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Esophageal rumbling + I hate GERD

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Posted 9/28/2012 12:40 PM (GMT 0)
This is so ridiculous...over the past 1.5-2 months my esophagus has gotten way worse in terms of making sounds. It seems to make readjustment sounds that aren't so much like burping, but more like re-accomodating itself. But gas is a part of it, and if I flex my neck I seem to squeeze a bit of air out and make a frog sound. I can do this so often now its ridiculous.

My PCP said that with GERD this type of thing isn't uncommon...I haven't been able to move up my next GI visit. I've only found a couple posts online from people with similar stuff going on, so it doesn't seem that common. I hate GERD.

What is depressing is that up until now 'esophageal hypersensitivity' was potentially my issue...It still might be a part of it I guess, but all this esophageal noise would seem to me to be the first real observable manifestation of GERD and thus a blow to my happiness that maybe it was 'not real' and just hypersensitivity...
Posted 9/29/2012 3:45 PM (GMT 0)
Yuuup. It sucks.
Posted 9/29/2012 4:24 PM (GMT 0)
Hey,

It's been a whole since I posted. I get that dumbly sound too. Sometimes there is this little heghhhhh sound like a frog sound I guess. I don't get it often though. I feel my esophagus readjusting at times too. Weird, I hardly get this too though.
Posted 9/29/2012 4:30 PM (GMT 0)
Yeah its odd. For the past few weeks I am getting it pretty constantly. A lot of times I can make the frog sound every 20-30 seconds, and get constant adjusting. The only time I have noticed that I don't get it is soon after waking up from sleeping. But within 5-10 minutes I've got it again.

Its helpful to know I am not the only one. But judging how bad its gotten in the last month and a bit, it makes me think it could just keep going downhill at a fast pace. I have no idea. Hoping to move up GI appt. and if I'll eventually write here whatever I hear from my doc.
Posted 9/29/2012 4:59 PM (GMT 0)
What are you currently taking? And how's your diet. I haven't posted in a while, but do remember you were doing semi ok a while back.
Posted 9/29/2012 6:09 PM (GMT 0)
Desipramine and 20MG Prilosec. Doing noticeably better in terms of heartburn, but this new symptom is pretty much constant. But it really feels just like gas in my esophagus and throat that sucks, and my esophagus messing around with it, but isn't actually reflux.

My diet is impeccable. Nothing processed, tonnes of fruits and vegetables, focused on being super healthy. I never veer from it. I thought maybe increased fruits recently might cause digestion issues, but I don't think so.
Posted 9/30/2012 6:55 AM (GMT 0)
Hey ACR,

I know what you mean when you say "rumbly noise" in the esophagus. I am glad your condition is under control. I once said, "man, when I get better and cured, I am gonna post it on here and tell everyone." Turns out is not as easy as I thought. I still have hope though. I am going to start my diet regiment again.

What are your plans with your doctor? Are you doing surgery any time soon or are you waiting to see if you can manage it?

You, doggbones, mmm, ericapeace, justpassingthrough,mock turtle, skitt, the person who posted the lpr diet, Bruce and a couple of others always have something good to report or are great researchers. Plus, you guys and ladies are the ones I remember since I started posting.

I wish I had insurance and could just say, "give me the linx." Sigh....
Posted 9/30/2012 6:17 PM (GMT 0)
Hey Nickles,

Thanks for your replies. Yeah, all those good names of the people I met when I started participating here as well. I have to tell you, one of the downers is coming here and seeing almost all new names, and realizing that many people have probably moved on while you are still here, struggling. I am not a fan of that.

Well its tough...I have been dealing for 4 years and feel like I should get the surgery or do something definitive. But all the docs and surgeons I have asked have been against it....and I have seen studies based on GERD populations where the sample is people with daily GERD symptoms for 10 years +.

So its tough to gain that perspective...at the same time that patients are going with the "try to manage it and, if that doesn't work, get the surgery", all the medical professionals I see don't see it that way, and many studies are based on patients with 10+ years of daily GERD symptoms...after which a ridiculously small percent see esophageal mucosal changes and most just continue with non-erosive GERD or low level esophagitis.

So to answer your question, I don't think I'll get surgery soon, but also don't know if the goal is to 'manage it'. My current Dr., a 'top doc' and extremely well known adenocarcinoma and barrett's guy has told me numerous times that complete symptom repression isn't usually viable, and the goal is to get like 50% better and to just deal with the other symptoms, as long as Barrett's doesn't develop and the risk of cancer is extremely low.

I can tell you my Dr. was part of the panel that approved the Linx for the FDA, and one day I saw him and just went full throttle for the Linc. EH explicitly told me that I was not a good candidate for it and that it probably was not a good idea for me at all...that I'd have the same symptoms even after the surgery (due to hypersensitivity).
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