. He said that having the stent in so long and having to wait fo the outside and inside to scar over to stop the leak attributes to the damage too.

Nothing needs done, but it explains why I can feel things stop going down sometimes. As long as I can maintain my weight and still get food to go down with additional swallows he said all will be fine.

He did say that if my esophagus tears again they may have to remove it due to the motility issues I have now. He's not sure if it would take another repair or dilation and emphasized not getting another EGD for at least 2 more years unless absolutely necessary.

Well f to the VA for an MRI.

Take care,
Bill
Posted 1/27/2012 8:01 PM (GMT 0)
Bill,

I didn't know you were having problems with motility. I am sorry to hear that.  No heartburn at least :) right?  did they say no scopes for at least 2 years b/c they are bad for the esophagus/wrap area? just curious.  If they removed your esophagus, how would food get to your stomach?  I hope all gets well for you and that you "heal well" :)

Everyone,

I've been thinking about you all and hope that life finds you happy and well.

Ashley,

How have you been? Did you ever go back to the doc to discuss your gallbladder scan results?

Take care,

Liz

Posted 1/27/2012 8:18 PM (GMT 0)
Liz-

I started to have pain that was very similar to when the hole opened in my esophagus and they did a barium swallow that showed the hole was closed still. So they wanted to do a manometry to see if there was an spasms going on just to be safe. The test showed no spasms, but did show some motility problems. I really don't even notice it much.
And yes, no heartburn what so ever!

He doesn't want to do an EGD for that long because of the previous tear in my esophagus. With all the reflux, surgery, dilations, tear, etc. I am a big risk for another tear.

If it does tear again they will most likely remove my esophagus and try to use my stomach as an esophagus/stomach. If it isn't viable they would use a section of mu colon as an esophagus.
They were very close to doing this when the tear wouldn't stop leaking back last March. I was scheduled for the surgery and he cancelled it 2 hours before I went to the OR.

This is what they do for people with esophagus cancer.

Take care,
Bill devil
Posted 1/27/2012 9:11 PM (GMT 0)
Hey All - Hello there.  Nice to see you !

Bill, when I read your post from yesterday at first glance I thought it read you just got the results of your mammogram redface -  giggle.  That sure made me sit up and read slower.

I hope your MRI goes well and as always your attitude amazes me as you accept each challenge one problem at a time.

I've got your back my friend.  :-)

MT, glad you have power and hope that things are getting sorted out for you. 

Denise,  thanks as always.  I feel a bit wrung out but basically I am good.  Hope you are past the cold and things are going your way again.

To everyone -  thanks for always being here and Happy Friday.

Hugs,

Kitt

Posted 1/27/2012 9:11 PM (GMT 0)
Hey Liz!

Thanks for asking, I go back Monday and I'll post afterwards. I can't imagine that he won't refer me to a surgeon, but if he doesn't I'm prepared to fight a little bit. This has been going on for too long. It seems like you're doing pretty well, I'm really glad for you :)

Bill,

I'm sorry to hear about the motility issues. I was thinking after I read that (in a joking way, of course) that it seems that your insides have officially declared war. You're one tough dude, that's for sure. You always have such a good attitude about these things and I really admire that a lot. I hope it doesn't cause any issues to warrant esophageal removal! Although maybe the esophagus heard the doctor say that and now it'll shape up and fly right out of fear ;)

***Once again, I have to really applaud our AWESOME Mods, Bill and Kitt, here on the GERD forum. You guys do not have an easy job, but you handle it so well. Thanks for being so vigilant! Please know how grateful we are to have you!***

Take care everyone!
Ashley
Posted 1/27/2012 10:24 PM (GMT 0)
Kitt-

Now you got me giggling! I got a call from the VA this afternoon and am scheduled for the SCS trial on 4/20/12. Sure hope that darn thing helps my ribs. that's why I had the MRI, to be sure my lower back has enough room for the leads to go through.

Ashley-

Good for you for being adamant with you health care.
I guess I am lucky since my GI thought I would have had a much worse manometry. I really don't notice it all that much. Once in a while really soft bread may hang up a bit, but nothing I can't live with. Much better than the constant reflux I was having.
As long as I don't get another tear I think my esophagus is safe. I have thought my esophagus had declared war myself many times. Especially when the darn thing wouldn't stop leaking. I can't believe it will be a year already in a month since it tore. Seems like just a couple months ago.

And Thank You, Kitt and I do what we can. It's really all the great members here who make this run so smoothly and so helpful to others.

Take care,
Bill
Posted 1/28/2012 4:53 AM (GMT 0)
Bill

i hear you about the risk of another esophageal endoscopy...im doing my best to learn everything i can about flexible trans nasal esophagoscopy...seems like the risk of esophageal perforation should be much lower...but dont know that for sure yet... will follow up

AshleyRose
yes you are young, fight for a procedure that will stem this, here... and... now!

are you "gung-ho" on nissen fundoplication... or is linx a option ?... or trans oral incisionless fundoplication.....whats your thinking on the different pros and cons of various procedures?

hoping you will be well
mock turtle
Posted 1/28/2012 9:13 AM (GMT 0)
Looks like I missed some 'fun' on one of the threads again yesterday. Well done to the moderators again! Sad to see someone being flippant with everyone's attention and concern, but at least we know we all tried our best.

MMM
Posted 1/28/2012 6:57 PM (GMT 0)
Hi Bill.

Sorry you still have issues, you have a great attitude.

Congrats on the family news, really pleased for you
, you're an inspiration.

Kevin
Posted 1/28/2012 7:03 PM (GMT 0)
MMM-

Yeah, unfortunately it was happening again. We don't have to deal with it anymore though.

Kevin-

Thank you very much.

Take care,
Bill
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