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GERD - part III

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GERD & Acid Reflux
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Posted 4/29/2013 4:36 PM (GMT 0)
EJ, Thanks for the insight and reassurance that is is really par for the course. I do plan to take things a little slower. Technically I think I am about 2 weeks into ppi rebound and I have an 8 week plan for weaning the Zantac. I may still have ppi acid rebound at that point since I was on such a high dose of ppi for nearly 2 years. skull

Roah, I just read yesterday about the 10 day acid rebound for Zantac. Hopefully weaning off slowly will ease that transition as well, but again I am starting with such a high dose. Time will tell.

Today is a better day. I have been HB/pressure free for nearly 24 hours. turn

Hope everyone is well. smurf
Posted 4/29/2013 11:21 PM (GMT 0)
Hey everyone,

I just thought about doing my daily checking in's with everyone hope all is well.

Sewfun: yaya! so happy for you and yeah I wasn't shocked when I read about it because h2 blockers are like step down so every drug has some consequences, have you started on diet yet? Gosh I am so happy I think I got job offer and if I did, then now I can have money for things I need to maintain this LPR/GERD lifestyle.
Posted 4/29/2013 11:59 PM (GMT 0)
Hi everyone,

Roah: so did you get the job offer? If yes, I am happy for you. Buying all these supplements do add up. I got the Fast Tract Diet book and yet I haven't read it cause I am so busy with my daughter.

Sew: Did you ever get the sour taste in your mouth? It really bothers me, always something. I am so lazy tonight, don't feel like going down to my treadmill. What is EGD? I didn't have to do another endoscopy yet, maybe I will ask my doctor.

Will, Gail, and Chris: how are things with you three?
Posted 4/30/2013 12:19 AM (GMT 0)
viv, my computer is still not fixed, hopefully it will be by tomorrow!
Posted 4/30/2013 2:05 AM (GMT 0)
Viv: yeah I have training this Friday, I think I have the job but I am nervous I will mess up because working in shoe store is really hard but so far I like my manager and the area I work in, its in cute little place near the water so I can so imagine taking my breaks during the water or eating my lunch by the river or reading good book, so I hope it gets relaxing for me soon. Are you on the zantac? EDG is endoscopy and Yeah I got the fast track on kindle but do not know which one to do, because koufman one makes you loose a lot weight but if I am on the fast track it seems like really high in fat and some acidic foods so having LPR is so frustrating because I can not seem to do anything right but I can't really start one until I have my impendence 24/hr test done and my follow up with my ENT to discuss treatment options for my LPR/GERD. Yeah I know enjoy your time with her? how's that going?

Gail; we miss you! at least you are checking in :)
Posted 4/30/2013 11:49 AM (GMT 0)
Roah, I have sort of started the diet plan. I am trying to follow the alkaline food list that Koufmann has on the internet, keeping everything above 5. I am actually having a little difficulty this morning, but for me it is most likely undigested food, so I am waiting to have breakfast. That's the one nice thing about Zantac you don't have to eat when taking it.

Viv, I do not get the sour taste. My backflow or silent reflux does not seem to come up that high. I do need to do a better job of making sure I have an empty stomach before going to bed. That works best for me. Like Roah said, EGD is the endoscopy. My GI did the additional EGD when I asked to reduce the medication. He wanted to make sure I was healed first. It made me much more confident in my decision to get off the ppi.

Gail, hope you get your computer fixed soon. yeah

Chris and EJ hope you are having a great week!
Posted 4/30/2013 4:14 PM (GMT 0)
Hi Everyone,

My computer is still not fixed so hope this goes through ;(

This question is off the gerd issues, however I have been thinking a lot this morning and realize I will have to break down and get a colonoscopy and probably a CT scan also?     I frankly don't know how I will get through either??

I am so afraid of any kind of tests.   but I think I need to accept the fact if I don't get them done, I will never know what is going on.....

My A1C tests came back, I was 1/10th of a percent over the normal limits, so I don't think it is diabetes.  I have not talked to the Dr. yet about it.  But my research shows it is nothing to worry about. 

I was very bound up yesterday again, and had to take milk of magnesia to finally go!.......today I feel like crap again......so I am concerned why I am leaning towards constipation everyday, when I used to be on the loose side all the time?

Maybe all the coffee I used to drink?

Anyway, please let me know if you have had a colonoscopy  and a CT scan, or would the CT eliminate the stupid colonoscopy???.......Chris, when you had your scan and they ruled out cancer, had you also had a colon test????

Thank  you!

Posted 4/30/2013 5:34 PM (GMT 0)
Hi Sew/Viv, I think I am doing a little bit better. It's hard to say because if I am doing better, it's just so subtle.
I am able to have a little bit of more energy and my stomach feels like it's less bothersome and my lump in throat feeling is better (or at least I think it's better, I hate to say anything is better because you know, I hate to get hopeful only to get it thrown right back in my face.) I am pretty sure that if I drink anything cold, the lump in the throat feeling returns.

The thing that bothers me the most is just how weak I have become other the past 2 months (all coinciding with the weight loss). Yesterday for the first time, I try to do some meaningful exercise so I try to do some pushups. I used to be able to do 40 with no problem. yesterday, I could barely do 5. No wonder I get so tired walking. It's like all my muscles have deteriorated so much. I guess I just have to build them back up. Need to get off the ppi's too although really not sure when.

Gail, good to have you back. At your age, I am afraid that you probably have to do both. I did the CT scan and the doctors seemed to believe that colonoscopy is unnecessary based on my symptoms and age and not because the CT scan ruled out things about my colon. Like I said, the CT scan really shouldn't be a problem. I have no idea how colonscopy feels, but if you get a good gastroenterologist, it should be fairly comfortable. Gail, I don't think you have anything serious. Shouldn't worry so much, you know :)
Posted 4/30/2013 6:35 PM (GMT 0)
Chris, thanks for the info.

Yes, I know you are right.  I have the referral for the GI guy, just need to jump in and go see him now......darn, I hate all , this.  My computer is still sick, .

the battery should be here tomorrow. 

I have noticed the muscle weakness also, I get tired really easy too, which is not normal for me. 

I don't know how you are working feeling so crappy??, but I admire you for doing it.

I am so empty today after that laxative last night finally kicked in.

Need to eat something good for me for sure today. 

OMG, I looked at myself in the mirror today and saw this toooooo thin person staring back at me!.......who in the hell is she???????

Posted 4/30/2013 8:24 PM (GMT 0)
Roah: don't worry about it. You will do just fine. Yes, I am still on Zantac 150mg before bedtime. This is such a slow process. I will start on the Fast Tract Diet soon.

Chris: I know the feeling of low energy and didn't feel like doing anything. As long as you keep pushing through it you will get better. Can you do other exercise? Spinning, walking or something really slow like Taichi :-)

Gail: I had my colonoscopy at the same time with my endoscopy and I was under so I didn't feel a thing. You're probably too anxious. It's funny how all of us become so anxious about our health and listen to our body all the time. Are you still eating OK?

Sew: I hate this sour taste in my mouth every morning. I don't have the burning. I am going to change my diet again to see if it helps.

Will: Hope you are doing well today.
Posted 4/30/2013 8:43 PM (GMT 0)
Viv,

Being put under is what scares me.  Guess I need to get the appt. with the GI Doc and see what he says.

I know the prep for the test is brutal?  Not looking forward to it at all!

I have never been so lazy as I have been since this started.  I am not motivated to do anything much.

So, I know it has affected me mentally as well.  Then this talk from my fiancé about moving out of state doesn't help either.  We have been together almost 5 years now, it would be a shame to dissolve our relationship over where to live........I only know I am not moving out of state and being far away from my children.  so there!  ;)

I did not eat much yesterday because of the constipation issue.  I will try to make it up today.

Posted 4/30/2013 9:05 PM (GMT 0)
Gail, Glad your computer is still working enough to post. Can you drink smoothies for the constipation. That may help too especially with some greens in them. That's good news about the A1C test. Hopefully you will be getting more good news soon.

Chris, it is tough when we lose weight. I went from 107 to below 90 pounds in 2011. I actually stopped weighing when I hit 90 pounds. The ER doc thought for sure I had cancer. The thing is we don't just lose fat we lose muscle mass as well. I was really bummed to find that out. Just remember you need protein to build the muscle back up. Protein is one of the hardest things for me to digest, hence I drink protein drinks daily. When you are better you will get your strength back, and you will get better. Don't even worry about the ppi's now, just get better first. You can always stop the ppi's later. yeah

Viv, I would think waking up to a sour taste would not be pleasant. I am tweaking my diet constantly. It is never ending trying to find the right foods, cooked the right way, eaten at the right time of day, etc, etc. I am looking into the Nourishing Traditons cookbook. Basically eating food that is fermented to begin with so it is easily digested. That will be interesting to see if I can eat those food. rolleyes Supposedly it is really good for gastroparesis and may go well with the Fast Track diet.

Today has been another good day. Thank goodness. I see the GI on Friday and I would hate to say, "I stopped the meds and am doing miserable". He would not be happy. He was very pleased with my last EGD; I'm sure he wouldn't appreciate if I messed myself up again. I'm just going to take it slow this time, really. scool
Posted 4/30/2013 10:03 PM (GMT 0)
 

Sew,

Yes, this losing weight thing is really hard on me.  Did the Doc's tell you "why" you were losing weight besides not being able to eat like normal??  I was fixing smoothies, eating peanut butter, avacados, anything that was good calories, I still eat them, however I kindof got off the smoothies, when I realized no matter what I ate, I was still

losing weight!....... maybe the GI Doc can give me more insight as to why this is going on and hopefully it won't be cancer.

I know it takes a long time to start gaining weight.  I get so tired of all the commercials on TV about losing weight!

Like how about some hints on "gaining" weight????   idiots!  ;)

You give m e hope that this will get better, thank you.

Posted 4/30/2013 10:52 PM (GMT 0)
Gail, the undiagnosed gastroparesis, hence casing the gastritis caused volcanic HB no matter what I tried to eat or drink. I wasn't eating and losing weight, I literally could not eat without debilitating HB. I couldn't even sip water or take meds without getting sick. My youngest child thought I was dying! That's how bad it was. I could barely function.

I know your situation is different. The coffee absolutely could have been a laxative for you. Having stomach problems, regardless of why can cause appetite loss. You say you are eating and losing weight? Are you keeping track of calories? Also, make sure you get enough fluids, maybe even something like Pedialyte could even help especially when using laxatives.
Posted 4/30/2013 11:01 PM (GMT 0)
 

Thanks Sew,

How long did it take for you to start gaining again??  I am keeping a log of my intake, and know it is not enough calories everyday........I never have been a big eater, but I don't have motivation to cook and that is causing problems als0.  Vicious circle isn't it?  

who would dream we would end up with these problems?  I sure didn't.

I think its a shame we all have to go through all these tests to finally figure it out, if ever?

My stomach has been more or less upset all day.  But, I did have 2 cups of decaf this am, which I haven't done in months, so I think that is the problem.  god, I miss my coffee!

Posted 4/30/2013 11:28 PM (GMT 0)
Hey you guys,

Gosh I do not feel so good today, the back my mouth hurts like hell, I keep trying to talk and I can feel so much pain, not to gross you out but I am starting to get white bumps in back my tongue and they seem to hurt, I know my ENT said it's from the acid, but gosh waiting for all my tests to be done, makes things worse for me, I just want treatment now so I know if it's gonna work or not, stupid LPR! LOL

anyways on good news, had good day school wise, school is almost finished yappay! but not for me I am doing summer classes since I am health major haha, but yeah just hoping to see some good news or improvements with my illness, gosh I been ignoring it for so long I forgot it was there but today it bit me on my butt aha!

Sew: good, I hope it works out for you, I should follow it more thoroughly but sometimes I do not eat because I am constantly busy which is bad because I know 5-6 small meals a day is what makes our acid goes away haha~ let me know how it goes, how's your coffee? LOL

Viv: yeah I am going to start some diet soon, and don't worry healing takes a long time, I am waiting to get all my testing done to see how much I reflux and stuff.

Chris: I do not know if I answered this but yeah bland diet is probably what I need at the moment my symptoms ugh! they just hurt, keep me posted feel better buddy!

EJ, gail love you guys! hope you guys having good day.
Posted 4/30/2013 11:34 PM (GMT 0)
Gail, Don't even get me started on the coffee. I think that is what upset my apple cart this past weekend when I reduced my H2. I also have a bottle of chocolate wine waiting for me in the fridge! Both of which I could have on the PPI. I started gaining weight when I starting taking medicine that made my stomach work. I would have a milkshake everyday for nearly 2 months then I finally found a protein drink I liked made by Orgain. Not real sweet. I would have it between meals as a snack. I have noticed lately I seem to have more appetite. I'm hoping the reduction in medication will renew my appetite some more. Not having an appetite doesn't exactly motivate me to cook either. I can't eat things like PB; high fat foods are hard for me to digest as well. I am going to try some avocado though. The fat isn't quite as dense. For the most part high calorie foods are problematic for me. rolleyes

I hope you get your appts soon so you can get some answers, or at least eliminate things that are worriesome. ;)
Posted 4/30/2013 11:51 PM (GMT 0)
Oh, what a mistake I just made.  I had a Boost type drink and added some chocolate flavoring to it.

Wayyyyy too rich!.........right now I feel like I want to throw up!......will write later.

Posted 5/1/2013 12:38 AM (GMT 0)
Roah: are you taking anything at all? Sorry I don't remember. Why do you have to wait until all tests are done? Poor you, your tongue must hurt a lot.

Sew: I hope to get to your level of comfort soon. I am so confused with all the protein, carb., etc. I have the Fast Tract Diet book and plan to start on it this weekend. I manage to keep my weight on now. I still have another 5 lbs to add back and it is not happening. I will look into the Nourishing Traditions book. Thanks, Sew.

Gail: Hope you feel better soon.
Posted 5/1/2013 2:26 AM (GMT 0)
Viv: No I am not taking anything, because I feel like even if I take zantac or any type of anti-acid it won't help because pepsin/bile seems to escape and comes into my throat (annoying thing about LPR) and yeah they are close I will probably know everything by may, and I know stupid tongue shrugs what can you do? I am doing all these tests to rule out all possible causes of LPR in order to move on with treatment right now I am just on VERY high alkaline diet! I have ordered gaviscon advance because I heard this by far is the best medicine for LPR'ers they did a study for 6 months and it seemed to help I just want to heal my throat/voice box after all this, then I shall step off whatever medicines I am given.
Posted 5/1/2013 12:25 PM (GMT 0)
Roah, sorry to hear you were having hard time yesterday. Does the bile reflux occur in the daytime or only at night when sleeping? --- Glad school will be over soon. --- I need to follow the diet more closely, I cheated last night and paid for it. Hopefully, I won't continue to pay for it today. When I have a setback, it usually goes on for nearly 24 hours. ETA: I have not had coffee since Saturday. I when I researched those coffee tamer things I did come across something interesting about espresso being lower in acid. My favorite type of coffee is the Americano, which is basically watered down espresso....so there's still hope.

Gail, Yikes! Chocolate is so hard on reflux. It actually has 3 separate trigger mechanisms. I think I read that in Koufman's book. Not sure. Sometimes I can get away with it and others time not. Depends on how much. The Boost drinks are also so high in sugar to begin with. --- Hope you are feeling better.

Viv, you can check out some of the recipes without getting the book just by googling Nourishing Traditions Vegetables, or fruit or whatever you are interested in. That could give you a good idea of what it's like before you buy. Maybe even your library has a copy. I sold my copy of the book, but now I'm thinking I may benefit from that type of food. Not really sure I will like it though.

Post Edited (sewfun) : 5/1/2013 7:29:15 AM (GMT-6)

Posted 5/1/2013 2:32 PM (GMT 0)
 

I am making my appt. with the GI doc today, no telling how long it will take to get in??

I was reading about IBS today, and realize that my symptoms are really falling into that category.

Some articles said that weight loss was not a symptom, while others said it was?????  so who knows??

It will be interesting to see what the Doc. says.  The articles all said that anxiety and stress can really bring it on, which also fits.   I will never drink another Boost type drink, it tasted awful and I suffered the rest of the night from it!.......

Hope you all have a good day ;) 

Posted 5/1/2013 4:11 PM (GMT 0)
Good morning everyone,

Oh gail I suspsect my mom has IBS too, its very common condition, I hope you work everything out with the GI, and let's hope everything comes back normal, if not I am here because while searching for gerd/lpr info I have picked up new skill on being aware of a lot of different things you can do for any digestive disease and IBS happens to be one of them haha!

Sew: Yeah It is so weird, like I wake up with the weirdest symptoms from day to day, today its dry mouth like the back of my mouth, I am trying to retrace what I have done to make my current ones worse, I do not know if I am night time/day time, thats why I am having the 24hr probe done on MAY 7th then I make an appointment a week from that with my ENT to discuss like my valve/contractions/relfux episodes all that good stuff. Oh yeahh I do not even know anything about coffee but I was always milk girl the creamier the better, but yeah like koufman said the darker the coffee the better for gerd so I wouldn't be surprised expresso is good. Good luck with that! Oh sew the protein shake you found online, did you measure the ph fo that? I might get it I need something for breakfast why is breakfast the hardest thing to cook for?


Have good one everyone! :)
Posted 5/1/2013 4:44 PM (GMT 0)
Hi Pink,

I am going to the GI tomorrow am.  They had a cancellation, so I don't have to wait.

It is for a consultation, so I will be anxious to see what he says about all of this??

Yes, the IBS symptoms sounded so much like me. 

I have had pains, cramping in my stomach all morning today.  Guess I will just take a Tum for now.

I do hate this!

Posted 5/1/2013 5:22 PM (GMT 0)
Gail: That's awesome, I really hope it's something minor or nothing at all but def let me know when you get back tomorrow.

UGHH I am not having a good day besides feeling unwell, I got call from the people who are going to do the 24hr prob saying how my insurance doesn't cover it because I am inactive I really hope, they cover it or something changes I am really depending on this test so I can have better follow up with my ENT, gosh why must I have probs with the insurance on top this disease, LOL random ranting, I know you guys feel my pain with all the doc visits and tests we must have done, no one else buy you guys are there to listen, Thanks!
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