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GERD - part III

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GERD & Acid Reflux
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Posted 4/26/2013 11:41 PM (GMT 0)
I agree with chris anything goes here, we can say everything on our mind that we can not say in the company of others, like i can tell you guys anything, its so weird how I feel so much more comfortable with you guys then my own family and the fact you guys exist makes me more happy because I sometimes feel people don't know the anxiety and the severity of how our illness has on us, they always say to me people are dying from cancer so why are you stressed out so what you can't eat certain stuff and I agree with them other people out there have bigger issues then us but i feel like our issues are just as important because we constantly have this excessive worrying of how our disease in any minute can become deadly and stuff. and you can not tell me not to be stressed out or anxious about it because it can or can not happen, its like being in middle of chess board you do not know what the next move will be so you just have to wait it out until it happens. I do not know if I used a good comparison but it just frustrates me how people in my life act like I can eat whatever I want, yeah I may have silent symptoms but dude even tho I can not feel it something is happening so hush up and understand why I am frustrated and we can not forget the emotional toll it takes on us, besides us getting sicker we also have to give up A LOT of life's simple enjoyments and deal with it everyday how people can drink a pineapple smoothie and I can not lol.

sorry for the random rant I guess its built up tension that I have been avoiding for the past week, do not get me wrong I may seem okay and I am but it's still there the emotional built up and stress from this disease constantly hangs over me even tho I try to stay busy, I am the type to ignore my problems and have it boom in my face, I wish I can talk to more people but no one besides you guys in my life is understanding they are trying but it's still hard you know? so back to my point you can say whatever to me haha.

Sew: oh let me know how it goes, I read that somewhere too and its the same with tea they said cold brewing tea and not steeping it longer then suppose to should be better, and supposedly the tea leaves are better then the bags because it contains more caffeine can you believe that lol? are you trying it with regular coffee or your provost cofffee?
Posted 4/27/2013 12:13 AM (GMT 0)
Will: $40K a year tuition fee! So expensive. We are paying about $20K/year and I still have one more to pay for in 4 years. I am so anxious this week, I guess from worrying about my daughter.

Chris: I am hoping my son will follow you into engineering. I am with my company for over 25 years hoping to retire in 5 years: Freedom 55. If you are concern about your nose, you should go in to check it. What do you do for relaxation?

Roah: I can relate to you this week about so much anxiety. I couldn't do any exercise this week. At least the weather is getting nicer finally. We had such a long winter!!!

Sewfun: Thanks, I will look for the strips. I am still taking the Zantac at night. I am a bit worry about sour taste in my mouth. I haven't seen by a GI yet cause I need a referral from my GP and she can't refer me until I take PPIs for a while.

Gail: any better today :-)

Have a great weekend everyone.
Posted 4/27/2013 1:12 PM (GMT 0)
Good morning,

Viv, I didn't get seen by a GI doc either until the ppi's didn't work. Nothing worked until they got to the underlying cause - gastroparesis. Most likely the GI would just put you on the ppi's anyway. Have you elevated your bed? My dh wasn't too thrilled with raising the bed 7 inches. I confess I do tend to slip down, but haven't fallen off yet. I can even have backwash in the daytime if my stomach has too much pressure on it or from bending improperly.shakehead --- I know you were asking Chris, but I have been thinking about just exactly what am I doing for relaxation. I think the stress and never knowing from one minute to the next how I'm going to feel is not good for my stomach. I'm trying to walk more especially now that the weather is better. Even when I was at my worst 2 years ago I was walking more. Not sure why I stopped.

Chris, Just isn't typical for me to discuss snot and what to do with it. lol I was also thinking, "I hope no one is eating while they read this". Hence the warning. yeah

Roah, I tested my cold brew this morning and it was 6. Yay! Time will tell how that goes. I never even thought about cold brewing tea!

Yesterday I had an early dinner before my evening Zantac so.......I decided to see how I would feel. No symptoms so I went to bed w/o that dose. This morning a little uneasiness in my stomach. I decided to take the whole 300 mg dose in the am and work on weaning from a single dose. I read where this is maybe better anyway. --- Still waiting for the Dropping the Acid book.
Posted 4/27/2013 4:52 PM (GMT 0)
Good morning evryone.
Roah, only you know your body and how you feel. Perhaps, we can all use a butt kicking once ina while if we arefeeling too sorry for ourselves, but don't let them ever tell you how to feel. I hateit, I hate it when they think if we just changed our mind set, everything will be better, as if we are holding ourselves back.

Sf, no prob tongue

Gail, ej, viv how you guys doing?
Posted 4/27/2013 4:53 PM (GMT 0)
Good morning everyone, How I get excited to post to you la familia! :)

Viv: yes I know right, I swear if we can only turn off all our worries, I mean I can not, I just leave it up to time, you know? well besides waiting for the rest of my tests to be done I can not really do anything but stay clear of bad foods (which has been hard these days lol) but please try and relax and I am just glad you are there for her because I know what it's like to go through something like this, I had my fair share last year when I was first diagnosed and not getting into the colleges I wanted to and getting into colleges I wanted to but too far for me to go and felt I shouldn't have went off to college with the state I was in and still kind of in but I stayed close because at this point it's just about graduating for me i really want a good health insurance in the future so I can see better doctors haha.

Sewfun: hey! :) I am so happy it went well for you, yeah I think you can do cold tea but maybe with the leaves which is so much more expensive i think I do not know but let me link you, I am waiting to experiment with all these after all these tests I have done and see my doctor, because I think I might have to be back on meds in order to let my voice box/ throat heal. how does it tatse? I am so happy!! //dances with you. Oh what coffee beans/hash mix did you use?

Okay so I couldn't find the orginial one that I saw but I found this to kind of give you the idea http://www.samovarlife.com/how-to-make-cold-brewed-teas/ I do not know if you use leaves but I think if you open the bags that works as well but did you buy toddy brew system? I might buy it when I start my job LOL. its 30 dollars or around that.

EJ, Chris, Gail I hope you guys are having good weekend. I have so much HOMEWORK GOSH!!! and still hanging in there for job hunt //crosses fingers//

Post Edited (inpinkagony) : 4/27/2013 10:57:42 AM (GMT-6)

Posted 4/27/2013 5:12 PM (GMT 0)
Sew, viv,
One thing good about my insurance is notwithstanding high deductable $1150($1250 from next semester) and no naturopath available(acupucture is doable, though) I don't need referral. I can do anythign i want. No family doctor, no nothing. :)

Roah,
Yeah, you know how i hate that, too. It's your stress, they say. I am stressed out BECAUSE OF gerd not gerd caused by stress, right?

Sew, chris, roah
My mom raised me that way, too, very conservative. I even had not had a chance to talk about S with her at home growing up. Talking about body was not comfortable with her. She still can't stand watching pg-13 movie with her children(all about 40's by now) though more relaxed than BEFORE. But my husband was raised so openly he talks about those things so easily at first it baffled me and made me embarrassed. But i grew to learn the merit of it. I am still shy about those stuff but I found once i can talk about those things i can tell him anything. There is no secret between us.

So, i guess, that's what's happening to us here. Once you overcome certain barrier, you feel more easy toward each other to talk about something else. Things that could have embarrased you to talk about in the normal setting,

After all, WE ARE NOT NORMAL, LOL smilewinkgrin

Last night i couldn't fall a sleep until almost 3 am because i felt the Gaviscon i had before the bed was gurgling and i felt my stomach acidic(takes time to adjust to sleeping without Zantac i guess), but since i was afraid i might wash the Gaviscon down or something, i couldn't drink water, and i felt thirsty..... Gaviscon has never been happy companion for me. I will try sleeping without it tonight.

Other than that, 2nd day drug free, so far so good.

Sew, i 'might' be feeling more appetite without zantac because i felt actual 'hunger'(not 'empty stomach') yesterday for a change between lunch and dinner so i had a light snack(just a handful of rice crackers. Chew thoroughly) but i am not sure. I will let you know when i am.

Gail,
Two more days to go! Keep it up, girl!

Post Edited (Willovercome) : 4/27/2013 11:32:42 AM (GMT-6)

Posted 4/27/2013 5:32 PM (GMT 0)
 

Good Morning all ;)

I decided last night after a kind of crummy, that today I am trying my best to

not think negative about anything!.......I have to get this negative stuff out of my

mind.

 I think your mental state has sooooo much control over our bodies, especially for me.  The more I think about what might be wrong with me, it just gets worse and worse.  So, for now, I am trying really hard to just think, Hey, this has happened before, the weight loss, lack of appetitie, etc.  and eventually the weight came back. 

I also need to adjust to the fact that I cannot move closer to my daughter, and be happy where I am.  ahhhh, what a battle.

I saw a delicious recipe I want to try tomorrow. So, we will be going to the store in the am for the stuff.  Hopefully we can get a El Polo Loco avocado, bacon salad tonight, sooooo yummy.  Hey Chris have you tried this?  Some beans and rice in the bottom, then lettuce, chicken, avocado, bacon, delicious! ;)

 

Posted 4/27/2013 5:36 PM (GMT 0)
Do any of you guys have El Polo Loco where you are. If you do, try this salad, it is healthy and so good ....
Posted 4/27/2013 6:58 PM (GMT 0)
Oh shucks I love you guys! I am always just smiling reading our notes and thoughts because I know there are 5 other people out there like me suffering from anxiety stress and finding things to eat and wondering what happening to my body now, I just sometimes wish I can be symptom free for like a week haha, but hey we can not control life and what happens to us just gotta keep milking our days until no life is left to be lived haha.

Gail, omg sounds yummy I been eating lots and lots of salads so I love new dishes, did you find it online or is it restaurant? I am trying low-carb, low sugar, low acid, low fat, & basically low everything might as well haha.

You know you guys the biggest challenge is not like whats happening to us or what we can't eat but its trying to make other people understand but I can only do so much, my family has been slowly coming around I get my flare ups when I am with them because they do tend to stress me out about my weight and stuff but i am trying to find an apartment soon, I feel like the distance from them will be better for all of us and my health as well, I just want to deal with things privately sometimes when you are so CLOSEEEEEEE to someone you tend to fight harder with them because how much love and passion you have for them. so that's what happens to me so VIV I can understand your frustration, make sure you know at the end of the day you love her and she loves you so talk everything out and try and hear her out and hopefully she does the same.

EJ & Chris; gosh you guys, thanks! I am glad I can tell you guys about my frustration, and as far as telling me how I feel I try & let them not to because I just know sometimes YOU only know what you are going through.

EJ: haha WE ARE NOT NORMAL at all, and the thing about open-mindess yeah I was raised in A VERY open family so anything you have to say goes with me we gotta remember that we are humans at the end the day and things happen, but I do know there is time and place for things its all about how close you are to that person and where you are to say such things but for me I feel close to you guys since the wall has BROKEN LONG time ago! LOL
Posted 4/27/2013 7:35 PM (GMT 0)
A Twitter link for chris
Chronic Cough http://t.co/H7ncXQGNNF
Posted 4/27/2013 9:47 PM (GMT 0)
Roah: you want to move too! Thanks for your kind words. Yes, I am still trying to work this out with my daughter. I don't know how it works in the US but I am a bit worry because if my daughter doesn't enroll in college next semester, she can't be under our family drug plan. This can be costly.

Sewfun: I just noticed we both got gastritis about the same time in 2011. I was diagnosed with Gastritis in June 2011 and was on PPIs for 3-4 months and because my hair was falling so much I decided to stop. Have any of you try yoga or meditation? I love to try yoga again except can't fit into my schedule yet. I did hot yoga for a bit and it was too HOT!!! I like walking too. I do try to go down to my treadmill every night.

Will: your mom sounds like my mom. Can't discuss S...with her at all. My mom hasn't look at another man since my dad passed away and that was 38 years ago. My health plan is pretty good. We have $1000/year for naturopath. $1000/year for massage, $200 for acupuncture and drugs we have unlimited ceiling.

Gail: your recipe sounds delicious. I still haven't cook my lentils or quinoa. Do you know any good recipe for them?

Chris: I am doing OK, not sure if you or anyone in our group saw the other thread about drinking coke at dinner time. I will try it tonite. Will let you guys know tomorrow.
Posted 4/28/2013 2:01 AM (GMT 0)
Viv, not sure which link you are referring to.  Can you give me a quick summary about what you are talkin about?  You know, I used to drink coke like fish drink water.  I never drank alcohol and coke was my main vice.  I miss it, especially the nice burp you get that makes you feel good inside.  But I have convinced myself that coke is, for me, the worst thing in the world.  It's full of sugar (not good for someone who might become diabetic), gassy with caffeine (not good for GERD), acidic (not good for gastritis) and finally contains phosphoric acid which robs your body of magnesium.  But let me know how it goes for you.  I always have an open mind.

Roah, got up this morning all anxious for no reason.  Felt depressed.  I wonder if it's the ativan.  I take it before going to sleep becaue it helps me with my sleep but perhaps when it gets flushed out of my system after 12 hours, my body swings the other way and gets all anxious.  Anyway, the point is I had about 4 mood swings today, where I was like why me, then maybe it's going to be okay, then why me, then maybe it's going to be okay.  Geez, emotionally it's really hard.

EJ, will check out the twitter link.

Gail, that recipe sounds good.  I might have to leave out the avocado since I suspect that any fatty stuff can't be tolerated by my stomach well right now.  Maybe substitute ham for bacon too.

Finally, I saw a friend today who told me that he had gastritis for 3 years.  3 g.d. years. It's a work friend and he said this happened to him in college.  He had a really stressful summer driving an ice cream truck for a summer job.  He would sit in this hot truck all day and not eat.  Then he would come home late at night and pig out.  Just really irregular eating.  Then he came down with gastritis and he said that for two years he threw up most of the stuff he ate, except for some bland soup.  Crazy.  He said that it took him 2 years to get to 80% and another 1 year to get back 100%.  I was glad to talk to him because it kind of gave me some perspective on my issue and that it's going to take patience to get back to being normal and I need to not get frustrated at every set back.

 

Posted 4/28/2013 2:28 AM (GMT 0)
Hey guys,  my computer is not running and have to wait for a battery ;(

So I won't be here for a few days.  I will miss all of you ;)

Posted 4/28/2013 4:56 AM (GMT 0)
Chris; Yeah I just broke down like an hr ago I think its the built up before the explosion and today it exploaded arlight I am let I cried it out, I feel a little bit better but yeah THATS how my days are every day this week, I do not know but I do agree with you it's emotinally draining, OH my gosh what your friend said matches everything I have been doing ebfore the gastrisi, yeah I heard soemtimes it takes a long time for it go away, well mine has went away but maybe it's back now who knows, but I think I did some damage to my LES during the summer with the constant eating and over eating and eating all the bad stuff and eating soo much close to bed time I mean I ate my taste buds away and turning 21 and consuming more alcohol then my body can handle, because I think that's another thing that must have triggered my gastritis because I never drank before last summer but you know when your 21 and how those times are, gosh if only I never drank ever and I also read that sometimes over consuming alcohol for the first time some people can irritate their veges nerve which controls the digestive system, and it has been linked with LPR so I have few theories I will propose to my doctor if my tests come back normal but won't know all this until may 7th, I just wish I lived in area where doctors were REALLY familiar with LPR and updated on different reasons gerd is happening to so many of us, like GERD is symptom of underlying cause for people who do not have hiatus hernia or faulty valve, so I wonder where am i getting from? there has to be something, thats why I will fight until I find the right cause and cure for this thing.

Viv: yeah I really need break from my parents and everyone I think being alone will do me some good and allow me to heal but I wont know that until july when my college lets me know if I can live on campus or not.

Gail: awnn sorry to hear that will miss you too!

Hope everyone is having good weekend.
Posted 4/28/2013 11:02 AM (GMT 0)
Good morning all,

Chris: here is the link to that thread:
https://www.healingwell.com/community/default.aspx?f=45&m=2712474

I did drink a bit of coke after dinner. I felt more bloated. I didn't feel much different though. I only drank a bit because I wasn't sure how much I should drink. My main problem now is the sour taste in my mouth when I wake up in the morning. Your friend is right Chris. It took me a year to get to the 80% and I am still working on the 20%. I think you should try to do something else to relax you even more and that will help with GERD as well. How about going for a massage?

Roah: How far is your campus from home? Is it expensive? Do I sound like a parent? :-) Do you think you will be less anxious if you live by yourself? I know it's hard to live with your parents cause you guys think we are so nosy, always in your space but being a responsible parent we have to make sure you are on the right path. You should do something to relax you as well, to get your mind off of GERD.

Will, Gail, Sewfun: Hope your weekend is going well.
Posted 4/28/2013 12:47 PM (GMT 0)
Hello everyone. I am new to this forum, and need to speak to people who know what I am going through. I got diagnosed with Barretts esophagus about 8 months ago after thinking I had a thyroid issue! I have never experienced any heartburn, but apparently acid has been eating away at my esophagus for years. They put me on omeraprozole 40 mg a day. it makes me feel like crap, I still have acid. It doesn't matter if I eat, don't eat, drink only water, whatever. I go to bed with a "chunky feeling" I wake up with one. I am so frustrated and dont know what to do. I don't want to end up with esophageal cancer, I have 3 kids I would like to be here for. Anyone familiar with the LINX operation? I am considering flying out of state to meet with one of the docs that perform it. I am really depressed about this darn acid that won't go away!!!
Posted 4/28/2013 5:22 PM (GMT 0)
Santy, welcome and am so sorry to hear about your situation.  What else were you diagnosed with besides Barrett's.  Barrett's pretty much means that you have acid coming up from your stomach and that could be caused by so many different things.  With barrett's I don't know much other than actually go on ppi or get surgery if you have a hernia.

I see that this was your first post.  You might get better feedback from the rest of the entire board if you post the exact same thing as a new post instead of a reply to a pretty established link that only perhaps only a few people check.

Posted 4/28/2013 5:28 PM (GMT 0)
Hey, santy,
Welcome to our cozy saloon~:)
No one here has barraett's esophagus but i understand fully that you must be very anxious. I would ask you to stop ppi as soon as possible due to its side effects normally but b's is totally differnet animal, i've read.
Too bad...:(

Roah(inpinkagony) is interseted in surgery in the future but it seems it's up to doctors to decide who is a right candidate.

https://www.healingwell.com/community/default.aspx?f=45&m=2678278
https://www.healingwell.com/community/default.aspx?f=45&m=2706100

To me, These are your best bets to get information about surgery. First one is by the people who already have done the surgery, Second one is by someone just like you who WANTS to have a surgery.

And for the morale support,
you are always welcome to come here anytime. We are all open to talk about ANYTHING about gerd and gerd related symptoms include pre/menopause ;)

Good luck!
Posted 4/28/2013 5:29 PM (GMT 0)
Gail, will miss you until you return.

Roah, ah sweetie, don't your worry.  Go ahead and cry.  I know how you feel.  I sometimes wish I could cry just to get it out of my system too.  You and I need to realize that gastritis isn't something that heals right away.  Slow recovery.  Right Viv?  I think realistic expectation is critical in our recovery.  Set our expectations right and we won't get frustrated as easily, which is a huge detriment. My biggest thing is to not try to overeat (to gain weight) or try to eat what I use to eat (to restore some feeling of normalcy).  For the past few days, I have gone on a pretty bland diet, restricted sugar and refined carbs and I don't want to jinx myself but my stomach is feeling pretty decent and the lump in the throat feeling is definitely better even though it's not completely gone.  

EJ, Sew, hope you guys are doing well no matter where you are. 

Viv, I checked out the link.  I think it's interesting and could have merit.  However, it applies to a very specific situation.  The poster was talking about when you are completely off PPI's and the stomach is not producing enough acid to digest the food, causing other issues, she is using the coke as an a digestive aid based on coke's acidity.  This only applies if you are off ppi's and your stomach has not returned to normal acid production.  When I do get off the ppis, I will keep this in my mind.  Thanks for alerting me to it. 

 

Post Edited (Chris K.) : 4/28/2013 11:41:19 AM (GMT-6)

Posted 4/28/2013 5:44 PM (GMT 0)
Hi Guys,

Don't know how long I can type or if it will work, but I am here. Reading all your posts ;)

We just went grocery shopping, it will be 94 today, so making some simple homemade tacos today.

The special chicken dish will have to wait until it is cooler.

I have a couple decent days, without too much distress and trying to eat a little more.

I did have a surprise yesterday with my fiancé announcing he wants to move out of state!

What?????   My children are here for pete's sake!......my grandchildren.  I won't move out of state at this time in my life.  Oh Boy........so little nervous about how all this will pan out ????  Looks like we have a lot to work out??

I refuse to get stressed over it!!!!.........he will probably change his mind soon??

Welcome to our new poster ;)

Love you guys! 

Posted 4/28/2013 6:08 PM (GMT 0)
Wow, gail.  That's big news.  Let us know if you need any support.  We are here for you.  Remember, don't overeat.  Don't worry about the weight.  Your body will tell you when you need the food.
Posted 4/28/2013 9:54 PM (GMT 0)
Hello Everyone, Unfortunately I have not been having a good weekend tummy wise. I could not shake the HB/pressure yesterday. I wound up going back up on the Zantac figuring that I had decreased too quickly. I am still having a hard time today. I've been throwing everything at the symptoms - Tums, Gaviscon, finally Peptobismal did the trick. I still feel like I am teetering on the brink of disaster. I haven't eaten since 10:30 this morning; hoping I just need to clear my stomach out. This too shall pass. I am at about the 2 week point of going of ppis'....delayed rebound??? rolleyes

Viv, I take it your gastritis healed? I'm not sure when my healed, but the EGD proved it 2/2013. That's less than 2 years, however, I was on ppi's and carafate. I still get a little burning with certain foods, so like I said before I was surprised to hear it had healed. My pcp told me 2 years ago it was the worst case he had ever seen. smhair So don't anyone give up hope; it can heal. --- I don't do yoga, but do some pilates. So many inverted yoga positions I can't do. Meditation I've never been good at. I've tried it; I got bored! I think walking is my best bet for stress reduction. yeah

Roah, sorry you are having a rough weekend. It's probably good you got it out. I hope you and your parents can come to an understanding.

Gail, Just take it one day at a time. Is he definitely moving or just thinking about it? --- I know it's hard not worrying about weight. I told my dh to prepare for some weight loss, but I think it will be necessary to keep the symptoms at bay while I finish rebounding. I am not even looking forward to eating tonight because I expect the HB to come right back. How's that for positive thinking. sad --- Glad you have had a good couple of days.

Ya'll take care. turn
Posted 4/29/2013 2:20 AM (GMT 0)
Viv: yeah I know where you are coming from, but it's close to home so I wont be far but I need space like for all the right reasons, I am not the type to escape and run away from my parents because they are annoying, I just want to be on my own and grow a little bit and kind of want to go into hiding for the next two years so I can focus on my medical degree and stuff. But I hope everything works out for both of us! :)

Sew: yeah that's def delayed rebound for you! Hahaha mine kicked in two weeks after i got off like it was so bad, it does get better, I haven't been getting a lot HB but for me it's the silent reflux thats killing me stupid LPR! hope you feel better.

Chris: thanks, I think the storm was coming and haha it will come again with this disease its worrisome roller coaster I mean you just don't know what can happen.

Gail: OH MY GOSH! I hope everything works out, I really think it's best to be close to family during this time. but maybe things will work out!

Hey santy you are def gonna find a lot of information on this site, there a lot of people on here who have forums about their linix/nissen journey you can check that out and they will be more then happy to help you, but in mean time welcome to our healing club where we share, vent and heal about whatever whenever haha!

anyways hope everyone had good weekend and ttyl!
Posted 4/29/2013 2:52 AM (GMT 0)
Sew,
Delayed rebound probs.
Mine went like this,
Had ppi for 4 weeks
Stop, two weeks later zantac a week,
Stop, two weeks later ppi again for a month(then i didn't know the side effects)
Stop(due to side effects) began zantac for two weeks
Stop, 19days later zantac again for two weeks,
Stop, 12days later zantac again for two weeks,
Stop
Now 5th day drug free.
You can see the pattern of this thing?

I hope this time around is different but i cannot assure you. So far so good, though.

Gail,
I don't know what to say....

Another week, guys!
Posted 4/29/2013 5:31 AM (GMT 0)
If you do feel pain EJ I know that zantac rebound lasts for 10 days so don't be surprised if you start to feel heartburn after week or something because that could be the zantac rebound I know the PPI takes longer like 2 months -5 months zantac is 10 days or so. GOOD LUCK!

Night everyone
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